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MISSION MSA

EIN 74-2926378 CHICAGO, IL

Browse the largest nonprofits in Illinois

Revenue 2024
$634,393
Expenses 2024
$1,505,219

Program services were 71.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G80
Classification
2000
Street
540 N DEARBORN ST

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

4 other organizations in the IRS Business Master File list the same street address. matched by us

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2024

Mission

THE MULTIPLE SYSTEM ATROPHY COALITION PROVIDES TRUSTED EMOTIONAL SUPPORT, EDUCATION, RESEARCH FUNDING, AND SENSE OF COMMUNITY FOR PEOPLE LIVING WITH MULTIPLE SYSTEM ATROPHY; ENHANCING QUALITY OF LIFE AND COLLABORATIVELY BUILDING HOPE.

  • RESEARCH GRANT PROGRAM TO PINPOINT A CLEAR CAUSE OF MULTIPLE SYSTEM ATROPHY AND TO IDENTIFY A CURE OR EFFECTIVE THERAPIES THAT SLOW, HALT,OR REVERSE THE INSIDIOUS PROGRESSION OF MSA.

    Expenses $552,994 · Grants $463,708

  • PATIENT AND CAREGIVER EDUCATION AND SUPPORT, INCLUDING ANNUAL CONFERENCE, SUPPORT TELEPHONE LINE, DVDS AND PRINTED EDUCATIONAL MATERIAL.

    Expenses $259,770

  • CREATION AND PRODUCTION OF MATERIAL AND PROMOTIONAL ITEMS TO RAISE AWARENESS OF MULTIPLE SYSTEM ATROPHY IN THE MEDICAL AND LAY COMMUNITIES.

    Expenses $212,970

  • Centers of excellence

    Expenses $50,208

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Pam Bower

    CHAIR

    Total calculated
    $0
    Hours/week
    20

  • Liz Dyas

    Chair-elect

    Total calculated
    $0
    Hours/week
    10

  • Dawn Rodgers-Dexter

    Treasurer

    Total calculated
    $0
    Hours/week
    15

  • Patricia Libby Thvedt

    Secretary

    Total calculated
    $0
    Hours/week
    20

  • Kate Alivarius

    Director

    Total calculated
    $0
    Hours/week
    2

  • Adrienne Glusman Marioles

    Director

    Total calculated
    $0
    Hours/week
    2

  • Alan Smally

    Director

    Total calculated
    $0
    Hours/week
    2

  • Andre Cote Barch

    Director

    Total calculated
    $0
    Hours/week
    2

  • Gary Troutman

    Director

    Total calculated
    $0
    Hours/week
    2

  • Hasan Hasan

    Director

    Total calculated
    $0
    Hours/week
    2

  • William Billy Finnerty

    Director

    Total calculated
    $0
    Hours/week
    2

  • Prof Dr Nadia Stefanova

    Director

    Total calculated
    $0
    Hours/week
    2

  • Josh Launer

    Director

    Total calculated
    $0
    Hours/week
    2

  • Amy Wynn

    Director

    Total calculated
    $0
    Hours/week
    2

  • Joseph Lindahl

    Executive Dir.

    Total calculated
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $634,393
    Expenses
    $1,505,219
    Contributions
    $548,793
    Grants paid
    $463,708
  • 2024
    Revenue
    $1,758,498
    Expenses
    $2,596,039
    Contributions
    $1,152,738
    Grants paid
    $363,999
  • 2023
    Revenue
    $1,261,838
    Expenses
    $1,918,382
    Contributions
    $1,186,812
    Grants paid
    $486,273
  • 2022
    Revenue
    $1,466,979
    Expenses
    $1,913,230
    Contributions
    $1,394,761
    Grants paid
    $795,677

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $2,031,145
    Expenses
    $989,178
    Assets (EOY)
    $7,567,273

  • 2020 · 990

    Revenue
    $1,435,087
    Expenses
    $801,470
    Assets (EOY)
    $6,647,879

  • 2019 · 990

    Revenue
    $4,181,887
    Expenses
    $630,311
    Assets (EOY)
    $5,755,933

  • 2018 · 990

    Revenue
    $1,018,392
    Expenses
    $385,263
    Assets (EOY)
    $1,911,725

  • 2017 · 990

    Revenue
    $939,094
    Expenses
    $614,848
    Assets (EOY)
    $1,470,147

  • 2016 · 990

    Revenue
    $862,736
    Expenses
    $762,120
    Assets (EOY)
    $1,143,912

  • 2015 · 990

    Revenue
    $1,020,011
    Expenses
    $670,201
    Assets (EOY)
    $876,420

  • 2014 · 990

    Revenue
    $498,125
    Expenses
    $353,866
    Assets (EOY)
    $422,078

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2012

Tax period
1 January 2012 to 31 December 2012
Principal officer
Donald Crouse
Mailing address
8311 Brier Creek Pkwy Ste 105-434Raleigh NC 27617
Website
www.shy-drager.org

As filed, from the IRS e-Postcard file of 9 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 11 November 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.