THE PARENT PROJECT FOR MUSCULAR DYSTROPHY RESEARCH INC
EIN 31-1405490 WASHINGTON, DC
- Revenue 2025
- $12,049,446
- Expenses 2025
- $11,895,953
Program services were 87.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- P20Z
- Classification
- 1000
- Street
- 1012 14TH ST NW STE 500
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
JOHN KILLIAN
CHAIR
- Total calculated
- $0
- Hours/week
- 8
-
ALPA KHUSHALANI
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 6
-
DAWN REZKALLA
TREASURER
- Total calculated
- $0
- Hours/week
- 6
-
DEANNE FRIAR
SECRETARY
- Total calculated
- $0
- Hours/week
- 6
-
COLIN RENSCH
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
MICHELLE FURLONG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
SCOTT PERRIN PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
MARU CHAPUR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
SUSAN HUANG
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
SUSAN APKON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
TIM CRIPE MD PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
LINDA CRIPE MD
EMERITUS
- Total calculated
- $0
- Hours/week
- 2
-
DAVID HOFSTEIN JD
EMERITUS
- Total calculated
- $0
- Hours/week
- 2
-
PATRICIA A FURLONG
PRESIDENT AND CEO
- Total calculated
- $405,865
- From this org
- $391,500
- From related orgs
- $0
- Other
- $14,365
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $362,500
- Bonus
- $29,000
- Other
- $0
- Deferred
- $14,333
- Nontaxable benefits
- $32
- Filer's total
- $405,865
-
KAYLAN MOITOSO
CHIEF BUSINESS OFFICER
- Total calculated
- $327,436
- From this org
- $316,440
- From related orgs
- $0
- Other
- $10,996
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $293,000
- Bonus
- $23,440
- Other
- $0
- Deferred
- $10,867
- Nontaxable benefits
- $129
- Filer's total
- $327,436
-
MEGAN FREED
CHIEF OF STRATEGIC INITIATIVES
- Total calculated
- $227,604
- From this org
- $209,234
- From related orgs
- $0
- Other
- $18,370
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $205,134
- Bonus
- $4,100
- Other
- $0
- Deferred
- $6,927
- Nontaxable benefits
- $11,443
- Filer's total
- $227,604
-
ANN MARTIN
VICE PRESIDENT, COMMUNITY RESEARCH & GENETIC SVCS.
- Total calculated
- $208,715
- From this org
- $186,369
- From related orgs
- $0
- Other
- $22,346
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $172,569
- Bonus
- $13,800
- Other
- $0
- Deferred
- $9,380
- Nontaxable benefits
- $12,966
- Filer's total
- $208,715
-
RACHEL SCHRADER
VICE PRESIDENT, CLINICAL CARE & EDUCATION
- Total calculated
- $186,658
- From this org
- $177,589
- From related orgs
- $0
- Other
- $9,069
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $167,539
- Bonus
- $10,050
- Other
- $0
- Deferred
- $8,940
- Nontaxable benefits
- $129
- Filer's total
- $186,658
-
KIMBERLY GALBERAITH
PRINCIPAL CREATIVE DIRECTOR
- Total calculated
- $213,212
- From this org
- $190,487
- From related orgs
- $0
- Other
- $22,725
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $179,714
- Bonus
- $10,773
- Other
- $0
- Deferred
- $8,965
- Nontaxable benefits
- $13,760
- Filer's total
- $213,212
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $12,049,446
- Expenses
- $11,895,953
- Contributions
- $8,061,163
- Grants paid
- $1,500,817
-
2024
- Revenue
- $14,311,761
- Expenses
- $12,881,402
- Contributions
- $10,008,956
- Grants paid
- $2,650,583
-
2023
- Revenue
- $13,881,085
- Expenses
- $12,112,486
- Contributions
- $12,660,929
- Grants paid
- $2,560,127
-
2022
- Revenue
- $10,753,014
- Expenses
- $11,037,641
- Contributions
- $9,959,415
- Grants paid
- $2,629,658
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
CINCINNATI CHILDREN'S HOSPITAL MC
$641,008
2022 RESEARCH- ACTION NETWORK GRANT & CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS
-
CINCINNATI CHILDREN'S HOSPITAL MC
$617,000
2024 RESEARCH- ACTION NETWORK GRANT
-
CINCINNATI CHILDREN'S HOSPITAL
$588,811
2023 RESEARCH - ACTION NETWORK GRANT, RESEARCH- SIBLING CASE REPORTS, CARE PROGRAM- AWARD FOR MAINTAINING PPMD CERTIFIED DUCHENNE CARE CENTER STANDARDS.
-
UNIVERSITY OF FLORIDA FOUNDATION
$436,910
2022 RESEARCH- BIOBANK, CARDIAC GENE THERAPY DEVELOPMENT SWEENEY, MEETING SUPPORT AND PRECLINICAL THERAPEUTIC ASSESSMENT LAB
-
2023 RESEARCH- DMD MOLECULAR AND CELLULAR DYNAMICS AT SINGLE NUCLEI RESOLUTION & WELLSTONE SUPPLEMENT
-
UNIVERSITY OF FLORIDA FOUNDATION
$305,346
2023 RESEARCH- PRECLINICAL THERAPEUTIC ASSESSMENT LAB AND UF BIOREPOSITORY SUPPORT- LILLY, NCH, CATABASIS SAMPLES STORAGE
-
UNIVERSITY OF FLORIDA FOUNDATION
$300,000
2025 RESEARCH- PRECLINICAL THERAPEUTIC ASSESSMENT LAB
-
UNIVERSITY OF FLORIDA FOUNDATION
$300,000
2024 RESEARCH - PRECLINICAL THERAPEUTIC ASSESSMENT LAB
-
$275,765
2023 RESEARCH- WELLSTONE SUPPLEMENT AND CLINICAL STUDY OF ANTI-AAV ANTIBODY DEPLETION
-
$271,241
2022 RESEARCH- PROTEIN MAPPING PROJECT, TRAVEL SUPPORT FOR NATURAL HISTORY STUDY AND WELLSTONE SUPPLEMENT
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
DONOR ADVISED CHARITABLE GIVING
$1,750,125
2024 HUMAN SERVICES
-
DONOR ADVISED CHARITABLE GIVING
$1,090,000
2022 HUMAN SERVICES
-
2022 GENERAL SUPPORT
-
DONOR ADVISED CHARITABLE GIVING
$574,300
2023 HUMAN SERVICES
-
2024 GENERAL SUPPORT
-
2024 For grant recipient's exempt purposes
-
2022 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
2023 GENERAL SUPPORT
-
$101,000
2022 MEDICAL RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.