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CYSTIC FIBROSIS RESEARCH INSTITUTE

EIN 51-0169988 PALO ALTO, CA

Revenue 2023
$2,150,402
Expenses 2023
$1,617,754

Program services were 84.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H24Z
Classification
1000
Street
1731 EMBARCADERO RD STE 210

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2023

As listed in Part VII of the 2023 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • FRANCINE BION

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • ZOE DAVIES

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    1
  • JULIE DESCH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • COLLEEN DUNN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • OSCAR A FLAMENCO

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    1
  • ELYSE ELCONIN GOLDBERG

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • JEAN HANLEY

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • BILL HULT

    PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • JESSICA MARTENS

    VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1
  • DOUG MODLIN

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • RICHARD B MOSS

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • AREK PUZIA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • AHMET ULUER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    1
  • SIRI VAETH

    EXECUTIVE DIRECTOR

    Total calculated
    $111,488
    From this org
    $111,488
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2023
    Revenue
    $2,150,402
    Expenses
    $1,617,754
    Contributions
    $2,058,910
    Grants paid
    $611,672
  • 2022
    Revenue
    $1,350,296
    Expenses
    $1,525,935
    Contributions
    $1,249,309
    Grants paid
    $590,000

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

California fundraising campaigns

Campaigns run by paid fundraisers, commercial coventurers and thrift stores naming this organization, as California published them. Both figures are as filed, and what the first one counts depends on the campaign type — a coventurer or a thrift store files its own sales rather than money collected for the charity. The 990 reports this only as a yearly total, never per campaign.

  • AUTOMOTIVE RECOVERY SERVICES INC

    $6,300 raised

    2021 CF Vehicle Donation Program

    $5,205 to charity

  • AUTOMOTIVE RECOVERY SERVICES INC

    $6,975 raised

    2020 CF Vehicle Donation Program

    $5,040 to charity

Amounts are as filed and do not add up: a commercial coventurer reports one promotion's whole gross once for each charity that shared in it. A campaign may also name more than one registered charity, in which case it appears on each.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.