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Lyme Disease Association Inc

EIN 22-3123551 Jackson, NJ

Browse the largest nonprofits in New Jersey

Revenue 2024
$51,000
Expenses 2024
$552,884

Program services were 93.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Street
PO Box 1438

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

LDA's mission is promoting awareness of & controlling spread of Lyme & other tick-borne (TBD) diseases and their complications through education; raising and distributing funds for research & education; assisting underprivileged patients.

Activities or mission (Part I)

Lyme Disease Association (LDA) raises funds for research, education, prevention and patient support. LDA partnered to establish Columbia Un. Lyme & Tick-Borne Diseases Research Center. Provides research grants, LymeAid 4 Kids, physician conferences, public presentations.

  • After 33 years of dedicated advocacy within the Lyme disease community, The Lyme Disease Association (LDA) officially closed its doors on December 5, 2024. Throughout its impactful history, LDA raised funds to support research, education, prevention, and patient support. Among its many accomplishments,the LDA partnered in the establishment of the Columbia University Lyme & Tick-Borne Diseases Research Center. The organization also provided research and educational grants, launched the LymeAid 4 Kids program, and delivered numerous public presentations to raise awareness and support.

    Expenses $514,762

  • LA4K Grants: The Lyme Disease Association's LymeAid 4 Kids (LA4K)fund was started in conjunction with author Amy Tan. It has been in operation since 2004 and has distributed $477,300 for children all over the United States since. The fund is for children who do not have insurance coverage or do not receive reimbursement for Lyme disease treatment/diagnosis and whose families have economic difficulties. LDA's LymeAid 4 Kids fund gave 15 financially disadvantaged families grants in 2024.

  • Research, Education, Grants: Since 1992, LDA has provided 128 research grants including one in 2024.Research published in peer-reviewed journals helps move the field forward. To date there have been more than 60 journal publications from LDA funded research. From 1999 to 2024, LDA also awarded educational grants to other non-profits, hospitals, universities/other entities to provide educational programs, conferences, billboards, printed matter/other materials on Lyme/TBD.

  • Education - the LDA's efforts are multi-pronged - providing free speakers for programs for various audiences: public, corporations, schools, government, health care providers, and radio interviews.LDA brochures are ordered through LDA website for shipping cost. Most LDA materials/articles are posted on website for free download/printing. LDA publishes a free monthly e-newsletter featuring articles on current research, news, links to resources & researcher funding opportunities/studies for public. LDA answers non-medical questions online & maintains a free tick-borne disease searchable nationwide doctor referral with about 800 medical providers/other professionals.Several School Nursing educational programs were provided in 2024 along with a National Vector Borne Disease Strategy.

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Corey Lakin

    Director

    Total calculated
    $0
    Hours/week
    4

  • Ruth Waddington

    Secretary

    Total calculated
    $0
    Hours/week
    4

  • Jeannine Phillips

    Director

    Total calculated
    $0
    Hours/week
    4

  • Richard Smith

    V P/Treasurer

    Total calculated
    $0
    Hours/week
    4

  • Timothy Lynagh

    Director

    Total calculated
    $0
    Hours/week
    4

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $51,000
    Expenses
    $552,884
    Contributions
    $48,006
    Grants paid
    $366,088
  • 2023
    Revenue
    $330,469
    Expenses
    $257,720
    Contributions
    $330,238
    Grants paid
    $39,755
  • 2022
    Revenue
    $279,003
    Expenses
    $280,669
    Contributions
    $278,794
    Grants paid
    $70,500

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $312,342
    Expenses
    $294,484
    Assets (EOY)
    $496,596

  • 2020 · 990

    Revenue
    $247,877
    Expenses
    $256,112
    Assets (EOY)
    $494,581

  • 2019 · 990

    Revenue
    $377,399
    Expenses
    $491,488
    Assets (EOY)
    $536,785

  • 2018 · 990

    Revenue
    $533,408
    Expenses
    $428,093
    Assets (EOY)
    $659,438

  • 2017 · 990

    Revenue
    $313,133
    Expenses
    $372,733
    Assets (EOY)
    $477,676

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Not present in the most recent drop.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.