- Revenue 2024
- $7,903,274
- Expenses 2024
- $5,865,853
Program services were 81.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G90Z
- Classification
- 1200
- Street
- 325 HUDSON STREET 4TH FLOOR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
JACK PHILLIPS
CHAIR
- Total calculated
- $0
- Hours/week
- 25
-
AMY BRANCH
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 8
-
JUSTIN SHEA
TREASURER
- Total calculated
- $0
- Hours/week
- 2
-
LAWRENCE LEVIEN
SECRETARY
- Total calculated
- $0
- Hours/week
- 1
-
LAWRENCE GOLBE
CHAIR - SCIENTIFIC ADVISOR
- Total calculated
- $0
- Hours/week
- 2
-
WILLIAM MCFARLAND
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
JAMES MCCLELLAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
ILEEN MCFARLAND
DIRECTOR
- Total calculated
- $0
- Hours/week
- 35
-
LOUIS FOXWELL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
ALEXANDER PANTELYAT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
PAUL FREEMAN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 3
-
MANA BHATT SANGHVI
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
NADINE TATTON
DIRECTOR
- Total calculated
- $0
- Hours/week
- 0.5
-
MARIA SCHMIDT
DIRECTOR
- Total calculated
- $0
- Hours/week
- 2
-
KRISTOPHE J DIAZ
EXE DIR AND CHIEF SCIENCE OFFICER
- Total calculated
- $290,496
- From this org
- $266,514
- From related orgs
- $0
- Other
- $23,982
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $236,514
- Bonus
- $30,000
- Other
- $0
- Deferred
- $5,197
- Nontaxable benefits
- $18,785
- Filer's total
- $290,496
-
RICHARD T SPAIN IV
DIRECTOR, DEVELOPMENT
- Total calculated
- $184,228
- From this org
- $161,643
- From related orgs
- $0
- Other
- $22,585
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $151,643
- Bonus
- $10,000
- Other
- $0
- Deferred
- $4,549
- Nontaxable benefits
- $18,036
- Filer's total
- $184,228
-
JENNIFER L BRUMMET
ASSOC. DIR. CLINICAL AFFAIRS AND ADVOCACY
- Total calculated
- $171,953
- From this org
- $149,533
- From related orgs
- $0
- Other
- $22,420
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $149,533
- Bonus
- $0
- Other
- $0
- Deferred
- $4,384
- Nontaxable benefits
- $18,036
- Filer's total
- $171,953
-
JESSICA SHURER
DIR. CLINICAL AFFAIRS AND ADVOCACY
- Total calculated
- $134,293
- From this org
- $113,088
- From related orgs
- $0
- Other
- $21,205
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $7,903,274
- Expenses
- $5,865,853
- Contributions
- $7,506,914
- Grants paid
- $1,740,086
-
2023
- Revenue
- $5,127,686
- Expenses
- $4,845,918
- Contributions
- $5,179,385
- Grants paid
- $1,171,461
-
2022
- Revenue
- $3,308,947
- Expenses
- $4,256,576
- Contributions
- $3,237,361
- Grants paid
- $1,243,837
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
NORTH TEXAS COMMUNITY FOUNDATION
$200,000
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
NORTH TEXAS COMMUNITY FOUNDATION
$180,000
2023 RAINWATER PRIME OF LIFE FUND - CURE PILLAR OF OUR MISSION
-
REGENERATIVE RESEARCH FOUNDATION
$150,000
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
$125,000
2024 SPECIAL INITIATIVE GRANT: REIMB. FOR GLOBAL TAU MEETING, LONDON, APRIL 24-25, 2025
-
$100,000
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
$100,000
2023 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
BAYLOR COLLEGE OF MEDICINE - GRANTS
$100,000
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
$100,000
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
$100,000
2023 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
-
2024 FUNDING RESEARCH - CURE PILLAR OF OUR MISSION
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2023 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
$95,808
2024 GENERAL SUPPORT
-
$75,000
2024 ASSIST RESEARCH IN FINDING A CURE
-
$75,000
2023 ASSIST RESEARCH IN FINDING A CURE
-
2022 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$64,525
2024 HEALTH
-
2023 GENERAL SUPPORT
-
2024 GENERAL SUPPORT
-
2024 RESEARCH OR PROFESSIONAL SOCIETIES
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.