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I AM ALS

EIN 83-2016277 WASHINGTON, DC

Revenue 2025
$2,566,419
Expenses 2025
$2,569,335

Program services were 78.6% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
E86
Classification
1000
Street
1200 PENNSYLVANIA AVE NW UNIT 14135

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Mission and programs · 2025

Mission

THE MISSION OF I AM ALS IS TO ACCELERATE A CURE FOR ALS BY MOBILIZING COLLECTIVE POWER TO DRIVE URGENT POLICY AND SYSTEMS CHANGE.

  • COMMUNITY SUPPORTI AM ALS OFFERS A MULTI-PRONGED, PERSON-CENTERED SUPPORT PORTFOLIO OF PROGRAMS FOR PEOPLE LIVING WITH ALS, CAREGIVERS, AND LOVED ONES AS THEY NAVIGATE THE EMOTIONAL, PRACTICAL, AND INFORMATIONAL CHALLENGES OF THE DISEASE. THROUGH DIRECT 1:1 SUPPORT, VIRTUAL SUPPORT GROUPS, PEER MATCHING, AND CURATED RESOURCES, THE COMMUNITY SUPPORT TEAM HELPS INDIVIDUALS FEEL LESS ALONE, CONNECT CLIENTS WITH TRAINED COMMUNITY MEMBER MENTORS WHO SHARE SIMILAR EXPERIENCES, AND NAVIGATE CLIENTS TO THE RESOURCES, INFORMATION, AND PROGRAMS THEY NEED. THIS INITIATIVE IMPROVES QUALITY OF LIFE WHILE BUILDING A COMMUNITY ROOTED IN CONNECTION, DIGNITY, AND HOPE.

    Expenses $478,099

  • GOVERNMENT AFFAIRS, POLICY, AND RESEARCHI AM ALS LEVERAGES THE EXPERTISE AND LIVED EXPERIENCE OF THE ALS COMMUNITY TO DRIVE URGENT FEDERAL POLICY AND SYSTEMS CHANGE. THE LEGISLATIVE PROGRAMS ARE INTENDED TO FORCE MULTIPLY ALS RESEARCH AND TREATMENT RESOURCES BY USING FEDERAL POLICY AND FUNDING BUCKETS TO MAXIMIZE INVESTMENTS. THE GOVERNMENT AFFAIRS TEAM WORKS ALONGSIDE COMMUNITY LEADERS, POLICYMAKERS, RESEARCHERS, REGULATORS, AND OTHER PARTNERS TO SECURE APPROPRIATIONS, POLICY, AND LEGISLATION THAT: 1) INCREASES ALS RESEARCH FUNDING, 2) PROTECTS AND EXPANDS ACCESS TO PROMISING TREATMENTS, AND 3) IMPROVES CLINICAL RESEARCH SYSTEMS AND A PATH TO REGULATORY SUCCESS, ALL ULTIMATELY ACCELERATING THE PATH TOWARDS A CURE.

    Expenses $526,421

  • COMMUNITY ORGANIZING AND COMMUNICATIONI AM ALS BUILDS AND SUSTAINS A NATIONAL MOVEMENT BY EQUIPPING COMMUNITY MEMBERS THOSE LIVING WITH AND IMPACTED BY ALS TO TAKE COLLECTIVE ACTION. THROUGH WEEKLY COMMUNITY TEAMS, DIGITAL ACTIONS, EVENTS, STORY-SHARING, AWARENESS CAMPAIGNS, AND COMMUNICATIONS, THE ORGANIZATION TRAINS AND EQUIPS VOLUNTEERS, FACILITATES ADVOCACY, AND MOBILIZES A COMMUNITY AND NATIONAL CONVERSATION AROUND BOLD PRIORITIES AND A FOCUS ON A CURE. I AM ALS STRIVES TO ENSURE PEOPLE LIVING WITH ALS ARE CENTERED IN THE DECISIONS THAT SHAPE THE FUTURE OF ALS SCIENCE, CARE, AND ACCESS. THESE EFFORTS STRENGTHEN COMMUNITY LEADERSHIP, INCREASE ALS AWARENESS AND COMPETENCY, AND CATALYZE PROGRESS ON POLICY CHANGE, RESEARCH, TRIAL ACCESS, CARE, AND PUBLIC ENGAGEMENT.

    Expenses $903,058

  • Expenses $111,596

As filed on the 2025 return.

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • PETER BOWEN

    BOARD CHAIR

    Total calculated
    $0
    Hours/week
    2

  • JENNY FORTNER

    BOARD TREASURER

    Total calculated
    $0
    Hours/week
    2

  • PEGGY PLEWS-OGAN

    BOARD SECRETARY

    Total calculated
    $0
    Hours/week
    2

  • BRIAN WALLACH

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2

  • TIM ABESKA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • SANDRA ABREVAYA

    CO-FOUNDER

    Total calculated
    $0
    Hours/week
    2

  • JANO CABRERA

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • LOUISE LANGHEIER

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • MICHAEL O'NEIL

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • NEEL PAREKH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • JUAN A REYES

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • CHUCK SMITH

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • DAN TATE

    BOARD MEMBER

    Total calculated
    $0
    Hours/week
    2

  • ANDREA GOODMAN

    CEO

    Total calculated
    $358,228
    From this org
    $300,303
    From related orgs
    $0
    Other
    $57,925
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $270,033
    Bonus
    $30,000
    Other
    $270
    Deferred
    $11,298
    Nontaxable benefits
    $46,627
    Filer's total
    $358,228

  • ERIN ALRED

    CHIEF OF STAFF

    Total calculated
    $154,857
    From this org
    $120,205
    From related orgs
    $0
    Other
    $34,652
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $118,125
    Bonus
    $2,000
    Other
    $80
    Deferred
    $0
    Nontaxable benefits
    $34,652
    Filer's total
    $154,857

  • ADITI NARAYAN MINKOFF

    VP OF COMMUNITY SUPPORT

    Total calculated
    $202,483
    From this org
    $160,778
    From related orgs
    $0
    Other
    $41,705
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $159,157
    Bonus
    $1,500
    Other
    $121
    Deferred
    $6,625
    Nontaxable benefits
    $35,080
    Filer's total
    $202,483

  • MICHAEL LECKER

    VP OF COMMUNITY ORGANIZING

    Total calculated
    $169,203
    From this org
    $148,955
    From related orgs
    $0
    Other
    $20,248
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $147,837
    Bonus
    $1,000
    Other
    $118
    Deferred
    $6,239
    Nontaxable benefits
    $14,009
    Filer's total
    $169,203

  • DUSTIN WATSON

    VP OF GOVERNMENT RELATIONS

    Total calculated
    $155,691
    From this org
    $154,595
    From related orgs
    $0
    Other
    $1,096
    Hours/week
    40

    Schedule J breakdown matched by us

    Base
    $143,295
    Bonus
    $11,000
    Other
    $300
    Deferred
    $0
    Nontaxable benefits
    $1,096
    Filer's total
    $155,691

Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead, and on a Form 990-PF Part VIII's — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $2,566,419
    Expenses
    $2,569,335
    Contributions
    $2,454,903
    Grants paid
    $0
  • 2024
    Revenue
    $4,117,942
    Expenses
    $2,566,630
    Contributions
    $4,027,369
    Grants paid
    $5,255
  • 2023
    Revenue
    $2,326,778
    Expenses
    $2,174,696
    Contributions
    $2,290,726
    Grants paid
    $4,000
  • 2022
    Revenue
    $1,631,851
    Expenses
    $2,291,456
    Contributions
    $1,609,370
    Grants paid
    $0

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Other returns filed

  • 2021 · 990

    Revenue
    $3,345,834
    Expenses
    $2,374,530
    Assets (EOY)
    $2,432,581

  • 2021 · 990

    Revenue
    $3,345,834
    Expenses
    $2,374,530
    Assets (EOY)
    $2,432,581

  • 2020 · 990

    Revenue
    $1,632,477
    Expenses
    $2,366,291
    Assets (EOY)
    $1,045,740

  • 2019 · 990

    Revenue
    $2,591,486
    Expenses
    $927,499
    Assets (EOY)
    $1,685,514

  • 2018 · 990-EZ

    Revenue
    $97,109
    Expenses
    $96,184
    Assets (EOY)
    $925

Nonprofiteer parses Forms 990, 990-EZ and 990-PF, in a window of recent tax years. These returns are recorded from the IRS e-file index, so their figures were extracted by that index rather than read from the return here — treat them as a different source from the filings above, not as more of the same record. A dash means the index carries no figure; Form 990-T listings carry none at all.

Grants made

No itemized grants to organizations. Schedule I is filed only by organizations that granted more than $5,000 to a recipient, so most filers have none.

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 13 October 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.

What this page reflects

The registration facts above come from the IRS Business Master File published 13 October 2026 and read 26 October 2026, for every organization at once. Returns through tax year 2025, the newest we have parsed for this organization.