Skip to content
Nonprofiteer
← FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

Form 990 for tax year 2023

Filed by FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA.

Totals

Total revenue
$11,203,043
Total expenses
$12,200,773
Contributions and grants received
$12,011,078
Grants paid
$9,307,077
Program service revenue
$0
Investment income
$35,631
Other revenue
-$843,666
Total assets, end of year
$7,752,276
Total liabilities, end of year
$1,605,648
Net assets or fund balances, end of year
$6,146,628
Program services expenses (Part IX)
$11,573,451
Management and general expenses
$329,787
Fundraising expenses
$297,535
Program service expenses (Part III)
$11,573,451

Program services were 94.9% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

Listed in Part VII

  • RONALD BARTEK

    PRESIDENT/DIRECTOR

    Total calculated
    $118,383
    From this org
    $114,377
    From related orgs
    $0
    Other
    $4,006
    Hours/week
    40

  • RUTH ACTON

    TREASURER/DIRECTOR FINANCE ADMIN & HR

    Total calculated
    $61,198
    From this org
    $47,463
    From related orgs
    $0
    Other
    $13,735
    Hours/week
    25

  • MARILYN E DOWNING

    SECRETARY/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR SANJAY BIDICHANDANI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • BRIGID BRENNAN

    DIRECTOR/ GENERAL COUNSEL

    Total calculated
    $0
    Hours/week
    20

  • THOMAS BRENNINKMEIJER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • ALEX FIELDING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER GOOD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • THOMAS HAMILTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR HOLLY HEDRICK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DEREK G HENNECKE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR STEVE KLASKO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR KATHY MATHEWS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES MCARTHUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • TONY PLOHOROS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • PATRICK RITSCHEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES R RUSCHE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • PAUL AVERY

    CHAIRMAN/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER M FARMER

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $173,659
    From this org
    $167,825
    From related orgs
    $0
    Other
    $5,834
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $167,825
    Bonus
    $0
    Other
    $0
    Deferred
    $4,950
    Nontaxable benefits
    $884
    Filer's total
    $173,659

  • BARBARA A TATE

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $257,799
    From this org
    $250,000
    From related orgs
    $0
    Other
    $7,799
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $250,000
    Bonus
    $0
    Other
    $0
    Deferred
    $6,950
    Nontaxable benefits
    $849
    Filer's total
    $257,799

  • ELISABETTA SORAGNI

    DIRECTOR OF RESEARCH

    Total calculated
    $127,473
    From this org
    $111,935
    From related orgs
    $0
    Other
    $15,538
    Hours/week
    40

  • FELICIA DEROSA

    VP FUNDRAISING & COMMS

    Total calculated
    $114,101
    From this org
    $102,261
    From related orgs
    $0
    Other
    $11,840
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us.

Schedule J

Answered yes

  • 3 · Compensation committee
  • 3 · Approval by the board or compensation committee

Answered no

  • 4a · Severance or change-of-control payment
  • 4b · Supplemental nonqualified retirement plan
  • 4c · Equity-based compensation arrangement
  • 5a · Pay contingent on this organization's revenues
  • 5b · Pay contingent on a related organization's revenues
  • 6a · Pay contingent on this organization's net earnings
  • 6b · Pay contingent on a related organization's net earnings
  • 7 · Other non-fixed payments
  • 8 · Paid under the initial-contract exception

Part I's answers as filed. A line not listed was left unanswered; on lines 1a and 3 that means the box was not checked.

Grants on this return

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations on this return

Schedule R Part II: tax-exempt organizations related to the filer by control. It does not record shared board members or money.

  • STICHTING FRIEDREICH'S ATAXIA RESEARCH ALLIANCE EUROPE

    RESEARCH · NL

    Directly controlled by FRIEDREICH'S ATAXIA RESEARCH ALLIANCE

Provenance

Return type
form_990
Tax year
2023
Filed
8 August 2024
IRS schema version
2023v5.1
Source object
202432269349301073

Check it against the return as filed: the GivingTuesday Data Lake hosts a public copy of the original XML.

The source document this was parsed from is served over the API, which is where bulk and document access live.