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AMYOTROPHIC LATERAL SCLEROSIS ASSN

EIN 13-3271855 SAINT PAUL, MN

Revenue 2024
$68,583,051
Expenses 2024
$82,239,637

Program services were 68.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G500
Classification
1000
Street
1919 UNIVERSITY AVE W STE 175

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Group exemption

The central organization of an IRS group exemption (group number 4119), covering 10 subordinate organizations. matched by us

The IRS lists each organization's group exemption number; we match a subordinate to its central organization by that number and the affiliation code the IRS assigns.

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • SCOTT KAUFFMAN

    CHAIR

    Total calculated
    $0
    Hours/week
    5

  • LARRY FALIVENA

    CHAIR-ELECT

    Total calculated
    $0
    Hours/week
    5

  • NANCY LEAMOND

    VICE CHAIR (AS OF 07/24)

    Total calculated
    $0
    Hours/week
    5

  • FRED M DEGRANDIS

    VICE CHAIR (THRU 07/24)/TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • FRED M DEGRANDIS

    TRUSTEE

    Total calculated
    $0
    Hours/week
    5

  • SANDRA PIERSOL

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • MARK STANCIL

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • CONNIE HOUSTON

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • EUGENE BRANDON PHD

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • DAVID VAN DE RIET

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • CHRISTI L KOLARCIK PHD

    TRUSTEE (THRU 07/24)

    Total calculated
    $0
    Hours/week
    2

  • J THOMAS MAY

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MARK CALMES

    TRUSTEE (THRU 07/24)

    Total calculated
    $0
    Hours/week
    2

  • PAUL INGHOLT

    TRUSTEE (THRU 07/24)

    Total calculated
    $0
    Hours/week
    2

  • TOM CARROLL

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • MICHAEL BENATAR

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • PETER MCKOWN

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • REBECCA MOSS

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • KENTON VAN HARTEN

    TRUSTEE (THRU 10/24)

    Total calculated
    $0
    Hours/week
    2

  • DOUGH BUTCHER

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • WILLIAM SOFFELL

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • CHRIS TONNIGES

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • JESSE YBARRA

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • BERNIE ZIPPRICH

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

  • DANIELLE BOISVERT

    TRUSTEE

    Total calculated
    $0
    Hours/week
    2

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $68,583,051
    Expenses
    $82,239,637
    Contributions
    $65,814,797
    Grants paid
    $16,679,289
  • 2023
    Revenue
    $126,450,238
    Expenses
    $98,839,577
    Contributions
    $124,090,097
    Grants paid
    $22,892,366
  • 2022
    Revenue
    $55,567,608
    Expenses
    $84,199,819
    Contributions
    $53,676,289
    Grants paid
    $18,722,140

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared as related by

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • THE HERITAGE COMPANY INC.

    $430 raised

    2019 Commercial Fundraiser

    $215 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility GROUP.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.