Totals
- Total revenue
- $1,374,746
- Total expenses
- $1,130,788
- Contributions and grants received
- $1,374,501
- Grants paid
- $1,064,870
- Program service revenue
- $0
- Investment income
- $245
- Other revenue
- $0
- Total assets, end of year
- $1,202,491
- Total liabilities, end of year
- $0
- Net assets or fund balances, end of year
- $1,202,491
- Program services expenses (Part IX)
- $1,071,727
- Management and general expenses
- $19,093
- Fundraising expenses
- $39,968
- Program service expenses (Part III)
- $1,071,727
Program services were 94.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Line items
Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.
Revenue
Part VIII, the statement of revenue.
-
1f · All other contributions, gifts and grants
$1,374,501
-
3 · Investment income
total $245 · related or exempt $245
Functional expenses
Part IX, the statement of functional expenses.
-
1 · Grants to domestic organizations and governments
total $864,870 · program services $864,870
-
3 · Grants to foreign organizations and individuals
total $200,000 · program services $200,000
-
13 · Office expenses
total $4,251 · program services $4,251
-
14 · Information technology
total $61 · program services $61
-
17 · Travel
total $10,247 · management and general $10,247
-
24a · Other expenses: SUPPLIES
total $2,377 · program services $2,377
-
24b · Other expenses: POSTAGE
total $23 · program services $23
-
24c · Other expenses: ADVERTISING
total $846 · management and general $846
-
24d · Other expenses: BANK FEES
total $145 · program services $145
-
24e · All other expenses
total $47,968 · management and general $8,000 · fundraising $39,968
Balance sheet
Part X, book values.
-
1 · Cash, non-interest-bearing
beginning of year $958,533 · end of year $1,202,491
-
27 · Net assets without donor restrictions
beginning of year $958,533 · end of year $1,202,491
Mission and programs · 2022
Mission
TO FIGHT FOR CURES FOR RARE DISEASES AND EMPOWER INDIVIDUALS WITH RARE DISEASES TO LIVE THEIR BEST LIVES THROUGH LOCAL COMMUNITY EDUCATION, INSPIRING ADVOCACY, AND TIMELY CONNECTION TO CRITICAL RESEARCH THAT LEADS TO CURES
-
DONATED OVER ONE MILLION DOLLARS TO RESEARCH INITIATIVE
Expenses $1,071,727
As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.
Listed in Part VII
-
Amy SowellAMY SOWELL
TREASURER DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
Amber FreedAMBER FREED
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
Gina HannGINA HANN
PRESIDENT & DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
Kasey WollebenKASEY WOLLEBEN
VICE PRESIDENT SECRETARY DIRE
- Total calculated
- $0
- Hours/week
- 10
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those.
Grants on this return
-
$422,467
RESEARCH
-
$179,021
RESEARCH
-
UMASS CHAN MEDICAL SCHOOL
$85,000
FUND RESEARCH
-
RAREBASE PBC
$58,000
RESEARCH
-
NORTHWESTERN UNIVERSITY
$53,500
RESEARCH
-
DREXEL UNIVERSITY
$28,000
RESEARCH
-
$27,750
RESERARCH
-
NEIL HACKETT
$1,000
RESEARCH
-
RIAAN RESEARCH INITIATIVE
no cash amount reported
RESEARCH
-
UT SOUTHWESTERN MEDICAL CENTER
no cash amount reported
RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Provenance
- Return type
- form_990
- Tax year
- 2022
- Filed
- 2 May 2023
- IRS schema version
- 2022v5.0
- Source object
- 202311319349302806
Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.
The source document this was parsed from is served over the API, which is where bulk and document access live.