- Revenue 2024
- $15,982,317
- Expenses 2024
- $17,011,486
Program services were 82.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.
As filed
- Subsection
- 03
- NTEE code
- H99
- Classification
- 2000
- Street
- 200 1ST AVE NW STE 316
These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).
Officers and directors · 2024
As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.
-
CHRISTOPHER E WALSH MD PHD
CHAIR
- Total calculated
- $0
- Hours/week
- 1
-
TAMARA VOGEL MBA
TREASURER
- Total calculated
- $0
- Hours/week
- 1
-
DUC BOBBY TRAN MD MSC
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JENNIFER G DAVILA MD
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
JIM MUNN RN MS
DIRECTOR
- Total calculated
- $0
- Hours/week
- 1
-
ROBERT SIDONIO MD
DIRECTOR
- Total calculated
- $36,000
- From this org
- $36,000
- From related orgs
- $0
- Other
- $0
- Hours/week
- 1
-
CRYSTAL WATSON
PRESIDENT AND CEO
- Total calculated
- $390,565
- From this org
- $331,645
- From related orgs
- $0
- Other
- $58,920
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $286,072
- Bonus
- $43,473
- Other
- $2,100
- Deferred
- $20,471
- Nontaxable benefits
- $38,449
- Filer's total
- $390,565
-
ROOSEVELT COUNCIL
CHIEF FINANCIAL OFFICER
- Total calculated
- $18,373
- From this org
- $18,073
- From related orgs
- $0
- Other
- $300
- Hours/week
- 40
-
MICHAEL NIEKAMP
CFO ENDING 12/24
- Total calculated
- $329,858
- From this org
- $278,341
- From related orgs
- $0
- Other
- $51,517
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $241,478
- Bonus
- $34,763
- Other
- $2,100
- Deferred
- $17,196
- Nontaxable benefits
- $34,321
- Filer's total
- $329,858
-
TAMMUELLA SINGLETON
CHIEF SCIENCE OFFICER
- Total calculated
- $428,123
- From this org
- $405,584
- From related orgs
- $0
- Other
- $22,539
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $350,984
- Bonus
- $52,500
- Other
- $2,100
- Deferred
- $0
- Nontaxable benefits
- $22,539
- Filer's total
- $428,123
-
MOSES MILES III
CHIEF OPERATING OFFICER
- Total calculated
- $324,278
- From this org
- $299,312
- From related orgs
- $0
- Other
- $24,966
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $259,108
- Bonus
- $38,104
- Other
- $2,100
- Deferred
- $17,959
- Nontaxable benefits
- $7,007
- Filer's total
- $324,278
-
SRIKANTH SUBRAMANYA
SR. DIRECTOR, ENGINEERING
- Total calculated
- $260,933
- From this org
- $189,553
- From related orgs
- $0
- Other
- $71,380
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $169,170
- Bonus
- $18,283
- Other
- $2,100
- Deferred
- $12,412
- Nontaxable benefits
- $58,968
- Filer's total
- $260,933
-
NABIL DAOUD
DIRECTOR, DATA SCIENCE
- Total calculated
- $201,509
- From this org
- $177,216
- From related orgs
- $0
- Other
- $24,293
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $159,481
- Bonus
- $15,635
- Other
- $2,100
- Deferred
- $10,633
- Nontaxable benefits
- $13,660
- Filer's total
- $201,509
-
TROY VERBRUGGE
LEAD SOFTWARE ENGINEER
- Total calculated
- $207,719
- From this org
- $181,324
- From related orgs
- $0
- Other
- $26,395
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $167,688
- Bonus
- $11,536
- Other
- $2,100
- Deferred
- $10,904
- Nontaxable benefits
- $15,491
- Filer's total
- $207,719
-
JUSTINE KAPLAN
SR. DIRECTOR, OFFICE OF PHI
- Total calculated
- $188,044
- From this org
- $167,090
- From related orgs
- $0
- Other
- $20,954
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $149,540
- Bonus
- $15,450
- Other
- $2,100
- Deferred
- $8,126
- Nontaxable benefits
- $12,828
- Filer's total
- $188,044
-
DIANA VAINSHTEIN
DIRECTOR, PRODUCT MANAGEMENT
- Total calculated
- $209,226
- From this org
- $166,397
- From related orgs
- $0
- Other
- $42,829
- Hours/week
- 40
Schedule J breakdown matched by us
- Base
- $156,297
- Bonus
- $8,000
- Other
- $2,100
- Deferred
- $10,398
- Nontaxable benefits
- $32,431
- Filer's total
- $209,226
Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.
Filings
-
2024
- Revenue
- $15,982,317
- Expenses
- $17,011,486
- Contributions
- $15,816,465
- Grants paid
- $5,125,912
-
2023
- Revenue
- $13,573,899
- Expenses
- $16,433,621
- Contributions
- $12,829,029
- Grants paid
- $4,715,723
-
2022
- Revenue
- $13,595,220
- Expenses
- $14,534,841
- Contributions
- $13,465,526
- Grants paid
- $5,395,276
The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.
Grants made
-
HEMOPHILIA FOUNDATION OF MICHIGAN
$604,458
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
HEMOPHILIA FOUNDATION OF MICHIGAN
$566,663
2024 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
HEMOPHILIA FOUNDATION OF MICHIGAN
$563,123
2023 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
$474,956
2023 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
UNIVERSITY OF TEXAS HOUSTON (671)
$434,032
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
$428,581
2024 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
CHILDREN'S HOSPITAL OF PHILADELPHIA
$423,186
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
GREAT LAKES HEMOPHILIA FOUNDATION
$417,962
2022 DATA MANAGEMENT CAPACITY RESEARCH
-
$411,118
2023 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
-
CENTER FOR INHERITED BLOOD DISORDERS
$393,944
2024 DATA MANAGEMENT AND RESEARCH PROJECT SUPPORT
The 10 largest by cash amount. The API serves every itemized grant.
Grants received
-
2023 ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS.
-
2024 SEE PART IV
-
2022 ENHANCED DATA MANAGEMENT WITHIN HEMOPHILIA TREATMENT CENTERS.
-
2024 ATHN INHIBIT PUPS STUDY
-
2024 SEE PART IV
-
2022 RESEARCH, EDUCATION, SERVICE SUBAWARD
-
$110,000
2023 FOR THE CARE AND TREATMENT OF PEOPLE WITH BLEEDING DISORDERS
-
$100,000
2022 QUARTERLY FUNDING
-
$100,000
2023 QUARTERLY FUNDING
-
$100,000
2024 QUARTERLY FUNDING
The 10 largest by cash amount. The API serves every itemized grant.
Other IRS files
Auto-Revocation List
Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.
Publication 78
Listed as of 10 September 2026, under deductibility PC.
These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.