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Nonprofiteer
← EPILEPSY FOUNDATION NEW ENGLAND INC

Form 990 for tax year 2024

Filed by EPILEPSY FOUNDATION NEW ENGLAND INC.

Totals

Total revenue
$7,486,018
Total expenses
$6,800,011
Contributions and grants received
$2,116,162
Grants paid
$227,517
Program service revenue
$5,125,409
Investment income
$507,561
Other revenue
-$263,114
Total assets, end of year
$15,377,474
Total liabilities, end of year
$1,533,044
Net assets or fund balances, end of year
$13,844,430
Program services expenses (Part IX)
$4,594,903
Management and general expenses
$709,930
Fundraising expenses
$1,495,178
Program service expenses (Part III)
$4,594,903

Program services were 67.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Line items

Every line the filer filed in Parts VIII, IX and X, as filed and in filed order. Blank columns are left out, and the lines are not forced to add up to the totals above.

Revenue

Part VIII, the statement of revenue.

  • 1c · Fundraising events

    $717,523

  • 1e · Government grants (contributions)

    $1,096,777

  • 1f · All other contributions, gifts and grants

    $301,862

  • 2a · Program service revenue: DONATION CENTER

    total $5,125,409 · related or exempt $5,125,409

  • 3 · Investment income

    total $507,561 · excluded $507,561

  • 8a · Fundraising events: gross income

    $113,186

  • 8a · Fundraising events: contributions included on line 1c

    $717,523

  • 8b · Fundraising events: direct expenses

    $382,094

  • 8c · Net income from fundraising events

    total -$268,908 · excluded -$268,908

  • 11a · Other revenue: OTHER REVENUE

    total $5,794 · excluded $5,794

  • 11e · Other revenue, total

    $5,794

Functional expenses

Part IX, the statement of functional expenses.

  • 1 · Grants to domestic organizations and governments

    total $150,000 · program services $150,000

  • 2 · Grants to domestic individuals

    total $77,517 · program services $77,517

  • 5 · Compensation of officers, directors and key employees

    total $552,448 · program services $221,780 · management and general $27,723 · fundraising $302,945

  • 7 · Other salaries and wages

    total $3,190,472 · program services $2,276,150 · management and general $267,361 · fundraising $646,961

  • 8 · Pension plan contributions

    total $53,853 · program services $23,925 · management and general $25,757 · fundraising $4,171

  • 9 · Other employee benefits

    total $340,327 · program services $215,884 · management and general $41,785 · fundraising $82,658

  • 10 · Payroll taxes

    total $336,448 · program services $215,731 · management and general $31,971 · fundraising $88,746

  • 11c · Fees: accounting

    total $165,608 · program services $102,330 · management and general $36,652 · fundraising $26,626

  • 11g · Fees: other

    total $557,641 · program services $306,763 · management and general $174,353 · fundraising $76,525

  • 12 · Advertising and promotion

    total $30,732 · program services $7,948 · management and general $8,397 · fundraising $14,387

  • 13 · Office expenses

    total $198,621 · program services $98,592 · management and general $37,846 · fundraising $62,183

  • 16 · Occupancy

    total $114,870 · program services $71,446 · management and general $9,602 · fundraising $33,822

  • 17 · Travel

    total $87,842 · program services $57,972 · management and general $5,953 · fundraising $23,917

  • 20 · Interest

    total $42,023 · program services $42,023

  • 22 · Depreciation, depletion and amortization

    total $178,419 · program services $106,368 · management and general $9,562 · fundraising $62,489

  • 23 · Insurance

    total $100,888 · program services $88,218 · management and general $2,940 · fundraising $9,730

  • 24a · Other expenses: TRUCK EXPENSES

    total $269,518 · program services $269,518

  • 24b · Other expenses: POSTAGE AND SHIPPING

    total $208,665 · program services $206,141 · management and general $2,022 · fundraising $502

  • 24c · Other expenses: MISCELLANEOUS

    total $77,495 · program services $32,067 · management and general $18,244 · fundraising $27,184

  • 24d · Other expenses: REPAIRS AND RENTAL

    total $57,801 · program services $19,661 · management and general $8,631 · fundraising $29,509

  • 24e · All other expenses

    total $8,823 · program services $4,869 · management and general $1,131 · fundraising $2,823

Balance sheet

Part X, book values.

  • 1 · Cash, non-interest-bearing

    beginning of year $626,418 · end of year $595,055

  • 2 · Savings and temporary cash investments

    beginning of year $721,715 · end of year $769,005

  • 3 · Pledges and grants receivable

    beginning of year $44,500 · end of year $206,107

  • 4 · Accounts receivable

    beginning of year $766,398 · end of year $620,425

  • 9 · Prepaid expenses and deferred charges

    beginning of year $139,799 · end of year $191,804

  • 10a · Land, buildings and equipment: cost or other basis

    $118,673

  • 10b · Land, buildings and equipment: accumulated depreciation

    $118,673

  • 10c · Land, buildings and equipment, net

    beginning of year $0 · end of year $0

  • 11 · Investments: publicly traded securities

    beginning of year $10,457,343 · end of year $12,061,851

  • 15 · Other assets

    beginning of year $1,120,870 · end of year $933,227

  • 17 · Accounts payable and accrued expenses

    beginning of year $420,695 · end of year $522,645

  • 19 · Deferred revenue

    beginning of year $28,646 · end of year $45,673

  • 25 · Other liabilities

    beginning of year $1,125,824 · end of year $964,726

  • 27 · Net assets without donor restrictions

    beginning of year $11,920,155 · end of year $13,542,505

  • 28 · Net assets with donor restrictions

    beginning of year $381,723 · end of year $301,925

Mission and programs · 2024

Mission

TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.

Activities or mission (Part I)

EPILEPSY FOUNDATION NEW ENGLAND'S (EFNE) MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.

  • FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION TO IMPROVE THE LIVES OF PEOPLE LIVING WITH EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO PROVIDE CONNECTION AND RESOURCES TO PEOPLE LIVING WITH EPILEPSY, AND SHOWCASES ADVANCEMENTS IN THE TREATMENTS AND OTHER RESOURCES AVAILABLE FOR PEOPLE LIVING WITH EPILEPSY IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN IMPROVING THE LIVES OF PEOPLE LIVING WITH EPILEPSY AND UNDERSTANDING RESEARCH IN EPILEPSY.

    Expenses $2,021,478 · Revenue $5,125,409

  • RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 13 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2024, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 45 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 30 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

    Expenses $2,265,910 · Grants $227,517

  • YOUTH SERVICES: EFNE PROVIDES SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING MORE THAN 200 PARTICIPANTS EACH YEAR. CLIENTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBER, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION AGE YOUTH WITH COMMUNITY BUILDING SKILLS AS THEY TRANSITION TO ADULTHOOD. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET-UPS PROVIDE SUPPORT OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED MORE THAN 1,000 FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY.

    Expenses $307,515

As filed on the 2024 return.

Listed in Part VII

  • AIMEE STEVENS

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • JASON BOURQUE

    CLERK

    Total calculated
    $0
    Hours/week
    0.4

  • JENNIFER CARDILLO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • BRETT DOWNING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • MARC FIRENZE

    FORMER VICE CHAIR

    Total calculated
    $0
    Hours/week
    0.4

  • PHILIP HAYDON PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • JOHN GAITANIS MD

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • DARA FREEDMAN-WEISS

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • DON HOLMES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • ALISON ZETTERQUIST

    CHAIR

    Total calculated
    $0
    Hours/week
    0.4

  • TIM YOUNG

    TREASURER

    Total calculated
    $0
    Hours/week
    0.4

  • TAMARA SACHARCZYK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • IKA NOVIAWATY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • KIMBERLEE SCHUMACHER

    DIRECTOR THRU JUN25

    Total calculated
    $0
    Hours/week
    0.4

  • DARLENE WILSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • ANDREW COLE MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • STEVE SIRAVO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • JOE SIRAVO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • SUSAN LINN

    FORMER PRESIDENT & CEO - EFNE THRU MAY25

    Total calculated
    $298,029
    From this org
    $278,893
    From related orgs
    $0
    Other
    $19,136
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $263,893
    Bonus
    $15,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $19,136
    Filer's total
    $298,029

  • BRADLEY RICH

    PRESIDENT - DC

    Total calculated
    $271,079
    From this org
    $0
    From related orgs
    $260,694
    Other
    $10,385
    Hours/week
    1 + 50 related

    Schedule J breakdown matched by us

    Base
    $0 + $260,694 related
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0 + $10,385 related
    Filer's total
    $0 + $271,079 related

  • KIMBERLEE SCHUMACHER

    INTERIM-PRESIDENT & CEO BEGINNING JUN25

    Total calculated
    $0
    Hours/week
    40

  • JEFFREY GANZ

    CHIEF OPERATING OFFICER -

    Total calculated
    $158,810
    From this org
    $152,681
    From related orgs
    $0
    Other
    $6,129
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $152,681
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $6,129
    Filer's total
    $158,810

  • JACQUELYN BREAULT

    DIRECTOR OF OPERATIONS - D

    Total calculated
    $154,069
    From this org
    $0
    From related orgs
    $137,985
    Other
    $16,084
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $121,610 related
    Bonus
    $0 + $16,375 related
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0 + $16,084 related
    Filer's total
    $0 + $154,069 related

  • DAVID SEARLES

    VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE

    Total calculated
    $107,528
    From this org
    $103,824
    From related orgs
    $0
    Other
    $3,704
    Hours/week
    40

  • CHANDA LINN

    VP OF PROGRAMS & SERVICES - EFNE

    Total calculated
    $109,429
    From this org
    $100,217
    From related orgs
    $0
    Other
    $9,212
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Form 990 of other organizations
  • 3 · Written employment contract
  • 3 · Compensation survey or study
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

Taxable family on this return

Schedule R Parts I, III and IV, as filed. These record ownership and control, not shared board members or money moved.

Disregarded entities

Part I: entities that legally are the filer and file no return of their own.

Provenance

Return type
form_990
Tax year
2024
Filed
12 November 2025
IRS schema version
2024v5.2
Source object
202513169349300821

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