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LES TURNER AMYOTROPHIC LATERAL SCLEROSIS FOUNDATION

EIN 36-2916466 SKOKIE, IL

Revenue 2023
$2,682,408
Expenses 2023
$3,355,940

Program services were 78.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
2000
Street
5550 TOUHY AVE STE 302

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • ERIN REARDON COHN

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2

  • HARVEY GAFFEN

    CHAIR EMERITUS

    Total calculated
    $0
    Hours/week
    2

  • THOMAS F BOLEKY

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • JOEL A SCHECHTER

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • JOHN COLEMAN III MD

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • ROBIN FERN

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • JODI M HARRIS

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

  • KEN HOFFMAN

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • RICH ASHLIN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • TINA CASCIO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DEBORAH CROCKETT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • AALOK DAVE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SEAN FALLON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • BONNY GAFFEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • FRANK GRANATA

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JANENE JONAS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JOSHUA NEWSOME

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MARY LOU PISONE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • DIANA PISONE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SARVESH SOI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ANDREA PAULS BACKMAN

    CEO (THRU JUNE 2023)

    Total calculated
    $97,343
    From this org
    $85,518
    From related orgs
    $0
    Other
    $11,825
    Hours/week
    40

  • LAURA FREVELETTI

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $151,656
    From this org
    $148,059
    From related orgs
    $0
    Other
    $3,597
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $148,059
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $3,597
    Filer's total
    $151,656

  • STEVE SCHAPIRO

    DIRECTOR OF DEVELOPMENT

    Total calculated
    $127,810
    From this org
    $123,000
    From related orgs
    $0
    Other
    $4,810
    Hours/week
    40

  • LAUREN WEBB

    DIR. OF SUPPORT SERVICES

    Total calculated
    $133,794
    From this org
    $115,407
    From related orgs
    $0
    Other
    $18,387
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $2,682,408
    Expenses
    $3,355,940
    Contributions
    $3,233,758
    Grants paid
    $1,217,914
  • 2022
    Revenue
    $2,660,033
    Expenses
    $2,786,124
    Contributions
    $3,051,751
    Grants paid
    $916,190

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.