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SIEGEL RARE NEUROIMMUNE ASSOCIATION

EIN 91-1780467 POWELL, OH

Revenue 2024
$1,493,618
Expenses 2024
$1,614,877

Program services were 85.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G99
Classification
2000
Street
1787 SUTTER PKWY

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Chitra Krishnan

    Executive Director

    Total calculated
    $143,388
    From this org
    $136,560
    From related orgs
    $0
    Other
    $6,828
    Hours/week
    40

  • Gabrielle deFiebre

    Director of Research and Programs

    Total calculated
    $116,865
    From this org
    $111,300
    From related orgs
    $0
    Other
    $5,565
    Hours/week
    40

  • Lana Harder

    Director

    Total calculated
    $0
    Hours/week
    5

  • Sanford J Siegel

    President

    Total calculated
    $0
    Hours/week
    20

  • Deborah Capen

    Secretary

    Total calculated
    $0
    Hours/week
    20

  • Linda Malecky

    Treasurer, Vice President

    Total calculated
    $0
    Hours/week
    20

  • Bruce L Downey

    Director

    Total calculated
    $0
    Hours/week
    3

  • Benjamin M Greenberg MD

    Director

    Total calculated
    $0
    Hours/week
    5

  • Douglas A Kerr MD PHD

    Director

    Total calculated
    $0
    Hours/week
    5

  • Carlos A Pardo-Villamizar MD

    Director

    Total calculated
    $0
    Hours/week
    5

  • Barbara Sattler

    Director

    Total calculated
    $0
    Hours/week
    5

  • Jason Robbins

    Director

    Total calculated
    $0
    Hours/week
    8

  • Peter C Johnson

    Director

    Total calculated
    $0
    Hours/week
    3

  • Dennis Wolfe

    Director

    Total calculated
    $0
    Hours/week
    3

  • James T Lubin

    Executive Committee Member

    Total calculated
    $0
    Hours/week
    20

  • Dave Evans

    Director

    Total calculated
    $0
    Hours/week
    3

  • Michael Levy

    Director

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $1,493,618
    Expenses
    $1,614,877
    Contributions
    $1,399,452
    Grants paid
    $177,374
  • 2023
    Revenue
    $1,270,268
    Expenses
    $1,225,221
    Contributions
    $1,222,107
    Grants paid
    $105,942
  • 2022
    Revenue
    $1,218,351
    Expenses
    $1,096,315
    Contributions
    $1,208,273
    Grants paid
    $87,663

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $1,415,891
    Expenses
    $683,121
    Assets (EOY)
    $1,538,757

  • 2020 · 990

    Revenue
    $752,124
    Expenses
    $577,003
    Assets (EOY)
    $776,844

  • 2019 · 990

    Revenue
    $906,729
    Expenses
    $966,213
    Assets (EOY)
    $675,082

  • 2017 · 990

    Revenue
    $691,880
    Expenses
    $877,751
    Assets (EOY)
    $612,200

  • 2016 · 990

    Revenue
    $529,517
    Expenses
    $683,140
    Assets (EOY)
    $748,335

  • 2015 · 990

    Revenue
    $613,280
    Expenses
    $480,158
    Assets (EOY)
    $898,366

  • 2014 · 990

    Revenue
    $619,001
    Expenses
    $435,669
    Assets (EOY)
    $740,305

  • 2013 · 990

    Revenue
    $396,411
    Expenses
    $446,195
    Assets (EOY)
    $545,675

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $289,220
    Assets (EOY)
    $580,639

  • 2011 · 990

    Revenue
    not reported
    Expenses
    $119,546
    Assets (EOY)
    $661,433

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

  • University of Utah

    $50,000

    2024 Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroimmune disorders and a second grant to study the Effects of Social Determinants of Health Factors in Transverse Myelitis:Epidemiology of the National Veterans Health Administration Population

  • MASSACHUSETTS GENERAL HOSPITAL

    $47,500

    2024 Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases and a second grant to investigate Headache and Eye Pain Associated with Rare Neuroimmune Disorders

  • Johns Hopkins Univ School of Medicine

    $40,000

    2023 Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases

  • Johns Hopkins School of Medicine

    $40,000

    2024 Fellowship award for salary, benefits and supplies for Fellow training in the clinical treatment of and research pertaining to rare neuroiummune diseases

  • MASSACHUSETTS GENERAL HOSPITAL

    $40,000

    2023 Acquired samples of CSF and blood from TM,MS,NMO,MOG patients and healthy controls. Using artificially produced exosomes in culture from cell lines , she successfully improved on a protocol to purify and characterize exosomes. These exosomes are within a specific size range and contain the markers of exosomes (tetraspanins). From MOG-expressing HEK cells, she can identify MOG protein within the exosomes and from AQP4-expressing HEK cells, she can identify AQP4 on the membranes of exosomes.

  • MASSACHUSETTS GENERAL HOSPITAL

    $40,000

    2022 Acquired samples of CSF and blood from TM,MS,NMO,MOG patients and healthy controls. Using artificially produced exosomes in culture from cell lines , she successfully improved on a protocol to purify and characterize exosomes. These exosomes are within a specific size range and contain the markers of exosomes (tetraspanins). From MOG-expressing HEK cells, she can identify MOG protein within the exosomes and from AQP4-expressing HEK cells, she can identify AQP4 on the membranes of exosomes.

  • UNIVERSITY OF TEXAS SOUTHWESTERN MEDICAL CENTER

    $12,500

    2022 Grant will be used to assess condition specific knowledge of patients with rare neuroimmue disorders

Where these grants went next →

Grants received

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.