- Revenue 2024
- $25,210,396
- Expenses 2024
- $23,095,330
Program services were 81.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- U500
- Classification
- 8000
- Street
- 403 HADDON AVE
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
DR JEAN-PIERRE ISSA
PRESIDENT/CEO
- Total calculated
- $792,881
- From this org
- $744,131
- From related orgs
- $0
- Other
- $48,750
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $624,455
- Bonus
- $114,508
- Other
- $5,168
- Deferred
- $24,150
- Nontaxable benefits
- $24,600
- Filer's total
- $792,881
-
DENISE BUSCHER
CFO
- Total calculated
- $243,249
- From this org
- $226,233
- From related orgs
- $0
- Other
- $17,016
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $214,290
- Bonus
- $10,000
- Other
- $1,943
- Deferred
- $14,921
- Nontaxable benefits
- $2,095
- Filer's total
- $243,249
-
LEO JOSE
CIO & VP, INNOVATION
- Total calculated
- $259,872
- From this org
- $239,419
- From related orgs
- $0
- Other
- $20,453
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $228,699
- Bonus
- $10,000
- Other
- $720
- Deferred
- $16,153
- Nontaxable benefits
- $4,300
- Filer's total
- $259,872
-
ROBERT KIEP III
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
MARC MASER ESQ
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
JOHN APATHY MBA
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
ARNAUD BASTIEN MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
LOU BEZICH MPP
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
PETER DRISCOLL ESQ
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
CHRISTOPHER GIBSON ESQ
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
FRANK GIORDANO
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
GENEROSA GRANA MD FACP
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
MATTHEW HEWITT PHD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
JOHN PICCONE
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
ANNETTE REBOLI
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
MIRUNA SASU PHD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
ROLAND SCHWARTING MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
KENNETH SOMBERG MD MBA
TRUSTEE
- Total calculated
- $0
- Hours/week
- 1
-
ANTONIO TILLIS PHD
TRUSTEE (UNTIL 01/25)
- Total calculated
- $0
- Hours/week
- 1
-
EDWARD VINER MD
TRUSTEE (UNTIL 12/24)
- Total calculated
- $0
- Hours/week
- 1
-
NAHID TURAN
CHIEF BIOBANKING OFFICER
- Total calculated
- $253,541
- From this org
- $213,968
- From related orgs
- $0
- Other
- $39,573
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $201,289
- Bonus
- $10,000
- Other
- $2,679
- Deferred
- $14,947
- Nontaxable benefits
- $24,626
- Filer's total
- $253,541
-
JAROLAV JELINEK
CHIEF SCIENTIFIC OFFICER
- Total calculated
- $241,670
- From this org
- $218,226
- From related orgs
- $0
- Other
- $23,444
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $205,049
- Bonus
- $10,059
- Other
- $3,118
- Deferred
- $14,497
- Nontaxable benefits
- $8,947
- Filer's total
- $241,670
-
SHUMEI SONG
PROFESSOR
- Total calculated
- $235,615
- From this org
- $219,045
- From related orgs
- $0
- Other
- $16,570
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $216,031
- Bonus
- $0
- Other
- $3,014
- Deferred
- $15,070
- Nontaxable benefits
- $1,500
- Filer's total
- $235,615
-
NORA ENGEL
ASSOCIATE PROFESSOR
- Total calculated
- $176,807
- From this org
- $140,984
- From related orgs
- $0
- Other
- $35,823
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $134,391
- Bonus
- $1,000
- Other
- $5,593
- Deferred
- $10,303
- Nontaxable benefits
- $25,520
- Filer's total
- $176,807
-
RYAN CUNNINGHAM
DIRECTOR, FINANCE
- Total calculated
- $192,085
- From this org
- $165,528
- From related orgs
- $0
- Other
- $26,557
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $158,261
- Bonus
- $5,000
- Other
- $2,267
- Deferred
- $11,488
- Nontaxable benefits
- $15,069
- Filer's total
- $192,085
The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $25,210,396
- Expenses
- $23,095,330
- Contributions
- $1,693,929
- Grants paid
- $0
-
2023
- Revenue
- $32,105,229
- Expenses
- $24,194,566
- Contributions
- $8,141,077
- Grants paid
- $32,900
-
2022
- Revenue
- $23,412,391
- Expenses
- $22,296,737
- Contributions
- $2,510,168
- Grants paid
- $0
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
2024 GENERAL SUPPORT
-
2023 GENERAL SUPPORT
-
$300,000
2024 Extramural Research Grant
-
2023 PILOT AWARD
-
2022 Research subcontract
-
2023 Research subcontract
-
DRAVET SYNDROME FOUNDATION INC
$12,617
2024 This project aims to establish a biobank of five unique lines of commercially-available induced pluripotent stem cells (iPSCs) from patient blood samples. The cellular reprogramming will be conducted by the Coriell Institute for Medical Research and samples will be housed and distributed through an additional partnership with the Orphan Disease Center at The University of Pennsylvania. Cell lines will be available to researchers in academic and for-profit research settings at a low cost, set to cover the long-term maintenance of the biobank effort.
-
2022 Medical Research - Biobank Development
-
2022 RESEARCH
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.