Skip to content
Nonprofiteer
← All organizations

THE ASSOCIATION FOR FRONTOTEMPORAL DEGENERATION

EIN 41-2073220 KNG OF PRUSSA, PA

Revenue 2024
$14,420,554
Expenses 2024
$11,559,795

Program services were 81.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H124
Classification
1200
Street
2700 HORIZON DR STE 120

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • RITA CHOULA

    CHAIR

    Total calculated
    $0
    Hours/week
    4

  • GAIL ANDERSON

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    4

  • VALERIE SNOW

    SECRETARY

    Total calculated
    $0
    Hours/week
    4

  • JULIE KELLY

    TREASURER

    Total calculated
    $0
    Hours/week
    4

  • HALIMA AMJAD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • KYLE BIRMINGHAM

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • HELEN-ANN COMSTOCK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • JOE ESPOSITO

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    2

  • JILL GOLDMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KRISTIN HOLLOWAY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • SHOSHANA KRILOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • JOSEPH MARQUEZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LENN MARQUEZ

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • KATHY MELE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • DON NEWHOUSE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • GIRISH PATANGAY

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • DAVID PFEIFER

    DIRECTOR (EFF 5/3/25)

    Total calculated
    $0
    Hours/week
    3

  • KRISTIN SCHNEEMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    3

  • MARG SUTHERLAND

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • ABRAR TANVEER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • KIM TORRES

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • JARY LARSEN

    DIRECTOR (THRU 5/4/25)

    Total calculated
    $0
    Hours/week
    4

  • SUSAN L-J DICKINSON

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $350,014
    From this org
    $320,026
    From related orgs
    $0
    Other
    $29,988
    Hours/week
    36 + 4 related

    Schedule J breakdown matched by us

    Base
    $319,630
    Bonus
    $0
    Other
    $396
    Deferred
    $9,493
    Nontaxable benefits
    $20,495
    Filer's total
    $350,014

  • MITCH APPLESON

    CHIEF OPERATING OFFICER

    Total calculated
    $283,585
    From this org
    $255,015
    From related orgs
    $0
    Other
    $28,570
    Hours/week
    38 + 2 related

    Schedule J breakdown matched by us

    Base
    $254,955
    Bonus
    $0
    Other
    $60
    Deferred
    $7,798
    Nontaxable benefits
    $20,772
    Filer's total
    $283,585

  • PENNY DACKS

    SR DIRECTOR OF SCIENTIFIC INITIATIVES

    Total calculated
    $244,063
    From this org
    $226,491
    From related orgs
    $0
    Other
    $17,572
    Hours/week
    30 + 10 related

    Schedule J breakdown matched by us

    Base
    $226,431
    Bonus
    $0
    Other
    $60
    Deferred
    $6,777
    Nontaxable benefits
    $10,795
    Filer's total
    $244,063

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $14,420,554
    Expenses
    $11,559,795
    Contributions
    $12,345,385
    Grants paid
    $1,942,719
  • 2023
    Revenue
    $13,139,120
    Expenses
    $11,526,939
    Contributions
    $12,361,972
    Grants paid
    $2,986,505
  • 2022
    Revenue
    $8,537,416
    Expenses
    $9,663,807
    Contributions
    $8,797,440
    Grants paid
    $2,475,799

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.