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ARIZONA HEMOPHILIA ASSOCIATION INC

EIN 86-0209257 PHOENIX, AZ

Revenue 2024
$1,376,208
Expenses 2024
$1,417,379

Program services were 82.3% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G21Z
Classification
1000
Street
826 N 5TH AVE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

THE AHA IS DEDICATED TO ENHANCING THE QUALITY OF LIFE FOR THOSE LIVING WITH CHRONIC BLEEDING DISORDERS WHILE ADVOCATING FOR A CURE.

  • COMMUNITY EDUCATION - PROMOTE COMMUNITY AWARENESS THROUGH VARIOUS CONFERENCES AND OTHER MEDIA: 1. ANNUAL STATEWIDE EDUCATIONAL SYMPOSIUM - BRINGS TOGETHER THOSE WITH BLEEDING DISORDERS AND THEIR FAMILIES FROM ACROSS THE STATE TO PROVIDE EDUCATION TO HELP THEM BETTER MANAGE THIS CHRONIC CONDITION. 2. CONDUCTED AN ADVOCACY SUMMIT CONFERENCE TO PROMOTE AWARENESS WITHIN THE BLEEDING DISORDER COMMUNITY AND THE GENERAL PUBLIC. 3. CONDUCTED AN HISPANIC HERITAGE DAY WITH THE HISPANIC POPULATION AFFECTED BY BLEEDING DISORDERS TO EDUCATE AND SUPPORT THEIR UNIQUE STRUGGLES IN THEIR NATIVE LANGUAGE. 4. CONDUCTED TWO (NOW) CONFERENCES (NATIONAL EDUCATIONAL CONFERENCE FOR INDIVIDUALS AND FAMILIES WHO ARE LIVING WITH VONWILLEBRANDS).

    Expenses $751,661 · Revenue $3,888

  • COMMUNITY SUPPORT PROGRAMS - PROVIDE EDUCATION AND SUPPORT GROUP MEETINGS INCLUDING: 1. QUARTERLY MEETINGS FOR THE COMMUNITY AS A WHOLE THAT INCLUDE EDUCATION, PHARMACEUTICAL INFORMATION, AND TIME FOR INTERACTION. 2. EDUCATIONAL MEETINGS THAT INCLUDED: A. LEARNING TO DISCLOSE YOUR BLEEDING DISORDER IN A SAFE WAY. B. UNDERSTANDING INSURANCE AND OPTIONS AVAILABLE TO OUR COMMUNITY. C. HOW TO INTERACT WITH LEGISLATORS TO PROMOTE INSURANCE REFORM. D. NUTRITION AND EXERCISE - HOW TO IMPROVE QUALITY OF LIFE. E. MENTAL HEALTH - HOW TO IMPROVE QUALITY OF LIFE. F. EDUCATIONAL MEETINGS FOR SPANISH-SPEAKING COMMUNITY. G. ON-GOING PROGRAM FOR AT-RISK YOUTH. 3. YOUTH CAMPS:

    Expenses $299,494

  • FAMILY ASSISTANCE - PROVIDE EMERGENCY AND TEMPORARY FINANCIAL ASSISTANCE TO HEMOPHILIA PATIENTS AND THEIR FAMILIES. LIFELINE- PROVIDES ASSISTANCE FOR MEDICAL BILLS, INSURANCE PREMIUMS AND COBRA PAYMENT ASSISTANCE FOR THE COMMUNITY.

    Expenses $111,073 · Grants $14,395

  • HEALTH CENTER - ONGOING COSTS RELATED TO THE MANAGMENT OF MEDICAL RECORDS AND PATIENT ACCOUNTS. THE PROGRAM WAS DISCONTINUED IN SEPTEMBER 2021 AND THE BUIDLING WAS SUBSEQUENTLY SOLD.

    Expenses $4,742

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • LEIGH GOLDSTEIN

    EXECUTIVE DIRECTOR

    Total calculated
    $132,768
    From this org
    $132,235
    From related orgs
    $0
    Other
    $533
    Hours/week
    40

  • SEAN OKEEFE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JAIME NEILSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • GRADY BRENNAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TIM TSAI

    DIRECOTR

    Total calculated
    $0
    Hours/week
    2

  • RICK HALL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • HEATHER POORE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • CHRISTINE POND

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ELLEN OWENS-KARCSAY

    CHAIR

    Total calculated
    $0
    Hours/week
    2

  • RACHEL VERDUGO

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • EVAN RAHAEUSER

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • SONIA VOHNOUT

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,376,208
    Expenses
    $1,417,379
    Contributions
    $1,310,105
    Grants paid
    $14,395
  • 2023
    Revenue
    $1,284,868
    Expenses
    $1,412,144
    Contributions
    $1,216,165
    Grants paid
    $19,510
  • 2022
    Revenue
    $1,594,171
    Expenses
    $1,586,449
    Contributions
    $1,218,753
    Grants paid
    $22,423

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,135,762
    Expenses
    $995,371
    Assets (EOY)
    $1,897,473

  • 2020 · 990

    Revenue
    $1,644,664
    Expenses
    $1,279,766
    Assets (EOY)
    $2,376,389

  • 2018 · 990

    Revenue
    $2,335,637
    Expenses
    $2,280,326
    Assets (EOY)
    $1,703,702

  • 2017 · 990

    Revenue
    $2,756,798
    Expenses
    $2,461,987
    Assets (EOY)
    $1,753,319

  • 2016 · 990

    Revenue
    $1,837,357
    Expenses
    $2,299,635
    Assets (EOY)
    $1,329,870

  • 2015 · 990

    Revenue
    $1,824,152
    Expenses
    $2,128,148
    Assets (EOY)
    $1,472,300

  • 2014 · 990

    Revenue
    $1,827,712
    Expenses
    $1,646,010
    Assets (EOY)
    $1,432,741

  • 2013 · 990

    Revenue
    $1,490,177
    Expenses
    $1,710,416
    Assets (EOY)
    $1,310,177

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $1,462,502
    Assets (EOY)
    $1,291,573

  • 2011 · 990

    Revenue
    not reported
    Expenses
    $1,250,222
    Assets (EOY)
    $1,157,176

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Disregarded entities on its 2024 return

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.