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CURE DUCHENNE

EIN 20-0299958 MISSION VIEJO, CA

Revenue 2023
$7,357,938
Expenses 2023
$10,247,154

Program services were 81.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H50
Classification
1000
Street
24000 ALICIA PARKWAY STE 466

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • PAUL MILLER

    SECRETARY

    Total calculated
    $0
    Hours/week
    10

  • DEBRA MILLER

    PRESIDENT & CEO

    Total calculated
    $151,304
    From this org
    $151,304
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,304
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $151,304

  • JEFFREY GOFFMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • PETER STRELOW

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DAVID MACINNIS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DANA WHITE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • RYAN WILLIAMS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MARTIN LEHR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TJ FARNSWORTH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DIANE KEMPLE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHRISTOPHER FINAZZO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TIM SULLIVAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • BOB SMITH

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • KATHLENE BALISY

    FINANCE DIRECTOR

    Total calculated
    $175,000
    From this org
    $175,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $175,000

  • LIANNA ORLANDO

    VICE PRESIDENT OF RESEARCH

    Total calculated
    $225,000
    From this org
    $225,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $225,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $225,000

  • MICHAEL KELLY

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $225,000
    From this org
    $225,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $225,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $225,000

  • HEATHER MEDLIN

    DIRECTOR OF CLINICAL DEVELOPMENT

    Total calculated
    $220,141
    From this org
    $220,141
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $220,141
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $220,141

  • ANDREA PIKE

    DIRECTOR OF MARKETING

    Total calculated
    $175,000
    From this org
    $175,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $175,000
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $175,000

  • MONICA UTLEY

    DIRECTOR OF PROGRAMS

    Total calculated
    $170,353
    From this org
    $170,353
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $170,353
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $170,353

  • EMILIE PERKINS

    DIRECTOR OF COMMUNICATIONS

    Total calculated
    $166,267
    From this org
    $166,267
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $166,267
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $166,267

  • KENT MORA

    FORMER CHIEF OF STAFF

    Total calculated
    $151,051
    From this org
    $151,051
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $151,051
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $151,051

  • RYAN MEARDON

    FORMER VP OF DONOR RELATIONS

    Total calculated
    $183,333
    From this org
    $183,333
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $183,333
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $0
    Filer's total
    $183,333

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $7,357,938
    Expenses
    $10,247,154
    Contributions
    $4,489,779
    Grants paid
    $495,000
  • 2022
    Revenue
    $5,751,368
    Expenses
    $9,005,616
    Contributions
    $2,429,586
    Grants paid
    $330,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2023 return

  • CD ACCESS

    501(C)(3) · DISTRIBUTE MEDICINE & OTHER THERAPIES TO INDIVIDUALS WITH DUCHENNE DISEASE · CA

Declared as related by

Taxable family

From Schedule R Parts I, III and IV: entities that legally are the filer, and taxable partnerships, corporations and trusts it is related to. These record ownership and control, not shared board members or money.

Disregarded entities on its 2023 return

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • BLIZZARD ENTERTAINMENT INC.

    $125,263 in sales

    2024 Commercial Coventurer

    $122,125 to charity

  • THE GAVEL GROUP INC.

    $265,650 raised

    2019 Commercial Fundraiser

    $232,947 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2023, the newest we have parsed for this organization.