- Revenue 2024
- $1,345,639
- Expenses 2024
- $1,329,611
Program services were 63.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H96
- Classification
- 1200
- Street
- 485 FOLEY ST UNIT 631
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2024
Mission
THE SUMAIRA FOUNDATION, INC. (THE ORGANIZATION"), A 501(C)(3) ORGANIZATION, THAT IS DEDICATED TO GENERATING GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER ("NMOSD"), FUNDRAISING TO HELP FIND A CURE, AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS AND THEIR CAREGIVERS. THE ORGANIZATION IS SUPPORTED PRIMARILY THROUGH GRANTS AND FUNDRAISING EVENTS.
-
GRANTS TO FACILITATE RESEARCH FOR THE TREATMENT OF NEUROMYELITIS OPTICA AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE.
Expenses $206,952 · Grants $134,954 · Revenue $73,144
-
WORKING TO GENERATE GLOBAL AWARENESS OF NEUROMYELITIS OPTICA SPECTRUM DISORDER (NMOSD) AND MYELIN OLIGODENDROCYTE GLYCOPROTEIN ANITBODY DISEASE (MOGAD), AND CREATING A COMMUNITY OF SUPPORT FOR PATIENTS + THEIR CAREGIVERS.
Expenses $107,460 · Revenue $528,500
-
ORGANIZING REGIONAL EDUCATIONAL EVENTS FEATURING LOCAL EXPERTS TO FOSTER COMMUNITY, EMPOWERMENT AND SUPPORT FOR NMOSD/MOGAD PATIENTS, CAREGIVERS, CLINICIANS AND RESEARCHERS.
Expenses $129,181 · Revenue $504,175
-
Expenses $402,628
As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Sumaira AhmedSUMAIRA AHMED
PRESIDENT
- Total calculated
- $300,305
- From this org
- $300,305
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $300,305
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $300,305
-
Melissa BarashMELISSA BARASH
TERM ENDED 05/2024
- Total calculated
- $0
- Hours/week
- 1
-
Michael DevlinMICHAEL DEVLIN
DIRECTOR
- Total calculated
- $284,583
- From this org
- $284,583
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $284,583
- Bonus
- $0
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $284,583
-
Lauren MichaelsLAUREN MICHAELS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Stephanie HamzoSTEPHANIE HAMZO
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
Alexis AhmadALEXIS AHMAD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $1,345,639
- Expenses
- $1,329,611
- Contributions
- $1,460,672
- Grants paid
- $134,954
-
2023
- Revenue
- $1,759,652
- Expenses
- $1,495,010
- Contributions
- $1,839,292
- Grants paid
- $173,536
-
2022
- Revenue
- $1,457,691
- Expenses
- $1,372,269
- Contributions
- $1,481,066
- Grants paid
- $180,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2024 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2023 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2021 · 990
- Revenue
- $309,923
- Expenses
- $120,535
- Assets (EOY)
- $356,004
-
2020 · 990
- Revenue
- $157,788
- Expenses
- $118,257
- Assets (EOY)
- $165,391
-
2019 · 990-EZ
- Revenue
- $37,087
- Expenses
- $32,342
- Assets (EOY)
- $11,553
-
2018 · 990-EZ
- Revenue
- $14,764
- Expenses
- $20,256
- Assets (EOY)
- $6,808
-
2017 · 990-EZ
- Revenue
- $31,345
- Expenses
- $26,335
- Assets (EOY)
- $12,300
-
2016 · 990-EZ
- Revenue
- $16,335
- Expenses
- $13,549
- Assets (EOY)
- $7,290
-
2015 · 990-EZ
- Revenue
- $7,632
- Expenses
- $3,786
- Assets (EOY)
- $4,504
-
2014 · 990-EZ
- Revenue
- $658
- Expenses
- not reported
- Assets (EOY)
- $658
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Form 990-N e-Postcard, tax year 2013
- Tax period
- 1 January 2013 to 31 December 2013
- Principal officer
-
Sumaira Ahmed
- Mailing address
- PO Box 161Brookline MA 02446
- Website
- WWW.sumairafoundation.org
As filed, from the IRS e-Postcard file of 9 November 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.
Grants made
-
BRAIN HEALTH CENTER OF THE ROCKIES
$46,000
2024 THE PURPOSE OF THIS GRANT IS TO ASSIST BRAIN HEALTH CENTER OF THE ROCKIES IN THEIR MISSION.
-
2023 THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF CALIFORNIA IN THEIR MISSION.
-
$25,000
2023 THE PURPOSE OF THIS GRANT IS TO ASSIST THE MEDICAL COLLEGE OF WISCONSIN IN THEIR MISSION.
-
$25,000
2022 THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION.
-
$25,000
2022 THE PURPOSE OF THIS GRANT IS TO ASSIST THE UNIVERSITY OF UTAH HEALTH IN THEIR MISSION.
-
CASE WESTERN RESERVE UNIVERSITY
$25,000
2022 THE PURPOSE OF THIS GRANT IS TO ASSIST CASE WESTERN RESERVE UNIVERSITY IN THEIR MISSION.
Grants received
-
$9,000
2024 MENTAL HEALTH IMPACT GRANT
-
2024 For grant recipient's exempt purposes
-
$5,218
2022 UNRESTRICTED
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
THE SUMAIRA FOUNDATION FRANCE
ADVANCE THE MISSION OF THE SUMAIRA FOUNDATION IN FRANCE · FR
-
THE SUMAIRA FOUNDATION CANADA
ADVANCE THE MISSION OF THE SUMAIRA FOUNDATION IN FRANCE · CA
-
SUMAIRA FOUNDATION ITALY
ADVANCE THE MISSION OF THE SUMAIRA FOUNDATION IN FRANCE · IT
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 11 November 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.