- Revenue 2024
- $3,993,657
- Expenses 2024
- $3,778,477
Program services were 79.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G123
- Classification
- 1000
- Street
- 100 HANCOCK ST THIRD FLOOR
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
MARK LEWIS MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
JONATHAN SOROFF UNTIL 012024
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
JULIE SHAFFER MEBANE
VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 4
-
LAURIE RAINS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
ANTHONY DETRE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
STEPHEN BLACKWOOD PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
STEPHEN KAUFER
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
JOSH MAILMAN
TREASURER
- Total calculated
- $0
- Hours/week
- 4
-
JOSEPH LI MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
BRENDAN FOLEY UNTIL 62024
SECRETARY
- Total calculated
- $0
- Hours/week
- 4
-
TODD GILMAN
PRESIDENT
- Total calculated
- $0
- Hours/week
- 4
-
SUZANNE LUDLOW
SECRETARY
- Total calculated
- $0
- Hours/week
- 4
-
LAURIE LITTLEPAGE
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
CARRIE CAMINO AS OF 42024
DIRECTOR
- Total calculated
- $0
- Hours/week
- 4
-
ELYSE GELLERMAN
CHIEF EXECUTIVE OFFICER
- Total calculated
- $199,006
- From this org
- $199,006
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $174,362
- Bonus
- $24,644
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $0
- Filer's total
- $199,006
-
SUSAN HARRINGTON
CHIEF DEVELOPMENT OFFICER
- Total calculated
- $179,491
- From this org
- $179,000
- From related orgs
- $0
- Other
- $491
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $157,880
- Bonus
- $21,120
- Other
- $0
- Deferred
- $0
- Nontaxable benefits
- $491
- Filer's total
- $179,491
-
ANNA GREENE
DIRECTOR OF RESEARCH
- Total calculated
- $137,064
- From this org
- $137,064
- From related orgs
- $0
- Other
- $0
- Hours/week
- 40
-
JESSICA THOMAS
DIRECTOR OF PATIENT EDUCATION
- Total calculated
- $132,271
- From this org
- $112,109
- From related orgs
- $0
- Other
- $20,162
- Hours/week
- 40
-
CHRISTINA COFFEY UNTIL 072024
DIRECTOR OF COMMUNICATIONS
- Total calculated
- $112,564
- From this org
- $107,547
- From related orgs
- $0
- Other
- $5,017
- Hours/week
- 1
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $3,993,657
- Expenses
- $3,778,477
- Contributions
- $3,111,689
- Grants paid
- $2,219,056
-
2023
- Revenue
- $3,196,257
- Expenses
- $3,580,473
- Contributions
- $2,558,610
- Grants paid
- $2,110,000
-
2022
- Revenue
- $3,075,371
- Expenses
- $3,490,037
- Contributions
- $2,437,822
- Grants paid
- $2,060,000
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
$540,000
2022 RESEARCH
-
$270,000
2024 RESEARCH
-
2024 RESEARCH
-
$270,000
2024 RESEARCH
-
2023 RESEARCH
-
2024 RESEARCH
-
MASSACHUSETTS GENERAL HOSPITAL
$270,000
2024 RESEARCH
-
$270,000
2023 RESEARCH
-
2023 RESEARCH
-
2022 RESEARCH
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2024 For grant recipient's exempt purposes
-
2023 For grant recipient's exempt purposes
-
$250,000
2024 PROVIDE GENERAL OPERATING SUPPORT
-
$200,000
2023 PROVIDE GENERAL OPERATING SUPPORT
-
2022 For grant recipient's exempt purposes
-
DONOR ADVISED CHARITABLE GIVING
$131,906
2024 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$77,150
2023 HEALTH
-
DONOR ADVISED CHARITABLE GIVING
$66,450
2022 HEALTH
-
2024 RESEARCH
-
$48,618
2022 UNRESTRICTED
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.