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FRIEDREICHS ATAXIA RESEARCH ALLIANCE FARA

EIN 52-2122720 DOWNINGTOWN, PA

Revenue 2024
$13,135,426
Expenses 2024
$13,277,236

Program services were 94.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H99
Classification
1200
Street
533 W UWCHLAN AVE

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • RONALD BARTEK

    PRESIDENT/DIRECTOR

    Total calculated
    $113,811
    From this org
    $110,000
    From related orgs
    $0
    Other
    $3,811
    Hours/week
    40

  • RUTH ACTON

    TREASURER/DIRECTOR FINANCE

    Total calculated
    $67,964
    From this org
    $51,000
    From related orgs
    $0
    Other
    $16,964
    Hours/week
    25

  • PAUL AVERY

    CHAIRMAN/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • MAUREEN JUIP

    SECRETARY/ DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR SANJAY BIDICHANDANI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • BRIGID BRENNAN

    DIRECTOR/ GENERAL COUNSEL

    Total calculated
    $0
    Hours/week
    20

  • THOMAS BRENNINKMEIJER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • ALEX FIELDING

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER GOOD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • THOMAS HAMILTON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR HOLLY HEDRICK

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DEREK G HENNECKE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • WARREN HUFF

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR STEVE KLASKO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR KATHY MATHEWS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES MCARTHUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • TONY PLOHOROS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • PATRICK RITSCHEL

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • DR JAMES R RUSCHE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    10

  • JENNIFER M FARMER

    CHIEF EXECUTIVE OFFICER

    Total calculated
    $170,678
    From this org
    $165,000
    From related orgs
    $0
    Other
    $5,678
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $165,000
    Bonus
    $0
    Other
    $0
    Deferred
    $4,950
    Nontaxable benefits
    $728
    Filer's total
    $170,678

  • BARBARA A TATE

    CHIEF SCIENTIFIC OFFICER

    Total calculated
    $255,527
    From this org
    $250,000
    From related orgs
    $0
    Other
    $5,527
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $250,000
    Bonus
    $0
    Other
    $0
    Deferred
    $4,833
    Nontaxable benefits
    $694
    Filer's total
    $255,527

  • ELISABETTA SORAGNI

    DIRECTOR OF RESEARCH

    Total calculated
    $131,874
    From this org
    $115,851
    From related orgs
    $0
    Other
    $16,023
    Hours/week
    40

  • FELICIA DEROSA

    VP FUNDRAISING & COMMS

    Total calculated
    $118,643
    From this org
    $106,351
    From related orgs
    $0
    Other
    $12,292
    Hours/week
    40

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $13,135,426
    Expenses
    $13,277,236
    Contributions
    $13,517,065
    Grants paid
    $10,467,810
  • 2023
    Revenue
    $11,203,043
    Expenses
    $12,200,773
    Contributions
    $12,011,078
    Grants paid
    $9,307,077
  • 2022
    Revenue
    $11,042,911
    Expenses
    $11,132,747
    Contributions
    $11,604,349
    Grants paid
    $9,234,269

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $7,717,778
    Expenses
    $9,111,667
    Assets (EOY)
    $7,478,784

  • 2020 · 990

    Revenue
    $12,543,835
    Expenses
    $7,738,702
    Assets (EOY)
    $9,314,067

  • 2019 · 990

    Revenue
    $7,077,589
    Expenses
    $7,482,431
    Assets (EOY)
    $4,187,243

  • 2018 · 990

    Revenue
    $7,603,545
    Expenses
    $7,049,852
    Assets (EOY)
    $5,108,402

  • 2017 · 990

    Revenue
    $7,533,537
    Expenses
    $6,811,814
    Assets (EOY)
    $4,852,978

  • 2016 · 990

    Revenue
    $5,381,493
    Expenses
    $5,553,164
    Assets (EOY)
    $4,110,033

  • 2015 · 990

    Revenue
    $5,718,145
    Expenses
    $5,621,796
    Assets (EOY)
    $4,057,130

  • 2014 · 990

    Revenue
    $5,242,747
    Expenses
    $4,809,994
    Assets (EOY)
    $4,011,934

  • 2013 · 990

    Revenue
    $3,987,844
    Expenses
    $3,469,452
    Assets (EOY)
    $3,688,078

  • 2012 · 990

    Revenue
    not reported
    Expenses
    $3,261,212
    Assets (EOY)
    $3,032,470

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all. Showing the 10 most recent; the API carries the rest.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2024 return

  • STICHTING FRIEDREICH'S ATAXIA RESEARCH ALLIANCE EUROPE

    RESEARCH · NL

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 23 October 2026, for every organization at once. Returns through tax year 2024, the newest we have parsed for this organization.