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← SUMAIRA FOUNDATION

Form 990 for tax year 2022

Filed by SUMAIRA FOUNDATION.

Totals

Total revenue
$1,457,691
Total expenses
$1,372,269
Contributions and grants received
$1,481,066
Grants paid
$180,000
Program service revenue
$0
Investment income
$0
Other revenue
-$23,375
Total assets, end of year
$457,112
Total liabilities, end of year
$224,218
Net assets or fund balances, end of year
$232,894
Program services expenses (Part IX)
$1,045,523
Management and general expenses
$192,128
Fundraising expenses
$134,618
Program service expenses (Part III)
$1,045,523

Program services were 76.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $216,000

  • 1f · All other contributions, gifts and grants

    $1,265,066

  • 8a · Fundraising events: gross income

    $162,263

  • 8a · Fundraising events: contributions included on line 1c

    $216,000

  • 8b · Fundraising events: direct expenses

    $175,234

  • 8c · Net income from fundraising events

    total -$12,971 · excluded -$12,971

  • 10a · Gross sales of inventory

    $1,930

  • 10b · Cost of goods sold

    $12,334

  • 10c · Net income from sales of inventory

    total -$10,404 · unrelated business -$10,404

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $75,000 · program services $75,000

  • 3 · Grants to foreign organizations and individuals

    total $105,000 · program services $105,000

  • 5 · Compensation of officers, directors and key employees

    total $435,258 · program services $282,918 · management and general $108,814 · fundraising $43,526

  • 11b · Fees: legal

    total $7,675 · program services $3,838 · management and general $3,837

  • 11g · Fees: other

    total $15,653 · program services $7,826 · management and general $7,827

  • 12 · Advertising and promotion

    total $17,235 · program services $8,618 · fundraising $8,617

  • 13 · Office expenses

    total $14,889 · program services $8,933 · management and general $2,978 · fundraising $2,978

  • 16 · Occupancy

    total $7,056 · program services $4,234 · management and general $1,411 · fundraising $1,411

  • 17 · Travel

    total $101,614 · program services $89,619 · management and general $4,290 · fundraising $7,705

  • 19 · Conferences, conventions and meetings

    total $4,328 · program services $4,328

  • 22 · Depreciation, depletion and amortization

    total $3,959 · program services $990 · management and general $989 · fundraising $1,980

  • 24a · Other expenses: FILM PRODUCTION

    total $272,644 · program services $272,644

  • 24b · Other expenses: CONSULTING

    total $265,830 · program services $172,789 · management and general $26,583 · fundraising $66,458

  • 24c · Other expenses: MEALS AND ENTERTAINMENT

    total $21,449 · management and general $21,449

  • 24d · Other expenses: SOFTWARE

    total $10,668 · management and general $10,668

  • 24e · All other expenses

    total $14,011 · program services $8,786 · management and general $3,282 · fundraising $1,943

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $299,431 · end of year $403,045

  • 9 · Prepaid expenses and deferred charges

    beginning of year $4,940

  • 10a · Land, buildings and equipment: cost or other basis

    $2,765

  • 10b · Land, buildings and equipment: accumulated depreciation

    $184

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $2,581

  • 15 · Other assets

    beginning of year $51,633 · end of year $51,486

  • 17 · Accounts payable and accrued expenses

    end of year $59,218

  • 18 · Grants payable

    end of year $150,000

  • 19 · Deferred revenue

    beginning of year $108,532 · end of year $15,000

  • 29 · Capital stock, trust principal or current funds

    beginning of year $0 · end of year $0

  • 30 · Paid-in or capital surplus, or land, building or equipment fund

    beginning of year $0 · end of year $0

  • 31 · Retained earnings, endowment or other funds

    beginning of year $247,472 · end of year $232,894

Mission and programs · 2022

Mission

THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS.

  • GRANTS TO FACILITATE RESEARCH FOR THE TREATMENT OF NEUROMYELITIS OPTICA AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE.

    Expenses $180,000 · Grants $180,000

  • WORKING TO GENERATE GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER (NMOSD) AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE (MOGAD), AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS + THEIR CAREGIVERS.

    Expenses $688,974 · Revenue $800,000

  • FROM THE EXPERTS - A FACEBOOK LIVE SERIES DESIGNED TO EDUCATE AND DISCUSS A VARIETY OF TOPICS RELEVANT TO OUR COMMUNITY. EACH WEBINAR IS HOSTED BY AN EXPERT IN THE FIELD AND OFFERS VIEWERS A CHANCE TO ASK QUESTIONS IN REAL TIME.

    Expenses $176,549 · Revenue $205,000

As filed on the 2022 return. The filer continues this part on Schedule O, which is not shown here.

Listed in Part VII

  • Sumaira Ahmed

    PRESIDENT

    Total calculated
    $224,539
    From this org
    $224,539
    From related orgs
    $0
    Other
    $0
    Hours/week
    15

    Schedule J breakdown matched by us

    Base
    $224,539
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $224,539

  • Melissa Barash

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Michael Devlin

    DIRECTOR

    Total calculated
    $210,719
    From this org
    $210,719
    From related orgs
    $0
    Other
    $0
    Hours/week
    1

    Schedule J breakdown matched by us

    Base
    $210,719
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $210,719

  • Lauren Michaels

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • Stephanie Hamzo

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

None.

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Provenance

Return type
form_990
Tax year
2022
Filed
15 November 2023
IRS schema version
2022v5.0
Source object
202343199349300939

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