COPD FOUNDATION INC

As filed

Subsection

03

NTEE code

G43

Classification

2000

Street

3300 PONCE DE LEON BLVD

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

4 other organizations in the IRS Business Master File list the same street address. matched by us

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

• ALPHA-1 FOUNDATION INC

  EIN 65-0585415

• ALPHANET INC

  EIN 65-0608560

• COPD MANAGEMENT INC

  EIN 20-1048224

• DISEASE MANAGEMENT NETWORK INC

  EIN 20-3887360

Mission and programs · 2024

• RESEARCH & MEDICALTHE COPD FOUNDATION RESEARCH TEAM ENGAGES WITH MULTIPLE INDIVIDUALS AND ORGANIZATIONS TO SUPPORT RESEARCH STUDIES AND CLINICAL TRIALS. THESE STUDIES FOCUS ON A WIDE RANGE OF TOPICS THAT ALIGN WITH THE FOUNDATION MISSION. THESE INCLUDE PATIENT SYMPTOM TREATMENT, VIRTUAL COPD MANAGEMENT TOOLS, PATIENT FEEDBACK ON SCREENING TOOLS, AND DEVELOPMENT OF NEW THERAPIES AND MEDICAL DEVICES TO ADDRESS UNMET NEEDS. THE COPD FOUNDATION RESEARCH TEAM ALSO PARTICIPATED IN SEVERAL ACTIVITIES THAT ARE TARGETING PEOPLE WITH EARLY COPD WITH THE AIM TO DEVELOP APPROACHES THAT CAN BE USED TO SLOW DISEASE PROGRESSION THESE INCLUDE AN AMERICAN THORACIC SOCIETY EARLY DISEASE WORKING GROUP, CO-CHAIRED BY THE COPD FOUNDATION AND DISCUSSIONS RELATED TO THE DESIGN AND CONDUCT OF CLINICAL TRIALS IN PATIENTS WITH EARLY DISEASE.THE COPD FOUNDATION IS CONTINUING THE WORK OF THE PATIENT INSPIRED VALIDATION OF OUTCOME TOOLS (PIVOT) PROJECT. PIVOT WAS ESTABLISHED TO BE A DRIVING FORCE FOR INTEGRATING THE PATIENT AND THE PATIENT VOICE INTO CLINICAL OUTCOME MEASUREMENT VALIDATION AND SELECTION FOR USE IN CHRONIC LUNG DISEASE RESEARCH AND CLINICAL TRIALS. THE PIVOT PROJECT HAS PRODUCED TWO MANUSCRIPTS, ONE TO DESCRIBE THE OBJECTIVES OF PIVOT AND A SECOND REPORTING THE FIRST RESULTS OF ANALYSIS OF WHAT MATTERS MOST TO PATIENTS WITH COPD. OVER THE NEXT YEAR THE PIVOT TEAM WILL CONDUCT A SURVEY OF COPD PATIENTS TO BETTER UNDERSTAND THE HETEROGENEITY IN HOW COPD PATIENTS EXPERIENCE THEIR DISEASE IN THEIR DAILY LIVES AND WHAT IS MOST IMPORTANT TO THEM IN TERMS OF UNMET NEEDS. IN THE COMING YEAR, THE PIVOT TEAM WILL ALSO BEGIN SIMILAR WORK IN NON-CYSTIC FIBROSIS BRONCHIECTASIS.THE COPD FOUNDATION CONTINUES TO PRIORITIZE THE DEVELOPMENT OF ITS PATIENT POWERED RESEARCH NETWORK OR PPRN, A NETWORK IN WHICH PATIENTS ARE RECRUITED TO SHARE THEIR HEALTH INFORMATION AND DISEASE IMPACT. PATIENT PROVIDED HEALTH INFORMATION IS STORED IN A SECURE DATABASE AND IS USED TO SUPPORT PROJECTS WHERE PATIENT INPUT IS NEEDED. THE PPRN IS CURRENTLY BEING USED TO SUPPORT MULTIPLE ONGOING RESEARCH STUDIES AND CLINICAL TRIAL ACTIVITIES.

  Expenses $3,282,165

• BRONCHIECTASIS & NTM ASSOCIATIONTHE COPD FOUNDATION WAS APPROVED TO DO BUSINESS AS THE BRONCHIECTASIS AND NTM ASSOCIATION. WITH THIS APPROVAL, WE EMBARKED ON A REBRANDING EFFORT, ENSURING OUR COMMITMENT AND DEDICATION TO THIS PATIENT COMMUNITY.WE HAD ANOTHER SUCCESSFUL WORLD BRONCHIECTASIS DAY CAMPAIGN, REACHING OVER 2 MILLION PEOPLE. THE CAMPAIGN ALLOWED US TO BRING TOGETHER NEARLY 20 PATIENT ADVOCACY ORGANIZATIONS AND PROFESSIONAL SOCIETIES TO COLLABORATE IN SPREADING AWARENESS AND EDUCATION ON BRONCHIECTASIS.THE GOAL OF THE BRONCHIECTASIS AND NTM RESEARCH REGISTRY IS TO SUPPORT COLLABORATIVE RESEARCH AND ASSIST IN THE PLANNING OF MULTI-CENTER CLINICAL TRIALS FOR THE TREATMENT OF NON-CF BRONCHIECTASIS AND/OR NTM LUNG DISEASE. OVER THE COURSE OF THE YEAR, THE REGISTRY CONTINUED ENROLLING AND COLLECTING LONGITUDINAL DATA ON PARTICIPANTS, REACHING OVER 8,000 PARTICIPANTS AND UP TO 16 YEARS OF DATA ON SOME PARTICIPANTS. SEVERAL REGISTRY ABSTRACTS WERE PRESENTED AT INTERNATIONAL CONFERENCES AND MANUSCRIPTS WERE PUBLISHED AS A RESULT OF THE REGISTRY DATA COLLECTION. IN ADDITION, THE REGISTRY WAS UTILIZED TO FACILITATE RECRUITMENT INTO MAJOR CLINICAL TRIALS IN THIS SPACE.THE BRONCHIECTASIS AND NTM CARE CENTER NETWORK'S MISSION IS TO REDUCE THE TIME TO DIAGNOSIS AND SUPPORT HIGH QUALITY CARE FOR THIS PATIENT POPULATION. THE CARE CENTER NETWORK SUCCESSFULLY ONBOARDED 33 CENTERS AND CONTINUED PLANNING FOR THE NEXT REQUEST FOR APPLICATIONS.

  Expenses $3,658,163

• COMMUNITYTHE COPD360 COMMUNITY ENGAGEMENT COMMITTEE (COPD360CENCO), A DIVERSE PATIENTS AND CAREGIVERS COMMITTEE, CONTINUED TO MEET MONTHLY TO PROVIDE THE VOICE OF PATIENTS AND CAREGIVERS TO ALL THE COPD FOUNDATION'S EFFORTS, AND TO SUPPORT ITS INTERACTIONS WITH OTHER HEALTH CARE AND ADVOCACY ORGANIZATIONS. PATIENT AND CAREGIVER INVOLVEMENT IN GOVERNANCE AND EDUCATION IS THE MODEL ON WHICH THE COPD FOUNDATION WAS ESTABLISHED. WITH THAT CENTRAL GOAL, THE COPD FOUNDATION HAS BUILT TRUST WITHIN ITS MEMBERSHIP AND RELATED STAKEHOLDER GROUPS.MEMBERSHIP IN THE COPD FOUNDATION CAPTAINS PROGRAM GREW BY 13%. CAPTAINS SPREAD COPD AWARENESS IN THEIR STATE AND LOCAL AREAS, MENTOR FELLOW COPD COMMUNITY MEMBERS, AND PARTICIPATE IN GRASSROOTS ADVOCACY AND COMMUNITY BUILDING ACTIVITIES FOCUSED ON HEALTH POLICY ISSUES THAT ARE IMPORTANT TO THOSE WHO HAVE COPD AND OTHER CHRONIC LUNG DISEASES. THE COPD FOUNDATION CONTINUES TO SUPPORT PATIENT WELLBEING BY PROVIDING FREE MONTHLY SUPPORT GROUPS FOR PATIENTS AND CAREGIVERS. SUPPORT GROUPS ARE AVAILABLE FOR BOTH PATIENTS WITH COPD AND PATIENTS WITH BRONCHIECTASIS AND (NONTUBERCULOUS MYCOBACTERIAL) NTM LUNG DISEASE. HUNDREDS OF PATIENTS ATTEND THESE MEETINGS EACH MONTH TO DISCUSS THEIR EXPERIENCES AND LEARN ABOUT TOPICS SUCH AS STAYING HEALTHY DURING THE HOLIDAYS AND TALKING TO THEIR HEALTH CARE PROVIDERS ABOUT THEIR SPECIFIC ISSUES AND SYMPTOMS.

  Expenses $714,987

• PUBLIC & PROFESSIONAL EDUCATIONTHE COPD FOUNDATION CONTINUES TO ENSURE HIGH-QUALITY EVIDENCE-BASED EDUCATIONAL MATERIALS ARE AVAILABLE FOR INTERNAL AND EXTERNAL STAKEHOLDERS. THE COPD FOUNDATION PODCAST RELEASED 12 EPISODES IN 2025, PROVIDING INSIGHTS FROM KEY OPINION LEADERS (KOLS) ON TOPICS RELATED TO COPD CARE. TWO NEW PATIENT-FACING 101 DECKS, ONE FOCUSING ON INTRODUCING COPD, AND THE OTHER DISCUSSING GENETIC COPD. TWO NEW LANDING PAGES WERE ALSO DEVELOPED - ONE ON SEVERE COPD THAT PROVIDES GUIDANCE ON MANAGEMENT, AND THE OTHER ON GENETIC COPD, WHICH ENCOURAGES TESTING FOR THE GENETIC CONDITION. TO SUPPORT PEOPLE LIVING WITH COPD IN A GROUP SETTING, RESOURCES TO SUPPORT GROUPS IN PROVIDING EFFECTIVE PEER SUPPORT AND EDUCATION WERE CREATED AND PROVIDED TO SEVERAL COMMUNITIES IN RURAL AREAS ACROSS THE COUNTRY. TO HELP IMPROVE THE DIAGNOSIS OF COPD IN RURAL COMMUNITIES, COPD SCREENING AND COPD EDUCATION WERE CONDUCTED AT NUMEROUS EVENTS IN FOUR STATES IN THE APPALACHIAN REGION. A MEDIA AND DIRECT MAIL CAMPAIGN PROMOTED COPD AWARENESS, AND THE USE OF PULMONARY REHABILITATION IN THESE AREAS, AND THREE PULMONARY REHABILITATION PROGRAMS IN THESE REGIONS WERE PROVIDED WITH FREE EDUCATIONAL MATERIALS.THE COPD FOUNDATION ALSO DEMONSTRATES A COMMITMENT TO PROVIDING HIGH-QUALITY EDUCATION FOR HEALTH CARE PROVIDERS WHO CARE FOR PEOPLE WITH CHRONIC LUNG DISEASE. SEVERAL CONTINUING MEDICAL EDUCATION PROGRAMS OR ACCREDITED PROGRAMS WERE PROVIDED FOR PROFESSIONAL DEVELOPMENT. THE LUNG HEALTH COLLABORATIVE WAS DEVELOPED AS A COMMUNITY OF PROVIDERS COMMITTED TO PROVIDING EFFECTIVE CARE FOR PEOPLE WITH CHRONIC LUNG DISEASE. THIS GROUP HAS AN ONLINE FORUM FOR COLLABORATION AND A DEDICATED NEWSLETTER. THE INAUGURAL LUNG HEALTH COLLABORATIVE VIRTUAL ASSEMBLY PROVIDED A FULL DAY OF EDUCATIONAL SESSIONS FOR HEALTH PROFESSIONALS. THESE SESSIONS WERE HELD BY KOLS AND DISCUSSED NOVEL COMPONENTS OF COPD CARE.

  Expenses $666,485

•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

  Expenses $664,875

As filed on the 2024 return. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

• 2024

  Revenue

  $14,381,344

  Expenses

  $12,606,054

  Contributions

  $13,595,105

  Grants paid

  $0

• 2023

  Revenue

  $10,974,474

  Expenses

  $10,855,388

  Contributions

  $10,426,406

  Grants paid

  $21,000

• 2022

  Revenue

  $7,966,723

  Expenses

  $9,649,179

  Contributions

  $7,495,120

  Grants paid

  $2,500

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

• 2021 · 990

  Revenue

  $7,994,347

  Expenses

  $8,513,991

  Assets (EOY)

  $9,619,205

• 2020 · 990

  Revenue

  $8,973,655

  Expenses

  $8,516,717

  Assets (EOY)

  $10,791,127

• 2019 · 990

  Revenue

  $9,433,584

  Expenses

  $8,894,249

  Assets (EOY)

  $10,533,837

• 2018 · 990

  Revenue

  $10,107,887

  Expenses

  $10,704,174

  Assets (EOY)

  $9,184,199

• 2016 · 990

  Revenue

  $10,707,905

  Expenses

  $8,572,891

  Assets (EOY)

  $9,197,961

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

• AMERICAN THORACIC SOCIETY INC

  $21,000

  2023 · RESEARCH

Where these grants went next →

Grants received

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $233,573

  2022 · For grant recipient's exempt purposes

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $201,450

  2023 · For grant recipient's exempt purposes

• PAYPAL CHARITABLE GIVING FUND

  $25,296

  2024 · GENERAL SUPPORT

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $25,000

  2022 · UNRESTRICTED GENERAL SUPPORT

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $25,000

  2024 · UNRESTRICTED GENERAL SUPPORT

• MORGAN STANLEY GLOBAL IMPACT FUNDING TRUST INC

  $25,000

  2023 · UNRESTRICTED GENERAL SUPPORT

• FIDELITY INVESTMENTS CHARITABLE GIFT FUND

  $18,100

  2024 · For grant recipient's exempt purposes

• GULF COAST COMMUNITY FOUNDATION INC

  $17,922

  2024 · HEALTH

• GULF COAST COMMUNITY FOUNDATION INC

  $17,069

  2023 · HEALTH

• GULF COAST COMMUNITY FOUNDATION INC

  $16,954

  2022 · HEALTH

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files