- Revenue 2025
- $2,543,539
- Expenses 2025
- $2,394,640
Program services were 99.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H20
- Classification
- 1000
- Street
- 301 BOARDWALK DRIVE BOX 270405
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
FIND a Community : Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another. HOPE for a Cure: Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function. FRRS1L awareness: Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.
-
Create a community of Hope for FRRS1L gene disorder children and families to connect communicate collaborate and support one another.
Expenses $236
-
Serve to fund the research and development of gene therapy replacement treatment that has been proven in research to bring FRRS1L mouse back to function.
Expenses $2,365,692 · Grants $100,000
-
Share information and resources with the public medical professionals and researchers to increase the awareness and understanding of FRRS1L.
Expenses $6,753
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Viviana Rodriguez
Vice President
- Total calculated
- $0
- Hours/week
- 10
-
Christine Green
President
- Total calculated
- $0
- Hours/week
- 40
-
Stephen Green
Secretary
- Total calculated
- $0
- Hours/week
- 5
-
Arturo Alonso
Director
- Total calculated
- $0
- Hours/week
- 2
-
Lindsay Ullman
Director
- Total calculated
- $0
- Hours/week
- 2
-
Matthew Nisley
Director
- Total calculated
- $0
- Hours/week
- 2
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $2,543,539
- Expenses
- $2,394,640
- Contributions
- $2,504,608
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990-EZ
- Revenue
- $65,868
- Expenses
- $45
- Assets (EOY)
- $65,823
-
2021 · 990-EZ
- Revenue
- $65,868
- Expenses
- $45
- Assets (EOY)
- $65,823
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Form 990-N e-Postcard, tax year 2023
- Tax period
- 1 July 2023 to 30 June 2024
- Principal officer
-
Stephen GreenSTEPHEN GREEN
- Mailing address
- 301 BOARDWALK DRPO Box 270405FORT COLLINS CO 805253000
- Website
- frrs1l.org
As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
$422,467
2022 RESEARCH
-
2024 GENERAL SUPPORT
-
2024 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$27,900
2024 HEALTH
-
$25,000
2024 FOR RECIPIENT'S EXEMPT PURPOSE
-
2024 GENERAL SUPPORT
-
2025 GENERAL SUPPORT
-
no cash amount reported
2023 RESEARCH
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.