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INSTITUTE FOR EXCEPTIONAL CARE

EIN 85-1278444 WASHINGTON, DC

Revenue 2025
$1,142,043
Expenses 2025
$1,520,739

Program services were 66.2% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H99
Classification
1000
Street
1717 K ST NW STE 900

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Other organizations at this address

45 other organizations in the IRS Business Master File list the same street address. matched by us

This address is a suite or unit (STE 900). Organizations that share one are often clients of the same office-services firm, accountant or registered agent rather than related to each other.

We match the street line and ZIP code as the IRS gives them, ignoring case and outer spaces and nothing else, so "AVE" and "AVENUE" count as different streets and this list can miss some. A shared address can mean related organizations or a shared office, but it can also be a registered agent, a mail drop or a service provider holding mail for unrelated clients. It is not, by itself, evidence that two organizations are connected.

Mission and programs · 2025

Mission

Transforming healthcare for people with intellectual and developmental disabilities, so they can thrive.

  • Thought Leadership: Institute for Exceptional Care (IEC) chaired the Planning Committee for a public workshop of the National Academy of Science, Engineering, and Medicine, on the policy, clinical, and business actions needed to build an integrated system of care for people with intellectual and/or developmental disabilities (I/DD). The workshop featured over 30 stakeholders and experts in the field, addressing the critical topics of better coordination of support services across clinical and home- and community-based sectors, improving the cultural and technical preparedness of the general clinical workforce to care for people with I/DD, and improving financing and payment to sustain effective care models. IEC also: Led the design of all disability-related discussions at a national health equity conference with over 9,000 attendees from across the fields of clinical care and health policy. Produced an analysis of federal policy options to improve mental health outcomes for people with I/DD. Co-chaired other workshops and publications from the National Academy of Medicine on policy and programmatic options for improving the health of communities, particularly for vulnerable populations including people with I/DD. Research and Analysis: IEC sponsored three critical analyses to support the design of better care systems for people with I/DD: (1) Case studies of financing and payment innovations across the United States; (2) reviews of the strengths and weaknesses of current approaches to coordination between clinical and non-clinical service sectors, identification of 13 key coordination functions, and the design of an alternative framework for coordination that specifies which stakeholders should be responsible for which functions; and (3) review of current methods for risk stratification and producing a conceptual framework for predicting the types and levels of clinical and non-clinical services that a person with I/DD will need, in order to support better budgeting, financing, and payment. Education: IEC sponsored a webinar for a community of students, alumni, and staff at an independent residential school for children with I/DD, on the elements of neurodiverse friendly healthcare. The webinar addressed important physical accommodations in clinical practices, the potential and challenges of telehealth, and suggestions for how people with I/DD and caregivers can advocate for better care. Additional Info: -Completed development of the Always Uniquely Me App, to help people with IDD and caregivers convey the most important information to clinical teams that dont know them well. -Held two policy summits on health outcome priorities for people with IDD. -Successfully promoted the concept of advanced primary care payment in large Medicare programs. -Provided technical assistance to the Senate for bipartisan legislation on better payment for primary care. -Grew the IDD Advocate Corps to 90 members and formed committees with charters, goals, and training. -Launched an online collaboration portal for the IDD Advocate Corps. Began a story bank. -Created Discourse, a continuing clinical education course on how clinicians can support people with communication disabilities. -Created four printable tools for dental practices to improve communication, accessibility, and patient preparation for dental visits. -Developed an advocacy strategy for the Society of Developmental and Behavioral Pediatrics. -Presented IECs work and approach at numerous conferences and to diverse audiences of clinicians, policy leaders, disability groups, and insurers.

    Expenses $1,007,215 · Revenue $146,730

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • Lauren Erickson

    Policy Director

    Total calculated
    $145,772
    From this org
    $138,351
    From related orgs
    $0
    Other
    $7,421
    Hours/week
    40
  • Joshua Jacobs

    Operational Consultant

    Total calculated
    $139,134
    From this org
    $139,134
    From related orgs
    $0
    Other
    $0
    Hours/week
    40
  • Hoangmai Pham

    President

    Total calculated
    $45,732
    From this org
    $45,732
    From related orgs
    $0
    Other
    $0
    Hours/week
    20
  • Bernard Rosof

    Emeritus Chair

    Total calculated
    $0
    Hours/week
    2
  • Nell Buhlman

    Director

    Total calculated
    $0
    Hours/week
    1
  • Julia Bascom

    Director

    Total calculated
    $0
    Hours/week
    1
  • Cuong Do

    Director

    Total calculated
    $0
    Hours/week
    1
  • Chester Finn

    Director

    Total calculated
    $0
    Hours/week
    1
  • Rima Cohen

    Nominating Chair

    Total calculated
    $0
    Hours/week
    1
  • Bob Galvin

    Vice Chair

    Total calculated
    $0
    Hours/week
    1
  • Morenike Giwa Onaiwu

    Education Co-Chair

    Total calculated
    $0
    Hours/week
    1
  • Richard Gilfillan

    Chair

    Total calculated
    $0
    Hours/week
    2
  • Margaret Nygren

    Finance Chair & Treasurer

    Total calculated
    $0
    Hours/week
    1
  • Cathy Farmer

    Director

    Total calculated
    $0
    Hours/week
    1
  • Dena Gassner

    Education Co-Chair

    Total calculated
    $0
    Hours/week
    1
  • Staci Alexander

    Director

    Total calculated
    $0
    Hours/week
    1
  • Matthew Holder

    Director

    Total calculated
    $0
    Hours/week
    1

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $1,142,043
    Expenses
    $1,520,739
    Contributions
    $976,110
    Grants paid
    $0
  • 2024
    Revenue
    $3,122,794
    Expenses
    $1,902,103
    Contributions
    $3,019,774
    Grants paid
    $0
  • 2023
    Revenue
    $1,250,463
    Expenses
    $1,834,419
    Contributions
    $916,996
    Grants paid
    $0
  • 2022
    Revenue
    $2,236,963
    Expenses
    $1,054,003
    Contributions
    $2,236,878
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $498,567
    Expenses
    $409,727
    Assets (EOY)
    $265,899
  • 2020 · 990

    Revenue
    $188,470
    Expenses
    $79,889
    Assets (EOY)
    $133,091

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 1 November 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.