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NATIONAL DOWN SYNDROME CONGRESS

EIN 51-0163631 CINCINNATI, OH

Revenue 2025
$2,091,467
Expenses 2025
$1,874,625

Program services were 78.1% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
G25Z
Classification
1200
Street
ATTN FUELED COLLECTIVE 3825 EDWARDS

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • SEAN SMITH

    PRESIDENT

    Total calculated
    $0
    Hours/week
    10

  • ANTHONY ZANFORDINO

    1ST VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • BEAU BROOKS

    2ND VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    6

  • NICOLE BAUMER

    3RD VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • ZACHARY CARROLL

    4TH VICE PRESIDENT

    Total calculated
    $0
    Hours/week
    1

  • ANDRE PINEDA

    TREASURER

    Total calculated
    $0
    Hours/week
    6

  • DAVID CHAPLIN

    SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • KISHORE VELLODY

    PAST PRESIDENT

    Total calculated
    $0
    Hours/week
    4

  • BRADLEY CARLISLE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • ANNA EBENSEN

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • BETH FORAKER

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • HANNAH LACOUR

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • CANDICE MOFFIT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • JEFF SCOTT

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • NOEMI SPINAZZI

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • CLAIR WALLACE

    DIRECTOR

    Total calculated
    $0
    Hours/week
    0.5

  • JAMES HUDSON

    EXECUTIVE DIRECTOR

    Total calculated
    $193,886
    From this org
    $157,243
    From related orgs
    $0
    Other
    $36,643
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $157,243
    Bonus
    $0
    Other
    $0
    Deferred
    $0
    Nontaxable benefits
    $36,643
    Filer's total
    $193,886

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $2,091,467
    Expenses
    $1,874,625
    Contributions
    $982,801
    Grants paid
    $42,800
  • 2023
    Revenue
    $1,931,676
    Expenses
    $1,934,348
    Contributions
    $984,736
    Grants paid
    $50,801
  • 2022
    Revenue
    $1,401,237
    Expenses
    $1,586,655
    Contributions
    $579,694
    Grants paid
    $34,400
  • 2022
    Revenue
    $1,419,457
    Expenses
    $1,502,839
    Contributions
    $786,818
    Grants paid
    $34,400

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

Where these grants went next →

Grants received

Related organizations

From Schedule R Part II, where a filer lists the tax-exempt organizations it is related to by control. It does not record shared board members or money.

Declared on its 2025 return

Declared as related by

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The IRS Business Master File ingested 5 October 2026, which is when the registration facts above were last refreshed for every organization. Returns through tax year 2025, the newest we have parsed for this organization.