- Revenue 2022
- $190,912
- Expenses 2022
- $2,169,415
Program services were 65.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Street
- 7330 STAPLES MILL ROAD 288
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2022
Mission
TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, IN ADIRA'S EARLY YEARS, WE WILL FOCUS PRINCIPALLY, THOUGH NOT EXCLUSIVELY, ON FIVE NEURODEGENERATIVE DISEASES: ALS, ALZHEIMER'S AND RELATED DEMENTIAS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE. AT ADIRA WE ACCELERATE THE DESIGN AND FUNDING OF BETTER, MORE INTEGRATED HELP FOR PEOPLE WHO NEED IT NOW. WE ASSEMBLE A HANDFUL OF DISEASES THAT STRUGGLE WITH MANY OF THE SAME BIG THINGS. WE TAKE THEM OUT OF ISOLATION WHERE THEY'RE DEFINED NOT BY THEIR DIAGNOSIS BUT BY THEIR STRUGGLE. FROM A BIRD'S-EYE VIEW, WE SEE THE COMMON THEMES AND TRENDS. WE SPEAK WITH PEOPLE GOING THROUGH THIS JOURNEY TO DESIGN BETTER PROGRAMS WITH THEM, NOT JUST FOR THEM. THEN WE FUND THOSE BIGGER, COMMON PROBLEMS WITH WHICH THEY SAY THEY NEED THE MOST HELP. SOME EXAMPLES OF OUR WORK TO DATE FOCUS ON CAREGIVING, NAVIGATION OF DIFFERENT SERVICES, DISABILITY, EQUITY, MEASUREMENTS FOR QUALITY OF LIFE, AND MENTAL HEALTH.
Activities or mission (Part I)
TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES. INITIALLY, ADIRA FOUNDATION ADIRA WILL FOCUS ON FIVE NEURODEGENERATIVE DISEASES THAT ARE HIGHLY COMPLEX AND HAVE MUCH IN COMMON: ALZHEIMER'S DISEASE AND RELATED DEMENTIAS, ALS, HUNTINGTON'S DISEASE, MULTIPLE SCLEROSIS, AND PARKINSON'S DISEASE.
-
ADIRA FINANCED GRANTS TO QUALIFIED NON-PROFITS TO INVEST IN BETTER LIVES FOR PEOPLE WITH NEURODEGENERATIVE DISEASES, STARTING WITH FIVE COMMUNITIES: ALS, ALZHEIMERS AND RELATED DEMENTIAS, HUNTINGTONS, MULTIPLE SCLEROSIS, AND PARKINSONS. In 2022, we implemented a third round of competitive grantmaking on three key topics: simplifying clinical research, preparing for financial threats, and helping people thrive again. Total grants paid for 2022 were $281,521. We managed this in addition to monitoring our ongoing grant activities from previous years. Finally, we piloted a series of three neurodegenerative disease (ND) congress events bringing those with lived expertise in conversation with career experts to design new grants together. Unfortunately, due to a lack of financing momentum, we were forced to enter dissolution at the end of the 2022.
Expenses $1,418,221 · Grants $316,521 · Revenue $35,302
As filed on the 2022 return.
Officers and directors · 2022
As listed in Part VII of the 2022 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
Greg Smiley - Until 121622GREG SMILEY - UNTIL 121622
Founder/CEO
- Total calculated
- $244,878
- From this org
- $217,878
- From related orgs
- $0
- Other
- $27,000
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $217,878
- Bonus
- not reported
- Other
- not reported
- Deferred
- $27,000
- Nontaxable benefits
- not reported
- Filer's total
- $244,878
-
Marilyn Spinner -Until 10522MARILYN SPINNER -UNTIL 10522
Chief Dev. & External Affairs Officer
- Total calculated
- $141,324
- From this org
- $114,480
- From related orgs
- $0
- Other
- $26,844
- Hours/week
- 40
-
Dr Cynthia GomezDR CYNTHIA GOMEZ
Chair
- Total calculated
- $0
- Hours/week
- 2
-
Alan J AbramsomALAN J ABRAMSOM
Vice President
- Total calculated
- $0
- Hours/week
- 2
-
Todd EvensonTODD EVENSON
Treasurer
- Total calculated
- $0
- Hours/week
- 2
-
Cheryl Sullivan Staveley
Secretary
- Total calculated
- $0
- Hours/week
- 2
-
Laura HanenLAURA HANEN
Director
- Total calculated
- $0
- Hours/week
- 1
-
Alan HutsonALAN HUTSON
Director
- Total calculated
- $0
- Hours/week
- 1
-
Ian KremerIAN KREMER
Director
- Total calculated
- $0
- Hours/week
- 1
-
Zen MelesseZEN MELESSE
Director
- Total calculated
- $0
- Hours/week
- 1
-
Kandy FerreeKANDY FERREE
Director
- Total calculated
- $0
- Hours/week
- 1
-
Bruce Packett - Until 1122BRUCE PACKETT - UNTIL 1122
Director
- Total calculated
- $0
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2022
- Revenue
- $190,912
- Expenses
- $2,169,415
- Contributions
- $140,363
- Grants paid
- $316,521
-
2022
- Revenue
- $3,306
- Expenses
- $34,081
- Contributions
- $53
- Grants paid
- $17,324
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990
- Revenue
- $1,074,322
- Expenses
- $1,281,083
- Assets (EOY)
- $2,118,169
-
2020 · 990
- Revenue
- $43,222
- Expenses
- $1,929,417
- Assets (EOY)
- $2,916,341
-
2019 · 990
- Revenue
- $3,899
- Expenses
- $1,702,442
- Assets (EOY)
- $142,611
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
$79,965
2022 School of Nursing competitive
-
$79,753
2022 Pervasive Needs Grant
-
$60,000
2022 Pervasive Needs Grants
-
$36,803
2022 Pervasive Need Grant
-
$25,000
2022 Rural Neurodegenerative Support
Grants received
No itemized grant names this organization as a recipient. Only grants over $5,000 are itemized, and only by filers of the full Form 990.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Not present in the most recent drop.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 9 November 2026 and read 9 November 2026, for every organization at once. Returns through tax year 2022, the newest we have parsed for this organization.