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NATIONAL CMV FOUNDATION INC

EIN 47-2329330 TAMPA, FL

Largest nonprofits in Florida

Revenue 2024
$346,360
Expenses 2024
$492,551

Program services were 53.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G128
Classification
1000
Street
1646 W SNOW AVE SUITE 84

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

Our mission is to prevent pregnancy loss, childhood death, and disability due to congenital CMV. Our strategic goals are to: raise awareness through advocacy accelerate mission-driven research target education programs grow resources in support of the mission demonstrate commitment to diversity, equity and inclusion

Activities or mission (Part I)

Our program activities are focused around congenital CMV education and advocacy. We deliver education about congenital CMV to families and women of childbearing age through digital platforms, strategic partnerships, public health initiatives, and grassroots advocacy efforts. We advocate for the screening of newborns so we may properly evaluate and identify these babies to enroll them in the proper treatment as standard of care. Our programs include the CMV Community Alliance; CMV Partnership Alliance; education & outreach services targeting the women of childbearing age and general public, childcare providers, and healthcare providers; advocacy support; and early career research awards

  • Public Health Awareness: The National CMV Foundation creates and disseminates evidence-based health education on congenital CMV, including prevention strategies during pregnancy, modes of transmission, potential outcomes, newborn screening, treatment options, and relevant public health policies. Through diverse communication channels, such as web content, email marketing, social media, paid media, print materials, videos, toolkits, educational downloads, and continuing education activities, the Foundation reaches women of childbearing age, families, child care providers, and healthcare professionals nationwide.In 2024, the Foundations advocacy leadership contributed to the introduction of the Stop CMV Act, the first federally coordinated effort aiming to provide funding and incentives to increase screening of newborns for congenital cytomegalovirus.

    Expenses $166,078

  • Community Building: Representatives of the National CMV Foundation hosted a variety of in-person and virtual events designed to strengthen community engagement, raise awareness, and expand advocacy for congenital CMV risk reduction. These gatherings included educational webinars, advocacy trainings, and fundraising events that united families, healthcare professionals, and partners nationwide, building connection, empowerment, and sustained support for those impacted by CMV.

    Expenses $99,547

  • RESEARCH SUPPORT: The National CMV Foundation supports a range of research initiatives and efforts, including workshops and grants for young investigators and early-career researchers studying maternal or congenital CMV infection. Areas of focus include public health, epidemiology, diagnosis, treatment, outcomes, basic science, and vaccine development, all aligned with the Foundations mission to promote maternal and newborn health and reduce the incidence of congenital CMV in the United States. Representatives of the National CMV Foundation were also instrumental in securing the FY '24 inclusion of congenital CMV in the Department of Defenses Peer-Reviewed Medical Research Program, opening new opportunities for federally funded CMV research and innovation, totaling over $700,000.

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Danielle Kinkel

    President

    Total calculated
    $0
    Hours/week
    10

  • Andrew Vereeke

    Treasurer

    Total calculated
    $0
    Hours/week
    5

  • Stephanie English

    Director

    Total calculated
    $0
    Hours/week
    5

  • Andy Jones

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Danielle Jones

    Director

    Total calculated
    $0
    Hours/week
    5

  • Suresh Boppana

    Director

    Total calculated
    $0
    Hours/week
    5

  • Benjamin Cohen

    Director

    Total calculated
    $0
    Hours/week
    5

  • Megan Pesch

    Director

    Total calculated
    $0
    Hours/week
    5

  • Amy Sheridan

    Director

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $346,360
    Expenses
    $492,551
    Contributions
    $342,370
    Grants paid
    $0
  • 2024
    Revenue
    $346,360
    Expenses
    $492,551
    Contributions
    $342,370
    Grants paid
    $0
  • 2023
    Revenue
    $382,031
    Expenses
    $455,965
    Contributions
    $378,729
    Grants paid
    $11,000
  • 2022
    Revenue
    $280,538
    Expenses
    $459,678
    Contributions
    $277,975
    Grants paid
    $100,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $506,369
    Expenses
    $273,642
    Assets (EOY)
    $655,495

  • 2020 · 990

    Revenue
    $315,224
    Expenses
    $322,315
    Assets (EOY)
    $423,702

  • 2019 · 990

    Revenue
    $358,080
    Expenses
    $319,706
    Assets (EOY)
    $427,074

  • 2018 · 990

    Revenue
    $238,574
    Expenses
    $307,756
    Assets (EOY)
    $388,700

  • 2018 · 990

    Revenue
    $238,574
    Expenses
    $307,756
    Assets (EOY)
    $388,700

  • 2017 · 990-EZ

    Revenue
    $144,235
    Expenses
    $86,921
    Assets (EOY)
    $457,882

  • 2016 · 990-EZ

    Revenue
    $53,278
    Expenses
    $66,995
    Assets (EOY)
    $400,568

  • 2015 · 990-EZ

    Revenue
    $156,094
    Expenses
    $23,773
    Assets (EOY)
    $132,321

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2014

Tax period
1 January 2014 to 31 December 2014
Principal officer
Kristen Spytek
Mailing address
PO BOX 630044LITTLETON CO 80163

As filed, from the IRS e-Postcard file of 2 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

  • CORNELL UNIVERSITY

    $50,000

    2022 EARLY CAREER RESEARCH GRANT

  • UNIVERSIT OF BRITISH COLUMBIA

    $50,000

    2022 EARLY CAREER RESEARCH GRANT

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.