- Revenue 2024
- $16,570,137
- Expenses 2024
- $19,646,649
Program services were 74.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- Classification
- 1200
- Street
- 1230 AVENUE OF THE AMERICAS 16TH FL
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
RYAN GRIFFITH
CHAIR
- Total calculated
- $0
- Hours/week
- 10
-
SUSAN HARTMANN
VICE CHAIR
- Total calculated
- $0
- Hours/week
- 10
-
JOSEPH ALIOTO MD
TREASURER
- Total calculated
- $0
- Hours/week
- 10
-
PAULETTE BRYANT MD
SECRETARY
- Total calculated
- $0
- Hours/week
- 10
-
JAMES R CHRISTENSEN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
JOSEPH J HELFERT II
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
PETER A KOUIDES MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
MEGAN LEE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
ZIVA MANN
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
SCOTT MILLER CPA ESQ
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
SHARON RICHARDSON PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
LUCAS TAYLOR
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
KELLY WORNALL
DIRECTOR
- Total calculated
- $0
- Hours/week
- 10
-
LEONARD VALENTINO
PRESIDENT & CEO - THRU 3/31/24
- Total calculated
- $151,137
- From this org
- $135,983
- From related orgs
- $0
- Other
- $15,154
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $98,444
- Bonus
- $36,800
- Other
- $739
- Deferred
- $9,170
- Nontaxable benefits
- $5,984
- Filer's total
- $151,137
-
PHILIP GATTONE
PRESIDENT & CEO
- Total calculated
- $350,365
- From this org
- $333,391
- From related orgs
- $0
- Other
- $16,974
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $302,939
- Bonus
- $28,000
- Other
- $2,452
- Deferred
- $0
- Nontaxable benefits
- $16,974
- Filer's total
- $350,365
-
PETER HARVEY
CHIEF BUSINESS OFFICER
- Total calculated
- $290,534
- From this org
- $214,515
- From related orgs
- $0
- Other
- $76,019
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $211,743
- Bonus
- $0
- Other
- $2,772
- Deferred
- $23,771
- Nontaxable benefits
- $52,248
- Filer's total
- $290,534
-
MICHAEL RECHT
CHIEF SCIENTIFIC OFFICER
- Total calculated
- $415,294
- From this org
- $398,637
- From related orgs
- $0
- Other
- $16,657
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $370,865
- Bonus
- $25,000
- Other
- $2,772
- Deferred
- $16,297
- Nontaxable benefits
- $360
- Filer's total
- $415,294
-
SANDRA D ROTELLINI
CHIEF OPERATING OFFICER
- Total calculated
- $276,290
- From this org
- $219,819
- From related orgs
- $0
- Other
- $56,471
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $217,047
- Bonus
- $0
- Other
- $2,772
- Deferred
- $31,316
- Nontaxable benefits
- $25,155
- Filer's total
- $276,290
-
TERI WILLEY
MANAGING DIRECTOR
- Total calculated
- $348,678
- From this org
- $306,003
- From related orgs
- $0
- Other
- $42,675
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $302,808
- Bonus
- $0
- Other
- $3,195
- Deferred
- $19,144
- Nontaxable benefits
- $23,531
- Filer's total
- $348,678
-
NATHAN SCHAEFER
S.V.P. OF PUBLIC POLICY
- Total calculated
- $236,525
- From this org
- $175,228
- From related orgs
- $0
- Other
- $61,297
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $174,808
- Bonus
- $0
- Other
- $420
- Deferred
- $25,341
- Nontaxable benefits
- $35,956
- Filer's total
- $236,525
-
TIMOTHY BRENT
VENTURE PRINCIPAL
- Total calculated
- $246,935
- From this org
- $175,948
- From related orgs
- $0
- Other
- $70,987
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $174,658
- Bonus
- $0
- Other
- $1,290
- Deferred
- $18,739
- Nontaxable benefits
- $52,248
- Filer's total
- $246,935
-
KERI NORRIS SVP OF HEALTH
ACCESS & STRATEGIC INNOVATION
- Total calculated
- $224,965
- From this org
- $178,161
- From related orgs
- $0
- Other
- $46,804
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $177,531
- Bonus
- $0
- Other
- $630
- Deferred
- $17,573
- Nontaxable benefits
- $29,231
- Filer's total
- $224,965
-
RENEE PECK
SENIOR DEVELOPMENT DIRECTOR
- Total calculated
- $210,270
- From this org
- $205,808
- From related orgs
- $0
- Other
- $4,462
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $205,118
- Bonus
- $0
- Other
- $690
- Deferred
- $4,102
- Nontaxable benefits
- $360
- Filer's total
- $210,270
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $16,570,137
- Expenses
- $19,646,649
- Contributions
- $13,694,516
- Grants paid
- $1,138,320
-
2023
- Revenue
- $19,047,848
- Expenses
- $23,080,348
- Contributions
- $16,322,358
- Grants paid
- $777,540
-
2022
- Revenue
- $18,150,168
- Expenses
- $23,065,785
- Contributions
- $16,663,253
- Grants paid
- $1,381,783
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2024 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2023 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2022 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
2022 NHF-TAKEDA CLINICAL FELLOWSHIP
-
$200,000
2022 NHF-TAKEDA CLINICAL FELLOWSHIP
-
2024 CLINICAL FELLOWSHIP AWARD
-
$156,000
2022 RESEARCH JEANNE MARIE LUSHER DIVERSITY FELLOWSHIP
-
$104,000
2023 RESEARCH JUDITH GRAHAM POOL AWARD
-
2024 RESEARCH JUDITH GRAHAM POOL AWARD
-
BETH ISRAEL DEACONESS MEDICAL CENTER
$104,000
2024 RESEARCH JUDITH GRAHAM POOL AWARD
-
$104,000
2022 RESEARCH JUDITH GRAHAM POOL AWARD
-
$99,421
2023 RESEARCH JUDITH GRAHAM POOL AWARD
-
2024 WOMEN & GIRLS WITH BLEEDING DISORDERS, AND CHAPTERS CHALLENGE GRANTS
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2024 SEE PART IV
-
2023 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
-
2022 PROMOTE ADVOCACY, EDUCATION AND RESEARCH FOR PATIENTS AND FAMILIES WITH BLEEDING DISORDERS.
-
2022 For grant recipient's exempt purposes
-
2024 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
2023 SEE PART IV
-
2024 SEE PART IV
-
THE AYCO CHARITABLE FOUNDATION
$62,500
2023 MEDICAL / PUBLIC SERVICES
-
THE AYCO CHARITABLE FOUNDATION
$62,500
2024 MEDICAL / PUBLIC SERVICES
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.