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← FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

Form 990 for tax year 2022

Filed by FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA.

Totals

Total revenue
$11,042,911
Total expenses
$11,132,747
Contributions and grants received
$11,604,349
Grants paid
$9,234,269
Program service revenue
$0
Investment income
$78,516
Other revenue
-$639,954
Total assets, end of year
$7,260,774
Total liabilities, end of year
$430,349
Net assets or fund balances, end of year
$6,830,425
Program services expenses (Part IX)
$10,629,847
Management and general expenses
$277,786
Fundraising expenses
$225,114
Program service expenses (Part III)
$10,629,847

Program services were 95.5% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • RONALD BARTEK

    PRESIDENT/DIRECTOR

    Total calculated
    $113,811
    From this org
    $110,000
    From related orgs
    $0
    Other
    $3,811
    Hours/week
    40

  • RUTH ACTON

    TREASURER/DIR OF FINANCE ADMIN, HR

    Total calculated
    $58,400
    From this org
    $45,203
    From related orgs
    $0
    Other
    $13,197
    Hours/week
    25

  • PAUL AVERY

    CHAIRMAN/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • MARILYN E DOWNING

    SECRETARY/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR SANJAY BIDICHANDANI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • BRIGID BRENNAN

    DIRECTOR/ GENERAL COUNSEL

    Total calculated
    $0
    Hours/week
    20

  • THOMAS BRENNINKMEIJER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • ALEX FIELDING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER GOOD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • THOMAS HAMILTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR HOLLY HEDRICK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DEREK G HENNECKE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR STEVE KLASKO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR KATHY MATHEWS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES MCARTHUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • TONY PLOHOROS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • PATRICK RITSCHEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES R RUSCHE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER M FARMER

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $155,228
    From this org
    $150,000
    From related orgs
    $0
    Other
    $5,228
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $150,000
    Bonus
    $0
    Other
    $0
    Deferred
    $4,500
    Nontaxable benefits
    $728
    Filer's total
    $155,228

  • BARBARA A TATE

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $257,108
    From this org
    $250,000
    From related orgs
    $0
    Other
    $7,108
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $250,000
    Bonus
    $0
    Other
    $0
    Deferred
    $6,350
    Nontaxable benefits
    $758
    Filer's total
    $257,108

  • ELISABETTA SORAGNI

    DIRECTOR OF RESEARCH

    Total calculated
    $120,336
    From this org
    $106,090
    From related orgs
    $0
    Other
    $14,246
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Provenance

Return type
form_990
Tax year
2022
Filed
12 July 2023
IRS schema version
2022v5.0
Source object
202301959349300445

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

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