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CURE SANFILIPPO FOUNDATION

EIN 46-4322131 COLUMBIA, SC

Browse the largest nonprofits in South Carolina

Revenue 2024
$2,781,149
Expenses 2024
$1,572,959

Program services were 80.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H80
Classification
1000
Street
6048 CEDAR RIDGE RD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

  • To accelerate scientific development and access to a cure or therapeutic options for all affected by Sanfilippo syndrome, drive advocacy to improve care and outcomes, and empower families with information, guidance, and support to navigate the journey.

    Expenses $1,259,871

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Glenn O'Neill

    Exe Dir/Pres

    Total calculated
    $161,106
    From this org
    $139,049
    From related orgs
    $0
    Other
    $22,057
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $139,049
    Bonus
    not reported
    Other
    not reported
    Deferred
    $5,516
    Nontaxable benefits
    $16,541
    Filer's total
    $161,106

  • Cara O'Neill

    Chief Science

    Total calculated
    $146,196
    From this org
    $124,759
    From related orgs
    $0
    Other
    $21,437
    Hours/week
    40

  • Katie Walton

    Vice President

    Total calculated
    $122,727
    From this org
    $118,051
    From related orgs
    $0
    Other
    $4,676
    Hours/week
    40

  • Daniel Fraley

    Board Chair

    Total calculated
    $0
    Hours/week
    2

  • Jessica Haywood

    Director

    Total calculated
    $0
    Hours/week
    2

  • Faith McAngus

    Director

    Total calculated
    $0
    Hours/week
    2

  • Shelby Leonardi

    Secretary

    Total calculated
    $0
    Hours/week
    2

  • Mike Lykes

    Director

    Total calculated
    $0
    Hours/week
    2

  • Ben Von Wong

    Director

    Total calculated
    $0
    Hours/week
    2

  • Adam Shaywitz

    Director

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $2,781,149
    Expenses
    $1,572,959
    Contributions
    $2,221,552
    Grants paid
    $643,960
  • 2023
    Revenue
    $2,106,392
    Expenses
    $1,292,685
    Contributions
    $1,746,032
    Grants paid
    $570,714
  • 2022
    Revenue
    $2,707,445
    Expenses
    $2,287,097
    Contributions
    $2,238,613
    Grants paid
    $1,633,999

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $2,229,880
    Expenses
    $2,586,338
    Assets (EOY)
    $10,337,575

  • 2020 · 990

    Revenue
    $2,083,251
    Expenses
    $3,140,290
    Assets (EOY)
    $10,163,332

  • 2020 · 990

    Revenue
    $2,083,251
    Expenses
    $3,140,290
    Assets (EOY)
    $10,163,332

  • 2019 · 990

    Revenue
    $1,345,798
    Expenses
    $1,263,898
    Assets (EOY)
    $10,749,584

  • 2018 · 990

    Revenue
    $2,058,979
    Expenses
    $1,153,410
    Assets (EOY)
    $10,817,840

  • 2017 · 990

    Revenue
    $4,433,546
    Expenses
    $599,120
    Assets (EOY)
    $11,442,880

  • 2015 · 990

    Revenue
    $438,943
    Expenses
    $339,313
    Assets (EOY)
    $3,213,561

  • 2014 · 990

    Revenue
    $2,348,262
    Expenses
    $179,860
    Assets (EOY)
    $2,208,202

  • 2013 · 990-EZ

    Revenue
    $42,449
    Expenses
    $2,949
    Assets (EOY)
    $39,500

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Disregarded entities on its 2024 return

  • Swell Therapeutics LLC

    Advance drug discovery and clinical translation · SC

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.