- Revenue 2024
- $11,878,127
- Expenses 2024
- $11,608,562
Program services were 88.7% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- G540
- Classification
- 2000
- Street
- 141 WEST JACKSON BLVD
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
HOWARD P GOODKIN MD PHD FAES
PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
JACK M PARENT MD
FIRST VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
DAVID M LABINER MD FAES
SECOND VICE PRESIDENT
- Total calculated
- $0
- Hours/week
- 5
-
WILLIAM H THEODORE MD FAES
PRESIDENT EMERITUS
- Total calculated
- $0
- Hours/week
- 5
-
FRED A LADO MD PHD FAES
TREASURER
- Total calculated
- $0
- Hours/week
- 5
-
KELLY G KNUPP MD MSCS FAES
TREASURER ELECT
- Total calculated
- $0
- Hours/week
- 1
-
VIJI SANTHAKUMAR PHD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BARBARA C JOBST MD FAES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
RENEE A SHELLHAAS MD MS FAES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
BARRY E GIDAL PHARMD FAES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
DAVID G VOSSLER MD FAES
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
EILEEN MURRAY
CEO UNTIL DEC 2024
- Total calculated
- $501,808
- From this org
- $466,434
- From related orgs
- $0
- Other
- $35,374
- Hours/week
- 45 + 5 related
Schedule J breakdown matched by us
- Base
- $386,053
- Bonus
- $57,908
- Other
- $22,473
- Deferred
- $12,400
- Nontaxable benefits
- $22,974
- Filer's total
- $501,808
-
WENDY-JO TOYAMA MBA FASAE CAE
CEO SINCE NOV 2024
- Total calculated
- $61,045
- From this org
- $58,974
- From related orgs
- $0
- Other
- $2,071
- Hours/week
- 45 + 5 related
-
JAMES POLOUS
DIRECTOR, TECHNOLOGY SOLUTIONS
- Total calculated
- $203,164
- From this org
- $171,656
- From related orgs
- $0
- Other
- $31,508
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $166,534
- Bonus
- $4,922
- Other
- $200
- Deferred
- $6,866
- Nontaxable benefits
- $24,642
- Filer's total
- $203,164
-
CHRISTINA GRAHAM
DIRECTOR, EDUCATION
- Total calculated
- $200,698
- From this org
- $163,255
- From related orgs
- $0
- Other
- $37,443
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $158,374
- Bonus
- $4,681
- Other
- $200
- Deferred
- $6,530
- Nontaxable benefits
- $30,913
- Filer's total
- $200,698
-
SHAWNA STRICKLAND
ASSOCIATE EXECUTIVE DIRECTOR
- Total calculated
- $261,927
- From this org
- $223,016
- From related orgs
- $0
- Other
- $38,911
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $201,884
- Bonus
- $20,967
- Other
- $165
- Deferred
- $8,920
- Nontaxable benefits
- $29,991
- Filer's total
- $261,927
-
JOY KELLER
SENIOR MANAGER, CLINICAL
- Total calculated
- $155,284
- From this org
- $127,012
- From related orgs
- $0
- Other
- $28,272
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $123,171
- Bonus
- $3,641
- Other
- $200
- Deferred
- $5,080
- Nontaxable benefits
- $23,192
- Filer's total
- $155,284
-
CHRISTINE MELENDES
ASSOCIATE EXECUTIVE DIRECTOR
- Total calculated
- $142,073
- From this org
- $136,458
- From related orgs
- $0
- Other
- $5,615
- Hours/week
- 40
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $11,878,127
- Expenses
- $11,608,562
- Contributions
- $2,636,436
- Grants paid
- $1,936,470
-
2023
- Revenue
- $10,460,621
- Expenses
- $10,434,761
- Contributions
- $2,349,550
- Grants paid
- $1,812,708
-
2022
- Revenue
- $10,000,415
- Expenses
- $9,832,791
- Contributions
- $2,630,159
- Grants paid
- $1,940,037
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Other returns filed
-
2024 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2023 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
-
2022 · 990-T
- Revenue
- not reported
- Expenses
- not reported
- Assets (EOY)
- not reported
Nonprofiteer parses the Form 990 only. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.
Grants made
-
2024 JUNIOR INVESTIGATOR AWARD GRANT
-
$150,800
2024 JUNIOR INVESTIGATOR AWARD GRANT
-
2024 POSTDOCTORAL, JUNIOR INVESTIGATOR AWARD, AND WORKSHOP GRANTS
-
NYU GROSSMAN SCHOOL OF MEDICINE
$125,000
2024 JUNIOR INVESTIGATOR AWARD AND SEED GRANTS
-
$108,494
2024 SUMMER BRIDGE INTERNSHIP, JUNIOR INVESTIGATOR AWARD. AND ESC GRANTS
-
$103,189
2022 SEED GRANT
-
$102,470
2022 SEED GRANT
-
$100,000
2023 POSTDOCTORAL GRANT
-
$92,155
2024 SUMMER BRIDGE INTERNSHIP AND SEED GRANTS
-
$75,800
2024 JUNIOR INVESTIGATOR AWARD GRANT
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
$223,374
2023 EPILEPSY RESEARCH
-
$219,741
2022 EPILEPSY RESEARCH
-
2022 UNRESTRICTED EDUCATIONAL GRANT
-
$66,000
2023 GENERAL SUPPORT
-
2024 Diagnostic Excellence Grant project with deliverables
-
2023 Diagnostic Excellence Research Project with Deliverables
-
EPILEPSY FOUNDATION OF AMERICA
$50,000
2023 SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY
-
EPILEPSY FOUNDATION OF AMERICA
$50,000
2022 SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY
-
$44,000
2024 GENERAL SUPPORT
-
$24,300
2024 DISEASE/DISORDER
The 10 largest by cash amount. The API serves every itemized grant.
Related organizations
From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.
Declared on its 2024 return
-
LENNOX AND LOMBROSO TRUST FOR EPILEPSY RESEARCH & TRAINING
501(C)(3) · SUPPORT EPILEPSY RESEARCH · MA · controlled entity
Declared as related by
-
On its 2023 return
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.