- Revenue 2025
- $440,037
- Expenses 2025
- $233,006
Program services were 52.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- P820
- Classification
- 1200
- Street
- 251 SW WILSHIRE BLVD STE 124-304
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Mission and programs · 2025
Mission
OUR MISSION IS TO PROVIDE SUPPORT, INFORMATION, AND COORDINATION WORLD-WIDE TO FAMILIES AND PROFESSIONALS EFFECTIVELY TREATING ALSTROM SYNDROME AS WE WORK TOWARD A CURE.
-
EDUCATION: ASI PROVIDED INFORMATION TO FAMILIES, HEALTHCARE PROFESSIONALS, RESEARCHERS, AND THE PUBLIC, REGARDING ALSTROM SYNDROME. OUR HANDBOOK IS AVAILABLE TO SEND TO ALL FAMILIES. OUR OUTREACH FOCUSED ON INCREASING THE AWARENESS AND UPDATING INFORMATION FOR OUR FAMILIES WORLD-WIDE.
Expenses $40,572
-
RESEARCH: ASI SUPPORTED RESEARCH EFFORTS RELATED TO ALSTROM SYNDROME BY COLLABORATING WITH RESEARCHERS, MEDICAL PROFESSIONALS TO ADVANCE SCIENTIFIC UNDERSTUDY OF THE DISEASE. ACTIVITIES INCLUDED SUPPORTING A REGISTRY, COLLECTING PATIENT INFO, AND WORKING TOWARDS BIOBANK SAMPLE COLLECTION.
Expenses $40,572
-
FAMILY SUPPORT: ALSTROM SYNDROME INTERNATIONAL PROVIDED SUPPORT AND RESOURCES TO INDIVIDUALS AND FAMILIES AFFECTED BY ALSTROM SYNDROME THROUGH RETREATS, SUPPORT PROGRAMS, NETWORKING, AND DIRECT COMMUNICATION WITH FAMILIES WORLD-WIDE. ASI HELPED CONNECT FAMILIES TO MEDICAL PROFESSIONALS AND COMMUNITY SUPPORT WHILE PROMOTING AWARENESS AND IMPROVING THE QUALIFY OF LIFE FOR THOSE AFFECTED BY THIS RARE DISEASE.
Expenses $40,571
As filed on the 2025 return.
Officers and directors · 2025
As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
RAQUEL TUCKER
EXECUTIVE DIRECTOR
- Total calculated
- $37,500
- From this org
- $37,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 0
-
CHASE PALMER
PRESIDENT
- Total calculated
- $19,500
- From this org
- $19,500
- From related orgs
- $0
- Other
- $0
- Hours/week
- 0
-
JENNIFER POTTER
TREASURER
- Total calculated
- $0
- Hours/week
- 0
-
MICHAEL KIRBY
SECRETARY
- Total calculated
- $0
- Hours/week
- 0
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.
Filings
-
2025
- Revenue
- $440,037
- Expenses
- $233,006
- Contributions
- $439,998
- Grants paid
- $0
-
2024
- Revenue
- $256,802
- Expenses
- $174,244
- Contributions
- $256,802
- Grants paid
- $0
-
2023
- Revenue
- $253,997
- Expenses
- $234,661
- Contributions
- $253,979
- Grants paid
- $0
-
2022
- Revenue
- $167,917
- Expenses
- $194,809
- Contributions
- $167,853
- Grants paid
- not reported
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2021 · 990-EZ
- Revenue
- $137,391
- Expenses
- $81,698
- Assets (EOY)
- $105,964
-
2020 · 990-EZ
- Revenue
- $143,848
- Expenses
- $149,784
- Assets (EOY)
- $50,271
-
2019 · 990
- Revenue
- $366,678
- Expenses
- $360,091
- Assets (EOY)
- $56,207
-
2018 · 990-EZ
- Revenue
- $137,191
- Expenses
- $173,839
- Assets (EOY)
- $49,620
-
2017 · 990-EZ
- Revenue
- $140,803
- Expenses
- $173,403
- Assets (EOY)
- $86,268
-
2016 · 990
- Revenue
- $453,823
- Expenses
- $454,830
- Assets (EOY)
- $118,868
-
2015 · 990-EZ
- Revenue
- $184,237
- Expenses
- $198,194
- Assets (EOY)
- $119,875
-
2014 · 990-EZ
- Revenue
- $161,371
- Expenses
- $113,459
- Assets (EOY)
- $133,832
-
2013 · 990
- Revenue
- $245,260
- Expenses
- $282,583
- Assets (EOY)
- $85,920
-
2012 · 990-EZ
- Revenue
- $169,671
- Expenses
- $100,185
- Assets (EOY)
- $123,243
Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.
Grants made
No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.
Grants received
-
SILICON VALLEY COMMUNITY FOUNDATION
$800,000
2024 Health
-
$32,849
2022 UNRESTRICTED
-
$25,000
2024 TO SUPPORT THE MISSION OF TREATING AND CURING ALSTROM SYNDROME
-
2022 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$10,050
2023 HUMAN SERVICES
-
DONOR ADVISED CHARITABLE GIVING
$10,000
2022 HUMAN SERVICES
-
$7,500
2023 TO SUPPORT THE MISSION OF ASI
-
2023 GENERAL SUPPORT
-
2023 For grant recipient's exempt purposes
-
$5,310
2023 UNRESTRICTED
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 13 October 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.
What this page reflects
The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.