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DYSTONIA MEDICAL RESEARCH FOUNDATION

EIN 95-3378526 CHICAGO, IL

Revenue 2025
$3,654,855
Expenses 2025
$3,242,781

Program services were 81.8% of total expenses calculated — Part IX's program-services column over total expenses, both as filed.

As filed

Subsection
03
NTEE code
H48Z
Classification
1000
Street
1 E WACKER DR STE 1730

These codes are the IRS's own and are shown exactly as filed. What each one means is in the Business Master File documentation (opens in a new tab).

Officers and directors · 2025

As listed in Part VII of the 2025 return, in the order the filer printed them. Each return names its own; this is not a roster the organization keeps with us.

  • JANET HIESHETTER

    Sec/EXEC DIR

    Total calculated
    $205,215
    From this org
    $188,293
    From related orgs
    $0
    Other
    $16,922
    Hours/week
    59

    Schedule J breakdown matched by us

    Base
    $188,293
    Bonus
    not reported
    Other
    not reported
    Deferred
    $7,532
    Nontaxable benefits
    $9,390
    Filer's total
    $205,215

  • Robyn Kurth

    Dir Communications

    Total calculated
    $148,056
    From this org
    $141,002
    From related orgs
    $0
    Other
    $7,054
    Hours/week
    38

  • JENNIFER MCNABOLA

    DIR FINANCE

    Total calculated
    $137,677
    From this org
    $96,313
    From related orgs
    $0
    Other
    $41,364
    Hours/week
    30

  • Katharine Riddle

    ASSC DIR DEVELOP

    Total calculated
    $105,283
    From this org
    $88,806
    From related orgs
    $0
    Other
    $16,477
    Hours/week
    38

  • MARK RUDOLPH

    President

    Total calculated
    $0
    Hours/week
    5

  • JOHN DOWNEY

    Treasurer

    Total calculated
    $0
    Hours/week
    3

  • RICHARD LEWIS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • BARBARA KESSLER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • KAREN ROSS

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • CAROLE RAWSON

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • PAULA SCHNEIDER

    Vice President

    Total calculated
    $0
    Hours/week
    2

  • Ron Hersh

    Vice President

    Total calculated
    $0
    Hours/week
    3

  • Allison London

    Director

    Total calculated
    $0
    Hours/week
    1

  • FRANCES BELZBERG

    Director

    Total calculated
    $0
    Hours/week
    1

  • MARILYNNE HERBERT

    Director

    Total calculated
    $0
    Hours/week
    1

  • STEFANIE JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • DIANE RUDOLPH

    Director

    Total calculated
    $0
    Hours/week
    1

  • JOEL PERLMUTTER MD

    Scientific Dir

    Total calculated
    $0
    Hours/week
    3

  • ERWIN JACKSON

    Director

    Total calculated
    $0
    Hours/week
    1

  • BILL MCLAUGHLIN

    Director

    Total calculated
    $0
    Hours/week
    1

  • Art Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

  • SANDRA WEIL

    Director

    Total calculated
    $0
    Hours/week
    1

  • ROSALIE LEWIS

    Director

    Total calculated
    $0
    Hours/week
    1

  • Jon Davis

    Director

    Total calculated
    $0
    Hours/week
    1

  • Dennis Kessler

    Director

    Total calculated
    $0
    Hours/week
    1

The first 25 listed. Compensation is as filed in Part VII: reportable pay from this organization and from related organizations, other compensation, and hours per week. The total, marked calculated, is our sum of the three dollar columns, with a blank column counted as $0; the form itself has no total. On a Form 990-EZ the columns are Part IV's instead — compensation, contributions to benefit plans, and expense account — and the total sums those. A Schedule J breakdown is as filed: base pay, bonus, other, deferred compensation and nontaxable benefits from this organization, with any from related organizations beside each, and the filer's own total. It is shown with the Part VII listing of the same name on the same return. The form gives no key between the two, so that pairing is ours, and is marked matched by us. Earlier years are each on their own filing page.

Filings

  • 2025
    Revenue
    $3,654,855
    Expenses
    $3,242,781
    Contributions
    $3,435,644
    Grants paid
    $1,130,358
  • 2024
    Revenue
    $3,214,752
    Expenses
    $2,959,323
    Contributions
    $2,851,281
    Grants paid
    $973,113
  • 2023
    Revenue
    $2,986,859
    Expenses
    $3,393,987
    Contributions
    $2,774,096
    Grants paid
    $1,033,462
  • 2022
    Revenue
    $2,569,110
    Expenses
    $2,496,291
    Contributions
    $2,391,324
    Grants paid
    $826,698

The four totals the IRS asks for on Part I of the Form 990, as filed. A dash means the figure was not present on the return — not that it was zero.

Grants made

The 10 largest by cash amount. The API serves every itemized grant.

Where these grants went next →

Grants received

The 10 largest by cash amount. The API serves every itemized grant.

Other IRS files

Auto-Revocation List

Not listed. The IRS publishes this list for organizations whose exemption was automatically revoked for failing to file for three consecutive years.

Publication 78

Listed as of 10 September 2026, under deductibility PC.

These are two separate IRS files on two separate schedules, shown as published and not reconciled with each other. Neither is a statement about whether a contribution is deductible today: 19,245 organizations appear in Publication 78 while the IRS's own revocation file lists them as currently revoked, more than half of those revoked before 2019. Absence from Publication 78 is evidence of nothing, and presence is not evidence either. Verify current status with the IRS before relying on it.