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RARE VILLAGE FOUNDATION

EIN 83-4699994 MCKINNEY, TX

Browse the largest nonprofits in Texas

Revenue 2025
$3,660,787
Expenses 2025
$2,368,236

Program services were 89.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H12
Classification
1200
Street
6808 OLD GLORY CT

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

1 other organization in the IRS Business Master File lists the same street address. matched by us

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2025

Mission

TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES

  • DONATED MILLIONS DOLLARS TO RESEARCH INITIATIVES

    Expenses $2,116,111 · Grants $2,090,899 · Revenue $3,360,364

As filed on the 2025 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Gina Hann

    VICE PRESIDENT SECRETARY DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • Kasey Wolleben

    PRESIDENT DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • Amy Sowell

    TREASURER DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • Amber Freed

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $3,660,787
    Expenses
    $2,368,236
    Contributions
    $3,660,585
    Grants paid
    $2,090,899
  • 2023
    Revenue
    $2,626,190
    Expenses
    $2,147,205
    Contributions
    $2,625,090
    Grants paid
    $2,126,374
  • 2022
    Revenue
    $1,374,746
    Expenses
    $1,130,788
    Contributions
    $1,374,501
    Grants paid
    $1,064,870

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $2,314,057
    Expenses
    $1,389,893
    Assets (EOY)
    $958,533

  • 2020 · 990-EZ

    Revenue
    $38,873
    Expenses
    $42,932
    Assets (EOY)
    $84,368

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

  • FINDING HOPE FOR FRSS1L

    $422,467

    2022 RESEARCH

  • RAIDEN SCIENCE

    $179,021

    2022 RESEARCH

  • UMASS CHAN MEDICAL SCHOOL

    $85,000

    2022 FUND RESEARCH

  • RAREBASE PBC

    $58,000

    2022 RESEARCH

  • NORTHWESTERN UNIVERSITY

    $53,500

    2022 RESEARCH

  • DREXEL UNIVERSITY

    $28,000

    2022 RESEARCH

  • MAOD FOUNDATION

    $27,750

    2022 RESERARCH

  • NEIL HACKETT

    $1,000

    2022 RESEARCH

  • RIAAN RESEARCH INITIATIVE

    no cash amount reported

    2023 RESEARCH

  • NORTHWESTERN UNIVERSITY

    no cash amount reported

    2023 RESEARCH

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.