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ALS THERAPY DEVELOPMENT FOUNDATION INC

EIN 04-3462719 WATERTOWN, MA

Revenue 2025
$16,066,902
Expenses 2025
$13,127,937

Program services were 90.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H80
Classification
2000
Street
480 ARSENAL ST STE201

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

OUR MISSION IS TO IDENTIFY VIABLE TARGETS FOR THERAPY DEVELOPMENT AND EXPEDITIOUSLY MANAGE THE CREATION OF THOSE TREATMENTS THAT WILL ARREST THE SUFFERING OF TODAY'S ALS PATIENTS.

Activities or mission (Part I)

WE ARE COMMITTED TO CREATING AND LEADING A TRANSPARENT COLLABORATIVE RESEARCH PROCESS THAT INVOLVES ALS PATIENTS TODAY AND HONORS THOSE WHOSE JOURNEY WITH THIS DISEASE HAS ENDED. WE ARE GUIDED BY PASSION, LOVE AND THE SPIRIT OF ENTREPRENEURSHIP UPON WHICH WE WERE FOUNDED.

  • ALS TDI COMBINES THE PASSION AND DEDICATION OF A NONPROFIT ORGANIZATION WITH THE ENTREPRENEURIAL AND SCIENTIFIC SPIRIT OF A BIOTECHNOLOGY COMPANY. OUR LABORATORY IS THE LEADING DRUG DISCOVERY PROGRAM FOR ALS, AND IT BRIDGES A CRITICAL RESEARCH GAP. OUR IN-HOUSE EXPERTISE TRANSLATES RESEARCH INTO POTENTIAL DRUG CANDIDATES BY SCREENING DRUGS IN THE SOD1 MOUSE MODEL OF ALS. OUR SCIENTIFIC COLLABORATIONS ARE DESIGNED TO BRING THE MOST PROMISING LEADS CLOSER TO PATIENT USE. WE SHARE EMERGING KNOWLEDGE ON THE DISEASE WITH PATIENTS, PHYSICIANS, AND RESEARCHERS AS QUICKLY AND COMPREHENSIVELY AS POSSIBLE. EVERY DECISION IS MADE IN THE INTEREST OF FINDING EFFECTIVE TREATMENTS FOR PEOPLE LIVING WITH ALS. OUR UNIQUE APPROACH ACCELERATES DRUG DEVELOPMENT FOR ALS.

    Expenses $11,887,087 · Revenue $623,964

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • FERNANDO VIEIRA

    CEO AND CSO

    Total calculated
    $472,042
    From this org
    $436,433
    From related orgs
    $0
    Other
    $35,609
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $376,433
    Bonus
    $60,000
    Other
    $0
    Deferred
    $13,516
    Nontaxable benefits
    $22,093
    Filer's total
    $472,042

  • LYNNE NIETO

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2.5

  • STEVEN PERRIN PHD

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2.5

  • THEODORE REICH JD CPA

    TREASURER AND BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • DR STANLEY H APPEL MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • ALEXANDER CAPPELLO

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • DR SPIROS JAMAS SCD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • JAMES ALLEN HEYWOOD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • JOHN B HEYWOOD PHD SCD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • ROB RODIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • PAUL SALLABERRY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • ROBERT SEPUCHA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • JENNY DWYER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • MIKE SMITH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • JULIE SWAN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • KENT JACKSON BRANSFORD MD

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • TOM ENGELLENNER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • JAY AGARWAL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2.5

  • ALAN GILL

    VP OF RESEARCH

    Total calculated
    $207,485
    From this org
    $194,572
    From related orgs
    $0
    Other
    $12,913
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $194,572
    Bonus
    $0
    Other
    $0
    Deferred
    $8,036
    Nontaxable benefits
    $4,877
    Filer's total
    $207,485

  • CAROL HAMILTON

    SENIOR VP OF DEVELOPMENT

    Total calculated
    $186,925
    From this org
    $177,160
    From related orgs
    $0
    Other
    $9,765
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $177,160
    Bonus
    $0
    Other
    $0
    Deferred
    $7,167
    Nontaxable benefits
    $2,598
    Filer's total
    $186,925

  • KYLE R DENTON

    SENIOR DIRECTOR, CELL BIOLOGY

    Total calculated
    $182,454
    From this org
    $173,063
    From related orgs
    $0
    Other
    $9,391
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $173,063
    Bonus
    $0
    Other
    $0
    Deferred
    $6,967
    Nontaxable benefits
    $2,424
    Filer's total
    $182,454

  • THEO HATZIPETROS

    SENIOR DIRECTOR OF PHARMACOLOGY

    Total calculated
    $174,727
    From this org
    $161,717
    From related orgs
    $0
    Other
    $13,010
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $161,717
    Bonus
    $0
    Other
    $0
    Deferred
    $6,698
    Nontaxable benefits
    $6,312
    Filer's total
    $174,727

  • DANIELLE BOYCE

    PRINC. INVEST., REAL WORLD EVIDENCE

    Total calculated
    $144,323
    From this org
    $139,506
    From related orgs
    $0
    Other
    $4,817
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $16,066,902
    Expenses
    $13,127,937
    Contributions
    $14,817,715
    Grants paid
    $0
  • 2024
    Revenue
    $13,406,171
    Expenses
    $12,879,065
    Contributions
    $11,328,179
    Grants paid
    $0
  • 2023
    Revenue
    $11,558,482
    Expenses
    $11,160,593
    Contributions
    $10,029,574
    Grants paid
    $0
  • 2022
    Revenue
    $11,364,169
    Expenses
    $9,829,539
    Contributions
    $9,817,402
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $12,370,651
    Expenses
    $8,987,486
    Assets (EOY)
    $19,047,011

  • 2020 · 990

    Revenue
    $10,248,613
    Expenses
    $9,529,307
    Assets (EOY)
    $29,996,989

  • 2019 · 990

    Revenue
    $13,129,736
    Expenses
    $11,458,890
    Assets (EOY)
    $17,469,547

  • 2018 · 990

    Revenue
    $15,038,596
    Expenses
    $12,329,559
    Assets (EOY)
    $15,652,260

  • 2017 · 990

    Revenue
    $17,248,520
    Expenses
    $12,533,202
    Assets (EOY)
    $13,595,583

  • 2016 · 990

    Revenue
    $11,833,820
    Expenses
    $11,268,335
    Assets (EOY)
    $9,084,217

  • 2015 · 990

    Revenue
    $9,400,531
    Expenses
    $12,678,315
    Assets (EOY)
    $8,357,864

  • 2014 · 990

    Revenue
    $14,319,785
    Expenses
    $11,489,410
    Assets (EOY)
    $11,349,070

  • 2013 · 990

    Revenue
    $8,800,851
    Expenses
    $9,532,874
    Assets (EOY)
    $6,746,369

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $9,706,227
    Assets (EOY)
    $7,256,370

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.