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EPILEPSY FOUNDATION NEW ENGLAND INC

EIN 22-2505819 LOWELL, MA

Revenue 2024
$7,486,018
Expenses 2024
$6,800,011

Program services were 67.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
Classification
1000
Street
175 CABOT ST STE 301

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2024

Mission

TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION. EFNE'S SERVICES ARE DESIGNED TO PROVIDE HELP FOR TODAY AND HOPE FOR TOMORROW.

Activities or mission (Part I)

EPILEPSY FOUNDATION NEW ENGLAND'S (EFNE) MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.

  • FUNDING SUPPORT & DONATION CENTER: EFNE'S DONATION CENTER FUNDS EFNE'S MISSION TO IMPROVE THE LIVES OF PEOPLE LIVING WITH EPILEPSY. THE DONATION CENTER COLLECTS GENTLY USED CLOTHING AND HOUSEWARES TO BE RESOLD. EFNE WORKS TO PROVIDE CONNECTION AND RESOURCES TO PEOPLE LIVING WITH EPILEPSY, AND SHOWCASES ADVANCEMENTS IN THE TREATMENTS AND OTHER RESOURCES AVAILABLE FOR PEOPLE LIVING WITH EPILEPSY IN PARTNERSHIP WITH THE EPILEPSY FOUNDATION OF AMERICA. THIS INCLUDES SHOWCASING RESEARCH IN OUR COMMUNICATION AND HOLDING EVENTS TO ENGAGE HEALTH CARE PROVIDERS, CLIENTS, AND DONORS IN IMPROVING THE LIVES OF PEOPLE LIVING WITH EPILEPSY AND UNDERSTANDING RESEARCH IN EPILEPSY.

    Expenses $2,021,478 · Revenue $5,125,409

  • RESOURCE AND SUPPORT SERVICES: EFNE PROVIDES EPILEPSY RESOURCE ROOMS IN ABOUT 13 HOSPITALS ACROSS NEW ENGLAND. THOUSANDS OF CLIENTS RECEIVE ACTIVE LISTENING AND MENTORING, EDUCATION, AND INFO/REFERRALS. IN FISCAL YEAR 2024, EFNE PROVIDED ONE-TIME GRANTS OF $50-$1,000 TO 45 FAMILIES AFFECTED BY EPILEPSY AND IN FINANCIAL CRISIS. EFNE PROVIDES APPROXIMATELY 30 SUPPORT GROUPS PER MONTH, SERVING 400-500 PEOPLE PER YEAR. EFNE PROVIDES EDUCATIONAL PROGRAMS ABOUT EPILEPSY AND SEIZURE FIRST AID TO APPROXIMATELY 5,000 PEOPLE PER YEAR, INCLUDING SCHOOL CHILDREN, SCHOOL PERSONNEL, FIRST RESPONDERS, PARENTS AND THE GENERAL PUBLIC. WE MAINTAIN AN ONLINE KNOWLEDGE CENTER AND RESOURCE LIBRARY.

    Expenses $2,265,910 · Grants $227,517

  • YOUTH SERVICES: EFNE PROVIDES SLEEPAWAY AND DAY CAMPS EACH YEAR, SERVING MORE THAN 200 PARTICIPANTS EACH YEAR. CLIENTS RECEIVE MENTORING FROM STAFF, VOLUNTEERS, AMERICORPS MEMBER, AND INTERNS. YOUNG ADULT RETREATS PROVIDE TRANSITION AGE YOUTH WITH COMMUNITY BUILDING SKILLS AS THEY TRANSITION TO ADULTHOOD. HUNDREDS OF ONLINE VIRTUAL SUPPORT GROUPS AND MEET-UPS PROVIDE SUPPORT OUR YOUTH. EFNE'S HOPE LION CAMPAIGN HAS REACHED MORE THAN 1,000 FAMILIES TO PROVIDE SUPPORT, EDUCATION, AND COMMUNITY AS THEY MOVE THROUGH THEIR JOURNEY WITH EPILEPSY.

    Expenses $307,515

As filed on the 2024 return.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • AIMEE STEVENS

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • JASON BOURQUE

    CLERK

    Total calculated
    $0
    Hours/week
    0.4

  • JENNIFER CARDILLO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • BRETT DOWNING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • MARC FIRENZE

    FORMER VICE CHAIR

    Total calculated
    $0
    Hours/week
    0.4

  • PHILIP HAYDON PHD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • JOHN GAITANIS MD

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • DARA FREEDMAN-WEISS

    FORMER DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • DON HOLMES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • ALISON ZETTERQUIST

    CHAIR

    Total calculated
    $0
    Hours/week
    0.4

  • TIM YOUNG

    TREASURER

    Total calculated
    $0
    Hours/week
    0.4

  • TAMARA SACHARCZYK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • IKA NOVIAWATY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • KIMBERLEE SCHUMACHER

    DIRECTOR THRU JUN25

    Total calculated
    $0
    Hours/week
    0.4

  • DARLENE WILSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.4

  • ANDREW COLE MD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • STEVE SIRAVO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • JOE SIRAVO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1.5

  • SUSAN LINN

    FORMER PRESIDENT & CEO - EFNE THRU MAY25

    Total calculated
    $298,029
    From this org
    $278,893
    From related orgs
    $0
    Other
    $19,136
    Hours/week
    50

    Schedule J breakdown matched by us

    Base
    $263,893
    Bonus
    $15,000
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $19,136
    Filer's total
    $298,029

  • BRADLEY RICH

    PRESIDENT - DC

    Total calculated
    $271,079
    From this org
    $0
    From related orgs
    $260,694
    Other
    $10,385
    Hours/week
    1 + 50 related

    Schedule J breakdown matched by us

    Base
    $0 + $260,694 related
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0 + $10,385 related
    Filer's total
    $0 + $271,079 related

  • KIMBERLEE SCHUMACHER

    INTERIM-PRESIDENT & CEO BEGINNING JUN25

    Total calculated
    $0
    Hours/week
    40

  • JEFFREY GANZ

    CHIEF OPERATING OFFICER -

    Total calculated
    $158,810
    From this org
    $152,681
    From related orgs
    $0
    Other
    $6,129
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $152,681
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $6,129
    Filer's total
    $158,810

  • JACQUELYN BREAULT

    DIRECTOR OF OPERATIONS - D

    Total calculated
    $154,069
    From this org
    $0
    From related orgs
    $137,985
    Other
    $16,084
    Hours/week
    1 + 40 related

    Schedule J breakdown matched by us

    Base
    $0 + $121,610 related
    Bonus
    $0 + $16,375 related
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0 + $16,084 related
    Filer's total
    $0 + $154,069 related

  • DAVID SEARLES

    VP FOR DEVELOPMENT & COMMUNICATIONS - EFNE

    Total calculated
    $107,528
    From this org
    $103,824
    From related orgs
    $0
    Other
    $3,704
    Hours/week
    40

  • CHANDA LINN

    VP OF PROGRAMS & SERVICES - EFNE

    Total calculated
    $109,429
    From this org
    $100,217
    From related orgs
    $0
    Other
    $9,212
    Hours/week
    40

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $7,486,018
    Expenses
    $6,800,011
    Contributions
    $2,116,162
    Grants paid
    $227,517
  • 2023
    Revenue
    $7,355,741
    Expenses
    $6,455,357
    Contributions
    $2,529,180
    Grants paid
    $214,592
  • 2022
    Revenue
    $6,573,455
    Expenses
    $5,905,898
    Contributions
    $2,578,465
    Grants paid
    $216,067

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $5,980,042
    Expenses
    $4,674,503
    Assets (EOY)
    $9,060,661

  • 2020 · 990

    Revenue
    $6,402,351
    Expenses
    $4,110,889
    Assets (EOY)
    $9,132,602

  • 2019 · 990

    Revenue
    $5,439,977
    Expenses
    $4,917,110
    Assets (EOY)
    $6,252,451

  • 2018 · 990

    Revenue
    $6,054,061
    Expenses
    $5,787,898
    Assets (EOY)
    $5,569,131

  • 2017 · 990

    Revenue
    $6,902,554
    Expenses
    $6,314,386
    Assets (EOY)
    $4,726,128

  • 2016 · 990

    Revenue
    $7,397,128
    Expenses
    $6,457,954
    Assets (EOY)
    $4,366,391

  • 2015 · 990

    Revenue
    $5,960,513
    Expenses
    $5,262,323
    Assets (EOY)
    $3,402,383

  • 2014 · 990

    Revenue
    $4,338,633
    Expenses
    $3,740,732
    Assets (EOY)
    $2,443,198

  • 2013 · 990

    Revenue
    $3,827,034
    Expenses
    $3,356,672
    Assets (EOY)
    $1,844,163

  • 2011 · 990

    Revenue
    not reported
    Expenses
    $3,235,959
    Assets (EOY)
    $1,075,929

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Disregarded entities on its 2024 return

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.