VIRGINIA DOWN SYNDROME ASSOCIATION

As filed

Subsection

03

Classification

1000

Street

1504 SANTA ROSA RD RM 124

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

• IN ADDITION TO VOLUNTEER SERVICES, THE ORGANIZATION IS THE GRATEFUL RECIPIENT OF FINANCIAL CONTRIBUTIONS BY 100% OF ITS BOARD AND STAFF. VDSA REACHED A NEW MILESTONE IN PROGRAMS AND INDIVIDUAL SUPPORT PROVIDED TO FAMILIES IN OUR NETWORK. WE WELCOMED OVER 90 NEW FAMILIES AND PROVIDED FAMILY CARE SUPPORT FOR OVER 300 EXISTING FAMILIES. DURING THE YEAR, THE ORGANIZATION WAS ABLE TO HOST IN-PERSON AND VIRTUAL SOCIAL AND EDUCATION PROGRAMS. WE PROUDLY SERVE OVER 850 FAMILIES ACROSS GREATER RICHMOND, CHARLOTTESVILLE, WILLIAMSBURG, CENTRAL SHENANDOAH VALLEY AND FREDERICKSBURG. FAMILY SUPPORT AND COMMUNITY OUTREACH:WE CONTINUE TO ENGAGE WITH FAMILIES AT EVERY STAGE OF LIFE BY OFFERING CONNECTION OPPORTUNITIES WITH OTHER FAMILIES AS WELL AS OFFERING RESOURCES NEEDED TO ACCESS SUPPORT IN THE COMMUNITY. OUR TEAM CONTINUED TO BUILD RELATIONSHIPS AND COLLABORATE WITH COMMUNITY PARTNERS AND RESOURCES TO HELP ADDRESS THE GROWING NEEDS OF OUR FAMILIES. OUR FIRST CALL PROGRAM WELCOMES EACH NEW FAMILY WITH A PRE-NATAL OR BIRTH DIAGNOSIS TO THE ORGANIZATION. FAMILIES ARE PROVIDED WITH A WELCOME BAG AND RESOURCES. DURING THE YEAR, WE WELCOME 223 FIRST CALL FAMILIES, ALONG WITH AN ADDITIONAL 72 NEW FAMILIES REACHING OUT TO VDSA, FOR A TOTAL OF 95 NEW FAMILIES.PROVIDED FAMILY CARE SUPPORT SERVICES TO 310 FAMILIES OF INDIVIDUALS WITH DOWN SYNDROME.PROVIDED 116 EDUCATORS, FAMILIES, AND COMMUNITY LEADERS WITH EDUCATION ABOUT BEST PRACTICES AND RECOMMENDATIONS FOR INDIVIDUALS WITH DS.FACEBOOK FOLLOWERS ON OUR MULTIPLE PAGES - OVER 983 ON SEVEN PARENT PAGES, 1 GRANDPARENT PAGE, 4900 ON THE MAIN FACEBOOK VDSA PAGE. INSTAGRAM FOLLOWERS: 1128 SOCIAL PROGRAMS:VDSA PROVIDES SOCIAL PROGRAMMING AND MEMBER ENGAGEMENT FOR ALL FAMILIES, AS WELL AS TARGETED OPPORTUNITIES FOR INDIVIDUALS WITH DOWN SYNDROME BY A VARIETY OF AGE GROUPS. OUR SOCIAL GROUPS FOSTER FRIENDSHIPS, PEER SOCIALIZATION, NETWORKING AND RESOURCING OPPORTUNITIES FOR BOTH INDIVIDUALS WITH DOWN SYNDROME AND PARENTS. MEMBERS ARE ALLOWED TO PARTICIPATE IN ANY AGE GROUP OR PROGRAM THAT MEETS THEIR NEEDS.DURING THE YEAR, VDSA HOSTED A VARIETY OF VIRTUAL AND IN-PERSON SOCIAL GROUP EVENTS FOR ALL AGES WHERE MEMBERS WERE ABLE TO PARTICIPATE IN ACTIVITIES AND SOCIALIZE. THESE ACTIVITIES INCLUDED WORLD DOWN SYNDROME CELEBRATION, DINNER OUTINGS, SPLASH PAD MEET AND GREETS, GYMNASTICS, MINIATURE GOLF, YOGA, ROCK CLIMBING, NEW PARENT BRUNCH, HIKING, FISHING, OUTDOOR ADVENTURE CLUB, SOCIAL SKILL BUILDING, JR. RANGER, AND ARTS IN THE PARK. FAMILY EVENTS INCLUDED A FAMILY PICNIC AND POOL PARTY, BASEBALL GAME OUTING, TRUNK OR TREAT, ORNAMENT DECORATING AND HOLIDAY PARTY.VDSA HAS OTHER TARGETED CAREGIVER SUPPORT GROUPS TO HELP PROVIDE MEMBERS WITH THE OPPORTUNITY TO COME TOGETHER TO SUPPORT EACH OTHER. THESE GROUPS INCLUDE:- COMPREHENSIVE CAREGIVER GROUP IS A SUPPORT GROUP DESIGNED TO BRING TOGETHER FAMILIES WHO HAVE A LOVED ONE WITH DOWN SYNDROME BUT MAY ALSO HAVE AN ADDITIONAL DIAGNOSIS OR CONDITION THAT BRINGS DIFFERENT NEEDS. THIS GROUP PROVIDES OPPORTUNITIES FOR PARENTS TO COME TOGETHER AND SUPPORT EACH OTHER, NO MATTER WHAT THAT EXTRA SOMETHING MAY BE.- MOMS AND DADS GROUPS ARE DESIGNED TO GIVE EACH PARENT AN OPPORTUNITY TO DEVELOP THEIR OWN UNIQUE NETWORK OF SUPPORT. THESE GROUPS HELP PROVIDE OPPORTUNITIES FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES. - GRANDPARENT TO GRANDPARENT IS DESIGNED TO GIVE EACH GRANDPARENT THE OPPORTUNITY TO DEVELOP THEIR OWN UNIQUE NETWORK OF SUPPORT. THIS GROUP PROVIDES OPPORTUNITIES FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES.- LATINOS DE VDSA IS A FAMILY SUPPORT GROUP TO PROVIDE OPPORTUNITIES FOR OUR SPANISH SPEAKING FAMILIES TO COME TOGETHER FOR FELLOWSHIP, RESOURCE SHARING AND RECREATIONAL ACTIVITIES. WE HOST SEVERAL FAMILY EVENTS EACH YEAR FOCUSED ON OUR SPANISH-SPEAKING FAMILIES. - 21 SHADES OF VIRGINIA IS A FAMILY SUPPORT GROUP CREATED AFTER AN EXPRESSED NEED IN SUPPORT OF FAMILIES EXPECTING OR RAISING A BLACK/INTERRACIAL CHILD WITH DOWN SYNDROME. THIS GROUP IS DESIGNED TO PROVIDE A SAFE SPACE FOR THE BLACK COMMUNITY TO NETWORK, COLLABORATE, CREATE AND SHARE INFORMATION WHILE BUILDING MEANINGFUL CONNECTIONS. EDUCATIONAL PROGRAMS:DESIGNED TO MEET THE UNIQUE NEEDS OF INDIVIDUALS WITH DOWN SYNDROME THROUGHOUT THE LIFESPAN, OUR DIFFERENT EDUCATIONAL OPPORTUNITIES HAVE HELPED PARENTS LEARN HOW TO RECEIVE THE BEST SERVICES, PROVIDE THE BEST SCHOOL AND EMPLOYMENT SUPPORT, GATHER AND SHARE RESOURCES ABOUT HOW TO BEST INCLUDE THEIR CHILD IN THE COMMUNITY. DURING THE YEAR, VDSA CONTINUED TO HOST MANY EDUCATIONAL PROGRAMS FOR OUR MEMBERS, WHICH INCLUDE: CONTINUED GROWTH OF OUR EARLY CHILDHOOD SERVICES PROVIDED BY OUR OUTREACH & INCLUSION SPECIALIST ROLE. THIS ROLE PROVIDES SUPPORT TO DAYCARES, PRESCHOOLS, EARLY CHILDHOOD, PROFESSIONALS, AND PARENTS OF CHILDREN FROM BIRTH TO 6 YEARS OLD. DISABILITY EDUCATION AND TRANSITION CONFERENCE - IN 2025, WE HELD OUR IN-PERSON CONFERENCE IN MARCH. THE 2025 EVENT HOSTED OVER 130 EDUCATORS AND PARENTS THROUGH 20 BREAKOUT SESSIONS. THE CONFERENCE ALSO PROVIDED ATTENDEES WITH 26 EXHIBITOR RESOURCES.INFANT TODDLER DEVELOPMENT SERIES - PROVIDED FAMILIES OF CHILDREN 0-18 MONTHS WITH DOWN SYNDROME A 6-WEEK CLASS SERIES OF INFORMATION & RESOURCES AND ANSWER QUESTIONS ABOUT THEIR CHILD'S DEVELOPMENT. I'M DETERMINED - IN 2025, VDSA OFFERED TWO "I'M DETERMINED" SESSIONS FOR SELF-ADVOCATES, WHICH IS A STATE-CREATED PROGRAM TO EMPOWER SELF-ADVOCATES TO UTILIZE THEIR VOICES TO STATE THEIR WANTS AND NEEDS IN SCHOOL, WORK, AND WITHIN THEIR COMMUNITIES. VDSA HELD A VIRTUAL REIMAGINING FAMILY LIFE WITH DISABILITY WORKSHOP FOR CAREGIVERS, WHICH IS A FOUR-WEEK SESSION MEANT TO REFRAME THE DISABILITY LENS AND ENCOURAGE CAREGIVERS TO FORM THEIR COMMUNITY OF CARE AND SUPPORT. HOSTED ONLINE PROGRAMS, INCLUDING MONTHLY PARENT DISCUSSIONS IN OUR SCHOOL INCLUSION SUPPORT GROUP, AN INFORMATION SESSION ON THE VA-LEND PROGRAM OFFERED THROUGH VIRGINIA COMMONWEALTH UNIVERSITY, A PUBERTY QUESTIONS AND CONCERNS WEBINAR, PROGRESS MONITORING IN IEPS, AND TRANSITION GOALS IN IEPS SUMMER EMPLOYMENT ACADEMY - HELD OUR 4-WEEK EMPLOYMENT ACADEMY WITH 6 STUDENTS AND PARTNERING WITH 6 BUSINESSES IN THE RICHMOND COMMUNITY. HELD OUR FIRST 3-WEEK EMPLOYMENT ACADEMY WITH 1 PARTICIPANT AND PARTNERING WITH 1 BUSINESS IN THE WILLIAMSBURG COMMUNITY.ADVOCACY/AWARENESS:SPREADING AWARENESS, ADVOCACY AND INCLUSION THROUGHOUT THE COMMUNITY OCCURS THROUGHOUT THE YEAR IN PARTNERSHIP WITH THE ARC OF VIRGINIA, NATIONAL DOWN SYNDROME SOCIETY, NATIONAL DOWN SYNDROME CONGRESS, GLOBAL DOWN SYNDROME FOUNDATION AND THROUGHOUT OUR SERVICE AREA ON WORLD DOWN SYNDROME DAY. SOME EXAMPLES ARE:STATE BUDGET HEARINGS ADVOCACY DAY ON CAPITOL HILL IN RVA AND WASHINGTON D.C. WORLD DOWN SYNDROME DAYSTATE SPECIAL EDUCATION ADVISORY COMMITTEE MEETINGSFUNDRAISING: OTHER COMMUNITY AND RESTAURANT FUNDRAISERS: DANCING WITH THE LOCAL STARS GALAANNUAL STEP UP FOR DOWN SYNDROME 5K & FAMILY FESTIVAL - RICHMOND ANNUAL STEP UP FOR DOWN SYNDROME EVENTS IN CHARLOTTESVILLE AND THE CENTRAL SHENANDOAH VALLEYANNUAL T21 GOLF TOURNAMENTANNUAL YEAR END APPEAL

  Expenses $607,735

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $731,677

  Expenses

  $765,359

  Contributions

  $465,066

  Grants paid

  $0

• 2023

  Revenue

  $625,016

  Expenses

  $666,023

  Contributions

  $480,260

  Grants paid

  $0

• 2022

  Revenue

  $482,090

  Expenses

  $438,608

  Contributions

  $163,412

  Grants paid

  $0

• 2022

  Revenue

  $202,469

  Expenses

  $320,266

  Contributions

  $65,110

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $389,056

  Expenses

  $331,437

  Assets (EOY)

  $450,527

• 2020 · 990

  Revenue

  $368,136

  Expenses

  $318,839

  Assets (EOY)

  $370,080

• 2019 · 990

  Revenue

  $366,890

  Expenses

  $368,686

  Assets (EOY)

  $327,941

• 2018 · 990

  Revenue

  $339,930

  Expenses

  $323,566

  Assets (EOY)

  $323,004

• 2017 · 990

  Revenue

  $348,331

  Expenses

  $364,804

  Assets (EOY)

  $303,565

• 2016 · 990

  Revenue

  $231,154

  Expenses

  $203,233

  Assets (EOY)

  $320,097

• 2015 · 990

  Revenue

  $312,890

  Expenses

  $275,124

  Assets (EOY)

  $294,505

• 2014 · 990

  Revenue

  $258,919

  Expenses

  $225,440

  Assets (EOY)

  $247,579

• 2013 · 990

  Revenue

  $216,832

  Expenses

  $214,598

  Assets (EOY)

  $212,386

• 2012 · 990

  Revenue

  — not reported

  Expenses

  $135,971

  Assets (EOY)

  $231,164

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• SENTARA HEALTH

  $45,000

  2023 · FAMILY CARE COORDINATION

• JOHN RANDOLPH FOUNDATION SUPPORT FUND INC

  $21,000

  2024 · CHARITABLE SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $20,547

  2024 · GENERAL SUPPORT

• KOVAR CORPORATION

  $20,000

  2023 · SCHOLARSHIPS

• KOVAR CORPORATION

  $20,000

  2024 · SCHOLARSHIPS

• JOHN RANDOLPH FOUNDATION SUPPORT FUND INC

  $20,000

  2025 · CHARITABLE SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $16,967

  2023 · GENERAL SUPPORT

• AMERICAN ONLINE GIVING FOUNDATION INC

  $16,739

  2022 · GENERAL SUPPORT

• AMERICAN ENDOWMENT FOUNDATION

  $10,000

  2023 · MENTAL HEALTH

• PAYPAL CHARITABLE GIVING FUND

  $8,828

  2024 · GENERAL SUPPORT

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files