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ANGELMAN SYNDROME FOUNDATION INC

EIN 59-3092842 AURORA, IL

Revenue 2024
$3,906,892
Expenses 2024
$3,721,265

Program services were 76.0% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H90
Classification
2000
Street
3015 E NEW YORK ST STE A2 PMB 285

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2024

As listed in Part VII of the 2024 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • AMANDA MOORE

    CEO

    Total calculated
    $118,419
    From this org
    $118,419
    From related orgs
    $0
    Other
    $0
    Hours/week
    40

  • REBECCA BURDINE

    SAC CHAIR

    Total calculated
    $0
    Hours/week
    1

  • APRIL CANTER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • JERALD FRITZ

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • TAYLOR GEATHERS

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • ESLIN GUICE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • DAN HARVEY

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • RICHARD KRAKER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • MINDY MCBRIBE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHRISTIAN PACHE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    2

  • LIA PERRYMAN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • STEVE PILUSO

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • WILLIAM RAKOCZY

    DIRECTOR

    Total calculated
    $0

  • COURTNEY SWAFFORD

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • MARCUS THOMPSON

    DIRECTOR

    Total calculated
    $0
    Hours/week
    1

  • CHARLES WINSLOW III

    SECRETARY

    Total calculated
    $0
    Hours/week
    1

  • LESLEY MCCULLOUGH MCCALISTER

    PRESIDENT

    Total calculated
    $0
    Hours/week
    2

  • ANDREW OBERWAGER

    TREASURER

    Total calculated
    $0
    Hours/week
    2

  • JOHN SUGDEN

    VICE CHAIR

    Total calculated
    $0
    Hours/week
    2

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2024
    Revenue
    $3,906,892
    Expenses
    $3,721,265
    Contributions
    $2,318,250
    Grants paid
    $1,298,418
  • 2023
    Revenue
    $3,863,609
    Expenses
    $3,934,210
    Contributions
    $2,066,864
    Grants paid
    $1,284,929
  • 2022
    Revenue
    $3,638,325
    Expenses
    $3,635,328
    Contributions
    $2,516,563
    Grants paid
    $493,512

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

  • REGENTS UNIVERSITY OF CALIFORNIA

    $388,725

    2024 RESEARCH

  • UNIVERSITY OF CALIFORNIA - DAVIS

    $359,000

    2023 RESEARCH

  • UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $296,913

    2023 RESEARCH

  • UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $200,018

    2024 RESEARCH

  • RTI INTERNATIONAL

    $176,023

    2023 RESEARCH

  • VANDERBUILT UNIVERSITY MEDICAL CTR

    $167,074

    2024 RESEARCH

  • FOUNDATION FOR ANGELMAN SYNDROME THERAPEUTICS

    $143,155

    2022 RESEARCH

  • NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGY

    $125,000

    2023 RESEARCH

  • NEW YORK UNIVERSITY DEPT OF MOLECULAR PATHOBIOLOGY

    $125,000

    2024 RESEARCH

  • UNIVERSITY OF NORTH CAROLINA CHAPEL HILL

    $100,970

    2022 RESEARCH

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility GROUP.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2024, the newest we have parsed for this organization.