DOWN SYNDROME AFFILIATES IN ACTION

As filed

Subsection

03

Street

PO BOX 7192

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

• JULIE TORZEWSKI

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  5

• MAKINI ANWISYE

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• HEATHER BARNES

  Treasurer

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• CHRISTINA REAVES

  President

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• TERESA DEVINCENZI

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• HEIDI HAINES

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• CANDICE WHITING

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• KATIE ZURKUHLEN

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• ALECIA TALBOT

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• SHERYL ARNO

  Vice President

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• DEANN HUNT

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• MEREDITH PETERSON

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

• KIM ROCHA

  Director

  Total calculated

  $0

  Compensation

  $0

  Benefit plans

  —not reported

  Expense account

  —not reported

  Hours/week

  2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

• 2025

  Revenue

  $74,917

  Expenses

  $116,184

  Contributions

  $27,489

  Grants paid

  — not reported

• 2024

  Revenue

  $138,020

  Expenses

  $156,996

  Contributions

  $504

  Grants paid

  — not reported

• 2023

  Revenue

  $156,428

  Expenses

  $189,000

  Contributions

  $1,914

  Grants paid

  — not reported

• 2022

  Revenue

  $139,570

  Expenses

  $158,283

  Contributions

  $46,846

  Grants paid

  $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2022 · 990-T

  Revenue

  — not reported

  Expenses

  — not reported

  Assets (EOY)

  — not reported

Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

• NATIONAL DOWN SYNDROME CONGRESS

  $10,000

  2023 · FINANCIAL ASSISTANCE

Other IRS files