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BLEEDING DISORDERS ASSOCIATION OF SOUTH CAROLINA

EIN 23-7400632 GREENVILLE, SC

Revenue 2025
$484,313
Expenses 2025
$519,539

Program services were 91.4% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
L99
Classification
1000
Street
25 WOODS LAKE RD STE 300

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

To raise awareness for and advocate on behalf of persons with bleeding disorders and their families provide education and supportive services and promote ongoing research to improve the quality of life for those affected.

  • BDASC Chapter Day at Camps The Bleeding Disorders Association of South Carolina partnered with the South Carolina Hemophilia Treatment Centers and the State Department of Health and Environmental Control to host special Chapter Days at summer camps across the state. These events were designed to support children living with bleeding disorders who are patients of Prisma Health Hospitals at Midstate and Upstate. To ensure accessibility, BDASC provided travel assistance for families in need of transportation support. Each camper received a Chapter Camp Bag filled with fun and useful items, and all camp sessions featured a BDASC-sponsored Ice Cream Social. These special touches helped create a supportive and joyful environment for learning and connection. Camp experiences offered children the chance to build self-confidence and independence, with additional mentoring from BDASC volunteers to reinforce positive self-help and life skills. Our involvement also extended to Camp Courage and the Brave Blood family camp hosted by Prisma Health Upstate HTC in Greenville, ensuring continuity of support and encouragement across all regional programs.

    Expenses $78,852

  • BDASC Advocacy/Legislative Days in Columbia Our annual Advocacy and Legislative Days event in Columbia was attended by approximately 68 individuals, including community members living with bleeding disorders, healthcare providers, local and national partner organizations, representatives from the South Carolina Department of Health and Environmental Control, Children with Special Health Care Needs, and our valued industry partners. The event provided critical advocacy awareness and training for attendees, helping to build understanding of current healthcare access initiatives supported by the Chapter. It also served as a platform to voice community concerns and to educate elected officials about the real-life challenges of living with bleeding disorders. Informational materials and resources were distributed to state agencies and government representatives to strengthen their understanding and support of our cause. Participants supported 38 meetings with our South Carolina Legislators, educating them on policies that harm patients access to treatment care.

    Expenses $73,753

  • Mens, Womens, Young Families, VWD, and Rare Support Groups BDASC facilitated 10 targeted support group activities throughout the state, engaging individuals from various regions and diverse bleeding disorder communities, including those with Von Willebrand Disease (VWD) and ultra rare bleeding disorders. These programs served men, women, young families, teens, and children, offering both educational content and emotional support. Each gathering was designed to foster empowerment, build lasting friendships, and provide a space where individuals could share experiences, learn from one another, and navigate the challenges of living with a bleeding disorder together.

    Expenses $62,824

  • National Annual Meeting Education and Research Support As an active chapter of the National Bleeding Disorders Foundation and a member of the Hemophilia Federation of America, we strongly encourage participation in national events. This year, we provided financial support to six individuals and their families to attend these important national meetings. In addition, we contributed to bleeding disorder research initiatives and supported global efforts through funding provided to the National Bleeding Disorders Foundation. These efforts ensure our community stays informed and engaged with the latest advancements and global perspectives in care and advocacy

    Expenses $59,644

  • Newsletter, Website, and E-Blasts BDASC maintained strong and consistent communication with our community through a variety of digital and print channels. Our quarterly newsletter featured updates on Chapter activities, national news, treatment product information, educational articles, and member highlightsserving as a vital resource for staying connected and informed. Our website continues to be a central hub of support and education, offering resources for individuals and families affected by bleeding disorders. In addition, we distributed weekly e-blasts to over 2,000 subscribers nationwide, sharing timely updates on events, advocacy efforts, research, and educational opportunities. .

    Expenses $43,906

  • BDASC 52nd Annual State Meeting and Educational Conference Day We proudly hosted our 52nd Annual Statewide Meeting and Educational Conference, a two-day event that brought together over 155 attendees from across South Carolina and beyond. This included members of the bleeding disorders community, healthcare professionals, and organizational partners. The event featured the HELLO Conference Helping Embrace Life Learning Opportunities, with eight presentations designed to support individuals and families in living their best lives with a bleeding disorder. Sessions included topics on advocacy, treatment care, and personal growth. The weekend opened with a celebratory Friday evening dinner, including community awards, recognition of the Board of Directors, and a keynote presentation. Saturday offered educational breakouts, teen programming, and childcare services. Attendees also had the opportunity to engage with home care and pharmaceutical companies at the exhibit hall to learn about the latest therapies and services available.

    Expenses $40,506

  • 2025 Inaugural Fall Advocacy and Medical Summit (FAMS) Our FAMS (Family Advocacy & Member Summit) event was designed as a community-centered, action-oriented gathering focused on bringing together individuals and families affected by bleeding disorders to strengthen connection, elevate voices, and drive meaningful change. FAMS weekend brought our community together to share, learn, and leadturning lived experiences into action that drives connection, advocacy, and lasting impact. FAMS served as a safe, engaging space where our community share lived experiences across generations and diagnoses, learn about advocacy, healthcare access, and policy issues (like copay accumulators/maximizers), we built relationships between families, adults, teens, and stakeholders, explore the future of care with emerging treatments and innovations therapies while empowering our voices to influence decisions at both the state and national level. It wasnt just an educational eventit was about belonging, empowerment, and collective impact. We host 36 families across the state and had a total of 149 participants.

    Expenses $40,505

  • The Carolina Crew North and South Carolina Teen Retreat The Carolina Crew Teen Retreat brought together 30 teens, ages 1318, from across North and South Carolina for a four-day weekend dedicated to growth, connection, and empowerment. Open to teens living with a bleeding disorder, as well as those with an affected sibling or parent, the retreat offered a supportive environment to foster friendships, independence, and resilience. Participants took part in a variety of educational sessions and outdoor team-building activities, helping to strengthen peer relationships and develop a reliable support network. A key focus of the retreat was encouraging teens to advocate for themselvesparticularly during the challenging transition to adulthood. A special session was held to build self-advocacy skills, while mentorship opportunities provided guidance and reassurance in navigating life with a bleeding disorder.

    Expenses $30,432

  • Washington Days In March, BDASC proudly represented South Carolina at the national Washington Days advocacy event in Washington, D.C. Alongside over 385 advocates from across the country, our delegation engaged in seven meetings with U.S. Congressional offices to discuss continued access to care and treatment for those affected by bleeding disorders. We provided financial assistance to eleven community members, empowering them to participate in federal-level advocacy and to share their personal stories with lawmakers.

    Expenses $17,902

  • Rural Outreach Support Programming: The Voices of 46 In 2025, BDASC conducted over 60 in-person educational outreach programs across South Carolina, reaching communities in the Upstate, Midlands, and Lowcountry regions. These efforts reduced the need for long-distance travel and ensured that families living in rural and underserved areas had access to critical information and support. Program topics included scholarship and camp opportunities, insurance navigation, healthcare policy updates, school and employment resources, bleeding disorders education, and advocacy training. Through this extensive outreach, we were able to provide educational and networking support to hundreds of families throughout the state. As part of our commitment to awareness, BDASC led efforts during National Bleeding Disorders Awareness Month in March, securing proclamations from state, county, and city officials to recognize and elevate the visibility of bleeding disorders across South Carolina. In addition to these efforts, we launched a statewide initiative to proclaim special days of awareness specifically honoring our Von Willebrand Disease (VWD) and rare bleeding disorder communities, and our women who bleedensuring their unique challenges and needs received the recognition they deserve.

    Expenses $13,685

As filed on the 2025 return. The first 10 program lines listed; the rest are in the source return and the API. The filer continues this part on Schedule O, which is not shown here.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Suzanne Martin

    Director

    Total calculated
    $81,000
    From this org
    $81,000
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • Christine Evans

    Director

    Total calculated
    $0
    Hours/week
    5

  • James Whitmire

    Director

    Total calculated
    $0
    Hours/week
    5

  • Edna Rabb

    Director

    Total calculated
    $0
    Hours/week
    5

  • Susie Maloy

    Director

    Total calculated
    $0
    Hours/week
    5

  • Candi Mitchell

    Director

    Total calculated
    $0
    Hours/week
    5

  • Eric Townsend

    Director

    Total calculated
    $0
    Hours/week
    5

  • Taylor Upton

    Vice President

    Total calculated
    $0
    Hours/week
    5

  • Cristal Day

    Treasurer

    Total calculated
    $0
    Hours/week
    5

  • Shelley Crisp

    President

    Total calculated
    $0
    Hours/week
    10

  • Ginny Maxwell

    Secretary

    Total calculated
    $0
    Hours/week
    5

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $484,313
    Expenses
    $519,539
    Contributions
    $406,709
    Grants paid
    $29,714
  • 2024
    Revenue
    $596,773
    Expenses
    $420,976
    Contributions
    $514,825
    Grants paid
    $26,006
  • 2023
    Revenue
    $401,157
    Expenses
    $450,869
    Contributions
    $342,223
    Grants paid
    $24,729
  • 2022
    Revenue
    $370,179
    Expenses
    $376,933
    Contributions
    $286,662
    Grants paid
    $28,440

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $329,889
    Expenses
    $275,019
    Assets (EOY)
    $443,317

  • 2020 · 990

    Revenue
    $339,268
    Expenses
    $221,983
    Assets (EOY)
    $400,871

  • 2019 · 990

    Revenue
    $331,349
    Expenses
    $290,500
    Assets (EOY)
    $268,810

  • 2018 · 990

    Revenue
    $284,308
    Expenses
    $247,026
    Assets (EOY)
    $227,985

  • 2017 · 990

    Revenue
    $231,137
    Expenses
    $224,481
    Assets (EOY)
    $190,768

  • 2016 · 990

    Revenue
    $243,691
    Expenses
    $196,683
    Assets (EOY)
    $184,966

  • 2013 · 990-EZ

    Revenue
    $112,525
    Expenses
    $71,440
    Assets (EOY)
    $76,251

  • 2012 · 990-EZ

    Revenue
    $66,340
    Expenses
    $75,931
    Assets (EOY)
    $35,166

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Form 990-N e-Postcard, tax year 2010

Tax period
1 July 2010 to 30 June 2011
Principal officer
Vic Fisher
Mailing address
PO Box 489Greer SC 29652
Website
hemophiliaofsouthcarolina.net
Doing business as
HSC

As filed, from the IRS e-Postcard file of 26 October 2026. The IRS publishes only each organization's most recent postcard, so earlier years are not shown. A 990-N carries no financial detail. The postcard also gives the principal officer's address, which is not shown here.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.