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INTERNATIONAL RETT SYNDROME FOUNDATION

EIN 31-1682518 WEST CHESTER, OH

Revenue 2024
$4,813,748
Expenses 2024
$5,531,022

Program services were 86.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H128
Classification
1200
Street
4600 DEVITT DR

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Jospeh Horrigan MD

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Lisa Monteggia PhD

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • David Pass PharmD

    Chairman

    Total calculated
    $0
    Hours/week
    1

  • Mitch Bleske

    Treasurer

    Total calculated
    $0
    Hours/week
    1

  • Gordon Rich

    Founding Seat - Non Voting

    Total calculated
    $0
    Hours/week
    0.5

  • Alan Shukovsky

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Leslie Mehta Esq

    Interim Chief Executive Officer

    Total calculated
    $5,208
    From this org
    $5,208
    From related orgs
    $0
    Other
    $0
    Hours/week
    0.5

  • Mary Forrest Engel

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Steve Wood

    Vice Chairman

    Total calculated
    $0
    Hours/week
    0.5

  • Laura Stoppel PhD

    Trustee

    Total calculated
    $0
    Hours/week
    0.5

  • Parthy Evans

    Trustee - Start 07/24

    Total calculated
    $0
    Hours/week
    0.5

  • Steve Marconi CPA

    Trustee - Start 07/24

    Total calculated
    $0
    Hours/week
    0.5

  • Melissa Kennedy - Exit 1224

    Chief Executive Officer

    Total calculated
    $189,219
    From this org
    $186,940
    From related orgs
    $0
    Other
    $2,279
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $186,940
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $2,279
    Filer's total
    $189,219

  • Nupur Garg

    VP of Research

    Total calculated
    $194,684
    From this org
    $187,300
    From related orgs
    $0
    Other
    $7,384
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $187,300
    Bonus
    $0
    Other
    $0
    Deferred
    $7,384
    Nontaxable benefits
    $0
    Filer's total
    $194,684

  • Timothy Frank

    Development Director

    Total calculated
    $118,730
    From this org
    $116,466
    From related orgs
    $0
    Other
    $2,264
    Hours/week
    40

  • Meghan Cordeiro

    Marketing & Communication Director

    Total calculated
    $119,542
    From this org
    $113,308
    From related orgs
    $0
    Other
    $6,234
    Hours/week
    40

  • Drew Jones

    VP of Clinical Development

    Total calculated
    $109,815
    From this org
    $108,976
    From related orgs
    $0
    Other
    $839
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $4,813,748
    Expenses
    $5,531,022
    Contributions
    $3,808,219
    Grants paid
    $1,856,999
  • 2023
    Revenue
    $4,855,820
    Expenses
    $3,723,772
    Contributions
    $3,586,302
    Grants paid
    $856,917
  • 2022
    Revenue
    $3,669,308
    Expenses
    $5,494,227
    Contributions
    $3,581,751
    Grants paid
    $1,969,729

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.