Form 990 for tax year 2023
Filed by HUNTINGTONS DISEASE SOCITEY OF AMERICA GROUP RETURN.
Totals
- Total revenue
- $3,252,082
- Total expenses
- $3,044,483
- Contributions and grants received
- $3,222,635
- Grants paid
- $5,436
- Program services expenses (Part IX)
- $2,795,349
- Management and general expenses
- $0
- Fundraising expenses
- $249,134
- Program service expenses (Part III)
- $2,795,349
Program services were 91.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
Listed in Part VII
-
VICTOR SUNG MD
PAST CHAIR
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
TERESA SRAJER
CHAIR
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
KAMRAN ALAM
TREASURER
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JENNE COLER-DARK
CHAIR ELECT
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JAY HUGHES
SECRETARY
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
ANGELA ALLEN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JEFFREY BROWN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JEFF CARROLL
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
MARK COE
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
ERIN FURR-STIMMING MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
BETH HOFFMAN
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
JONATHAN KLEIN ESQ
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
KELSEY PORTER
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
DOMINIQUE THOMAS
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
LESLIE M THOMPSON PHD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
VICKI WHEELOCK MD
TRUSTEE
- Total calculated
- $0
- Hours/week
- 3 + 6 related
-
LOUISE VETTER
CHIEF EXECUTIVE OFFICER
- Total calculated
- $423,374
- From this org
- $0
- From related orgs
- $370,302
- Other
- $53,072
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $320,565 related
- Bonus
- $0 + $49,737 related
- Other
- $0
- Deferred
- $0 + $16,500 related
- Nontaxable benefits
- $0 + $36,572 related
- Filer's total
- $0 + $423,374 related
-
ROSEMARY COLUCCIO
CHIEF OPERATIONS OFFICER
- Total calculated
- $289,923
- From this org
- $0
- From related orgs
- $260,173
- Other
- $29,750
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $260,173 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $13,176 related
- Nontaxable benefits
- $0 + $16,574 related
- Filer's total
- $0 + $289,923 related
-
ARIK JOHNSON
CHIEF MISSION OFFICER
- Total calculated
- $214,485
- From this org
- $0
- From related orgs
- $203,067
- Other
- $11,418
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $203,067 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $10,133 related
- Nontaxable benefits
- $0 + $1,285 related
- Filer's total
- $0 + $214,485 related
-
JAMISON SKALA
DIRECTOR, NATIONAL DEVELOP
- Total calculated
- $185,469
- From this org
- $0
- From related orgs
- $173,121
- Other
- $12,348
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $173,121 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $8,917 related
- Nontaxable benefits
- $0 + $3,431 related
- Filer's total
- $0 + $185,469 related
-
DEBRA LOVECKY
DIR. OF EDUCATION PROG THRU MAY 2023
- Total calculated
- $275,177
- From this org
- $0
- From related orgs
- $257,479
- Other
- $17,698
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $128,419 related
- Bonus
- $0
- Other
- $0 + $129,060 related
- Deferred
- $0 + $6,898 related
- Nontaxable benefits
- $0 + $10,800 related
- Filer's total
- $0 + $275,177 related
-
DEBORAH BOYD
REGIONAL DEVELOPMENT DIREC
- Total calculated
- $139,482
- From this org
- $0
- From related orgs
- $117,667
- Other
- $21,815
- Hours/week
- 3 + 35 related
-
REBECCA CHAN
CONTROLLER
- Total calculated
- $155,440
- From this org
- $0
- From related orgs
- $112,876
- Other
- $42,564
- Hours/week
- 3 + 35 related
Schedule J breakdown matched by us
- Base
- $0 + $112,876 related
- Bonus
- $0
- Other
- $0
- Deferred
- $0 + $6,348 related
- Nontaxable benefits
- $0 + $36,216 related
- Filer's total
- $0 + $155,440 related
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.
Schedule J
Answered yes
- 3 · Form 990 of other organizations
- 3 · Written employment contract
- 3 · Compensation survey or study
- 3 · Approval by the board or compensation committee
- 4a · Severance or change-of-control payment
- 7 · Other non-fixed payments
Answered no
- 4b · Supplemental nonqualified retirement plan
- 4c · Equity-based compensation arrangement
- 5a · Pay contingent on this organization's revenues
- 5b · Pay contingent on a related organization's revenues
- 6a · Pay contingent on this organization's net earnings
- 6b · Pay contingent on a related organization's net earnings
- 8 · Paid under the initial-contract exception
The filer's explanations (Part III)
- PART I, LINE 3
- COMPENSATION PRACTICES - PAID BY RELATED ORGANIZATION: COMPENSATION IS DETERMINED BY A COMBINATION OF A REVIEW AND APPROVAL BY INDEPENDENT PERSONS, COMPARABILITY DATA, AND CONTEMPORANEOUS SUBSTANTIATION OF THE DELIBERATION AND DECISION BY THE BOARD.
- PART I, LINE 4A
- DURING 2023, THE SOCIETY MADE A SEVERANCE PAYMENY TO THE FORMER DIRECTOR OF EDUCATION PROGRAMS.
- PART I, LINE 7
- DURING 2023, THE BOARD OF TRUSTEES APPROVED A NONFIXED PAYMENT FOR THE CHIEF EXECUTIVE OFFICER.
Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.
Grants on this return
No itemized grants to organizations on this return.
Related organizations on this return
Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.
-
HUNTINGTON'S DISEASE SOCIETY OF AMERICA
501(C)(3) · PROG SRVC · NY
Provenance
- Return type
- form_990
- Tax year
- 2023
- Filed
- 18 October 2024
- IRS schema version
- 2023v5.1
- Source object
- 202443179349305404
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