- Revenue 2024
- $1,668,508
- Expenses 2024
- $1,474,184
Program services were 74.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1000
- Street
- 12700 W BLUEMOUND RD STE 130
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
DAVE AMOROSO
PRESIDENT
- Total calculated
- $0
- Hours/week
- 0.3
-
JOSHUA WELSH
PRESIDENT (THRU 10/25)
- Total calculated
- $0
- Hours/week
- 0.3
-
BRUCE CARTER
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 0.3
-
DUSTIN VAN PEURSEM
TREASURER
- Total calculated
- $0
- Hours/week
- 0.3
-
DAVID PETERSON
SECRETARY
- Total calculated
- $0
- Hours/week
- 0.3
-
MICHELLE BORRESON
DIRECTOR (THRU 10/25)
- Total calculated
- $0
- Hours/week
- 0.3
-
TRACIE FECHTER
DIRECTOR (THRU 10/25)
- Total calculated
- $0
- Hours/week
- 0.3
-
BOB MONTGOMERY
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.3
-
BEVERLY PETERSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.3
-
LIZ ROPELLA
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.3
-
DANIELLE LEITNER BAXTER
EXECUTIVE DIRECTOR
- Total calculated
- $168,881
- From this org
- $162,092
- From related orgs
- $0
- Other
- $6,789
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $158,092
- Bonus
- $4,000
- Other
- $0
- Deferred
- $4,863
- Nontaxable benefits
- $1,926
- Filer's total
- $168,881
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,668,508
- Expenses
- $1,474,184
- Contributions
- $1,417,707
- Grants paid
- $607,179
-
2023
- Revenue
- $1,475,801
- Expenses
- $1,545,444
- Contributions
- $1,425,541
- Grants paid
- $665,656
-
2022
- Revenue
- $1,557,533
- Expenses
- $1,532,624
- Contributions
- $1,497,715
- Grants paid
- $668,242
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2023 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2022 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
$77,231
2022 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
RUSH UNIVERSITY MEDICAL CENTER
$76,205
2022 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
$71,720
2023 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
$68,895
2022 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
$68,476
2024 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
$65,084
2022 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
2023 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
2022 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
RUSH UNIVERSITY MEDICAL CENTER
$58,580
2024 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
-
$56,415
2023 TO PROVIDE OUTREACH AND CARE THROUGH THE HEMOPHILIA TREATMENT CENTER NETWORK AND CONDUCT SURVEILLANCE AND RESEARCH TO PREVENT COMPLICATIONS.
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
2024 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
2023 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
$129,750
2024 PATIENT FINANCIAL ASSISTANCE
-
$114,000
2023 PATIENT FINANCIAL ASSISTANCE
-
$114,000
2022 PATIENT FINANCIAL ASSISTANCE
-
HEMOPHILIA ALLIANCE FOUNDATION
$18,000
2022 PROMOTE HEMOPHILIA
-
HEMOPHILIA ALLIANCE FOUNDATION
$18,000
2023 PROMOTE HEMOPHILIA
-
HEMOPHILIA ALLIANCE FOUNDATION
$18,000
2024 PROMOTE HEMOPHILIA
-
2024 STATE BASED ADVOCACY COALITION & UNITE WALK GRANTS
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.