- Revenue 2025
- $1,068,787
- Expenses 2025
- $856,659
Program services were 79.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H80
- Classification
- 1000
- Street
- PO BOX 2371
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
JOEL WOOD
PRESIDENT
- Total calculated
- $0
- Hours/week
- 10
-
SCOTT SINDER
SECRETARY
- Total calculated
- $0
- Hours/week
- 5
-
JAMES WOOD
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
DAN CARSON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVE HEIL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BRAD TODD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BILL QUIRK
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $1,068,787
- Expenses
- $856,659
- Contributions
- $913,403
- Grants paid
- $602,274
-
2024
- Revenue
- $1,102,169
- Expenses
- $827,891
- Contributions
- $772,781
- Grants paid
- $593,952
-
2023
- Revenue
- $826,783
- Expenses
- $639,710
- Contributions
- $834,048
- Grants paid
- $407,352
-
2022
- Revenue
- $777,073
- Expenses
- $764,044
- Contributions
- $805,428
- Grants paid
- $519,194
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
CHILDREN'S NATIONAL MEDICAL CENTER
$204,849
2022 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
2024 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
2023 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
CHILDREN'S NATIONAL MEDICAL CENTER
$125,000
2023 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
$101,000
2025 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
CHILDREN'S NATIONAL HEART CENTER
$100,000
2025 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
2022 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
$86,860
2025 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
VIRGINIA COMMONWEALTH UNIVERSITY
$75,000
2024 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
-
2023 TO FUND RESEARCH FOR TREATMENT OF DUCHENNE MUSCULAR DYSTROPHY
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2024 EPICUREAN SPONSORSHIP
-
2023 EPICUREAN SPONSORSHIP
-
2022 CHARITABLE DONATION
-
$25,000
2024 24TH ANNUAL DINING AWAY DUCHENNE EVENT
-
2022 PROGRAM SUPPORT
-
$10,000
2024 DIRECT GRANT SUPPORT
-
2024 HEALTH
-
2023 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
-
2023 GENERAL SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2025, the newest we have parsed for this organization.