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HEMOPHILIA OF NORTH CAROLINA

EIN 56-1273974 CARY, NC

Revenue 2024
$751,017
Expenses 2024
$594,690

Program services were 89.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
P80
Classification
1000
Street
130 IOWA LN STE 203

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

DEDICATED TO IMPROVING THE QUALITY OF LIFE OF PERSONS AFFECTED BY BLEEDING DISORDERS THROUGH ADVOCACY, EDUCATION, PROMOTION OF RESEARCH AND DELIVERY OF SUPPORTIVE PROGRAMS AND SERVICES.

  • BLEEDING DISORDERS FOUNDATION OF NC PROVIDES EDUCATION TO HELP PEOPLE WITH BLEEDING DISORDERS AVOID DEBILITATING COMPLICATIONS AND LIVE LONGER, MORE ACTIVE AND HEALTHIER LIVES; CONDUCTS ADVOCACY INITIATIVES AT LOCAL AND NATIONAL LEVELS TO HELP ENSURE ACCESS TO MEDICAL CARE AND EQUITABLE INSURANCE REIMBURSEMENT FOR ALL; BUILDS AWARENESS OF BLEEDNG DISORDERS AND PROMOTES EARLY DIAGNOSIS; ADVOCATES AND CREATES AWARENESS FOR BLOOD SAFETY AND HELPS TO FUND AND PROMOTE RESEARCH TOWARD BETTER TREATMENTS AND CURES.

    Expenses $472,724 · Revenue $496,805

  • BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES A QUARTERLY NEWSLETTER, THE CONCENTRATE, THAT IS DISTRIBUTED TO MEMBERS, THE MEDICAL COMMUNITY AND OTHER INTERESTED PARTIES. INFORMATION IN THE NEWSLETTER CONTAINS ARTICLES ON RELEVANT TOPICS TO THE BLEEDING DISORDERS COMMUNITY, UPDATES ON PROGRAMS AND SERVICES AND HIGHLIGHTS OF COMMUNITY MEMBERS. BASED ON INFORMATION RECEIVED FROM THE MEMBERSHIP, THE NEWSLETTER IS THEIR PRIMARY SOURCE OF INFORMATION. IN ADDITION TO THE NEWSLETTER, BLEEDING DISORDERS FOUNDATION OF NC PUBLISHES FLYERS WITH INFORMATION ABOUT UPCOMING PROGRAMS AND SERVICES.

    Expenses $9,772

  • THE BLEEDING DISORDERS FOUNDATION OF NC FINANCIAL ASSISTANCE PROGRAM IS PART OF THE ORGANIZATION'S CONTINUING EFFORT TO IMPROVE THE QUALITY OF LIFE OF INDIVIDUALS AND FAMILIES AFFECTED BY BLEEDING DISORDERS. THIS PROGRAM PROVIDES FUNDS TO ELIGIBLE INDIVIDUALS AND FAMILIES WHO NEED ASSISTANCE WITH EXPENSES INCURRED IN THE CARE, TREATMENT OR PREVENTION OF A BLEEDING DISORDER, AND/OR BASIC LIVING EXPENSES.

    Expenses $51,296 · Grants $51,296

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • STEVEN HUMES

    VP

    Total calculated
    $0
    Hours/week
    2

  • ANN SKINNER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KATHY REGISTER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • KARYN DAVIS

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • APRIL EVANS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JOSEPH TINDALL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • CHERI CLARK

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DANIEL GOUGHERTY

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • ERIN OTEY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • GUILLERMO SANCHEZ

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • ANITA SMITH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • CHARLENE COWELL

    EXECUTIVE DIRECTOR

    Total calculated
    $94,963
    From this org
    $94,963
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $751,017
    Expenses
    $594,690
    Contributions
    $593,937
    Grants paid
    $51,296
  • 2023
    Revenue
    $773,706
    Expenses
    $639,593
    Contributions
    $620,713
    Grants paid
    $56,157
  • 2022
    Revenue
    $644,892
    Expenses
    $580,969
    Contributions
    $467,798
    Grants paid
    $65,935

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $616,707
    Expenses
    $533,555
    Assets (EOY)
    $1,009,537

  • 2020 · 990

    Revenue
    $615,076
    Expenses
    $353,545
    Assets (EOY)
    $933,052

  • 2019 · 990

    Revenue
    $550,765
    Expenses
    $414,550
    Assets (EOY)
    $704,599

  • 2019 · 990

    Revenue
    $550,765
    Expenses
    $414,550
    Assets (EOY)
    $704,599

  • 2018 · 990

    Revenue
    $539,010
    Expenses
    $463,111
    Assets (EOY)
    $533,923

  • 2016 · 990

    Revenue
    $466,657
    Expenses
    $383,838
    Assets (EOY)
    $312,565

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 29 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.