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JEFFREY MODELL FOUNDATION INC

EIN 13-3380237 NEW YORK, NY

Browse the largest nonprofits in New York

Revenue 2024
$10,208,043
Expenses 2024
$9,266,854

Program services were 91.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
2000
Street
780 THIRD AVENUE 47TH FLOOR

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

The Foundation is dedicated to the early diagnosis, treatment and ultimate cure of Primary Immunodeficiency Diseases. The Foundations primary mission is supporting basic and clinical research, physician education, patient support, public awareness, advocacy and newborn screening. The Foundation generates support through contributions from the general public, industry, and government agencies. The Foundation sponsors physician symposia, conferences, educational events for physicians and patients, and awareness programs to reach the public.

  • THE ORGANIZATION CONDUCTED PUBLIC SERVICE ADVERTISING CAMPAIGNS DIRECTED TO THE GENERAL PUBLIC TO CREATE PUBLIC AWARENESS, AS WELL AS TO EDUCATE BOTH TREATING PHYSICIANS AND THE GENERAL PUBLIC ABOUT IMMUNODEFICIENCY DISEASES.

    Expenses $7,913,425 · Grants $5,281,556

  • BASIC AND CLINICAL RESEARCH SUPPORT AT NUMEROUS EDUCATIONAL INSTITUTIONS AND HOSPITALS THROUGHOUT THE UNITED STATES AND WORLD-WIDE AS REPORTED IN ACCOMPANYING SCHEDULE F AND SCHEDULE I. IN ADDITION, THE FOUNDATION PROVIDED FUNDING TO REGIONAL AND NATIONAL PATIENT ORGANIZATIONS GLOBALLY.

    Expenses $578,593 · Grants $3,521,037

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Frederick Modell

    President

    Total calculated
    $716,538
    From this org
    $716,538
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $716,538
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $716,538

  • Vanessa Tenembaum

    EXECUTIVE DIRECTOR

    Total calculated
    $354,119
    From this org
    $354,119
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $354,119
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $354,119

  • Jessica Quinn

    SCIENTIFIC DIRECTOR

    Total calculated
    $200,677
    From this org
    $200,677
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $200,677
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $200,677

  • Christopher Sims

    CHIEF FINANCIAL OFFICER

    Total calculated
    $198,273
    From this org
    $198,273
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $198,273
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $198,273

  • Roger Davilla

    Total calculated
    $197,465
    From this org
    $197,465
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $197,465
    Bonus
    not reported
    Other
    not reported
    Deferred
    not reported
    Nontaxable benefits
    not reported
    Filer's total
    $197,465

  • Michael Davidson

    Director

    Total calculated
    $0
    Hours/week
    2

  • Wendy Levine

    Director

    Total calculated
    $0
    Hours/week
    2

  • Helen Chaitman Esq

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jennifer Chaitman DVM

    Director

    Total calculated
    $0
    Hours/week
    2

  • Bettina Emden

    Director

    Total calculated
    $0
    Hours/week
    2

  • Frann Eric Francis

    Director

    Total calculated
    $0
    Hours/week
    2

  • Robbie Alan Franklinesq

    Director

    Total calculated
    $0
    Hours/week
    2

  • Allyson Alan Galishoff

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lynn Manheim

    Director

    Total calculated
    $0
    Hours/week
    2

  • Gene Manheim

    Director

    Total calculated
    $0
    Hours/week
    2

  • Hassan Ahmed

    Director

    Total calculated
    $0
    Hours/week
    2

  • Felice Axelrod

    Director

    Total calculated
    $0
    Hours/week
    2

  • Ron Snyder

    Director

    Total calculated
    $0
    Hours/week
    2

  • Faisal Khalid

    OVERSEER

    Total calculated
    $0
    Hours/week
    2

  • Brenda Gary Lavigna

    Director

    Total calculated
    $0
    Hours/week
    2

  • Lisa Stephen Lawrence

    Director

    Total calculated
    $0
    Hours/week
    2

  • Debbi Max Lebersfeld

    Director

    Total calculated
    $0
    Hours/week
    2

  • Debbe Longo Strout

    Director

    Total calculated
    $0
    Hours/week
    2

  • Jonathan Mechanic Esq

    Director

    Total calculated
    $0
    Hours/week
    2

  • Carol James Randel

    Director

    Total calculated
    $0
    Hours/week
    2

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $10,208,043
    Expenses
    $9,266,854
    Contributions
    $8,802,593
    Grants paid
    $2,165,862
  • 2023
    Revenue
    $9,602,449
    Expenses
    $7,360,289
    Contributions
    $9,078,111
    Grants paid
    $2,094,727
  • 2022
    Revenue
    $8,819,209
    Expenses
    $5,875,800
    Contributions
    $8,597,865
    Grants paid
    $1,972,977

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $6,146,213
    Expenses
    $5,254,820
    Assets (EOY)
    $36,072,018

  • 2021 · 990

    Revenue
    $3,320,213
    Expenses
    $5,254,820
    Assets (EOY)
    $33,246,018

  • 2020 · 990

    Revenue
    $10,094,863
    Expenses
    $4,758,338
    Assets (EOY)
    $34,942,139

  • 2019 · 990

    Revenue
    $9,251,111
    Expenses
    $6,494,579
    Assets (EOY)
    $29,605,614

  • 2018 · 990

    Revenue
    $7,432,855
    Expenses
    $7,031,074
    Assets (EOY)
    $25,321,596

  • 2017 · 990

    Revenue
    $11,580,429
    Expenses
    $6,352,516
    Assets (EOY)
    $26,635,079

  • 2016 · 990

    Revenue
    $9,626,921
    Expenses
    $6,822,653
    Assets (EOY)
    $22,157,166

  • 2015 · 990

    Revenue
    $9,035,805
    Expenses
    $6,218,770
    Assets (EOY)
    $23,024,399

  • 2014 · 990

    Revenue
    $5,915,910
    Expenses
    $6,419,391
    Assets (EOY)
    $18,851,910

  • 2013 · 990

    Revenue
    $7,754,730
    Expenses
    $6,469,811
    Assets (EOY)
    $22,197,479

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

  • COLUMBIA UNIVERSITY

    $181,000

    2024 RESEARCH

  • NEW YORK UNIVERSITY

    $155,000

    2024 RESEARCH

  • UCLA FOUNDATION-GEFFEN SCHOOL

    $125,000

    2022 RESEARCH

  • WASHINGTON UNIVER-ST LOUIS

    $125,000

    2022 RESEARCH

  • UCLA FOUNDATION-GEFFEN SCHOOL

    $107,544

    2023 RESEARCH

  • CHILDRENS HOSP-PHILADELPHIA

    $103,000

    2023 RESEARCH

  • NEW YORK UNIVERSITY

    $100,000

    2023 RESEARCH

  • CHILDRENS HOSP-PHILADELPHIA

    $100,000

    2022 RESEARCH

  • COLUMBIA UNIVERSITY

    $81,000

    2023 RESEARCH

  • BOSTON CHILDRENS HOSPITAL

    $75,000

    2024 RESERACH

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.